Adults On The Autism Spectrum

Posted by Mamacita, Volunteer Mentor @mamacita, Apr 29, 2018

Maybe you were really shy as a child. Perhaps you took home a huge stack of books from the school library, read them, and returned them the next day. Or did your best friend find you crying in your closet, unable to answer the question “Why?” At any rate, your life could be traced to the Self-Help section of the local bookstore. Unfortunately, most of the books were not much help. ADHD seemed to fit, at times. Your shrink said you might be Bi-Polar, although she wasn’t really certain. All you knew was that you rarely fit in, anywhere. One day at work, it hit you square in the face: I don’t speak these people’s language! Really, it was like you were all playing this game, and everyone knew the rules but you. You couldn’t tell a joke, and you never “got” any joke your co-worker tried to tell you. People started getting annoyed with you, because you had a memory like a steel trap. They didn’t appreciate it when you called them on the carpet. Who knew? This was my life, and worse. I finally aced several tests that pointed me to the answer to my questions. The Autism Spectrum. Guess what? Little kids with Autism grow up to be Adults with Autism. Diagnosed late in life? This is the place for you!

@mamacita

Good morning guys and dolls! @mamacita here wirh late breaking news!

April is over!!! Yay!!!!
No more "Light It Up blue"……
No more "#%^%# Speaks……when only four per cent of their budget actually goes for services to Autistic people.
No more mamallamadrama about how horrible it is to have an Autistic child.
No more Search For A Cure…..we are not sick. We are not diseased. We want to live.
No more actively treating us like we are not even in the room.

Autism Acceptance. We are beyond the "Aware" stage.

Thank you all for welcoming us here. We hold no negative thoughts towards those who have not reached this point of view.

We all grow at a different rate. I clearly remember being shocked and angry when I learned that some folks want to prevent us from even being born.

Autism is not a disease. It is not a mental illness. It is not a disability. It is simply a differently wired brain.

If you need more information on this, I suggest you start with Everyday Aspbergers, written by the noted author and speaker, and Autism Advocate, Samantha Craft. There are many others I can mention at another time.

Normally I am cozysquishyhuggyGramma on here. But when people start giving little ones bleach enemas to "cure" their child's Autusm, it's time to step up the game.

Don't be misinformed by flash and popularity. Search out the facts for yourself. "Nothing about us, without us."

Love and light to you all.

Mamacita

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@mamacita Right on! [Oops, there I go dating myself!] Learning to stand up for ourselves and what helps us survive best each day, is tough. For so long we gave just "gotten along", and suffered our best selves. No more. Now I simply will not abide by that. It has taken many by surprise, wondering what happened to that passive person, how did she get replaced by someone speaking up for themselves?

In four weeks I will be in Rhode Island for a week for a training conference, and will meet over 100 people that I have never seen before. Also, I have to negotiate a cross-country flight with a layover, too. My organized brain says, "piece of cake", while the rest of me is full of nerves and trepidation. I already contacted the organizers, and told them specifically where I will feel most comfortably placed [yeah for me for standing up for myself!!] in the conference room. If we don't say something, it won't happen!

For today, I am grateful to be able to share here.
Ginger

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@mamacita

Good morning guys and dolls! @mamacita here wirh late breaking news!

April is over!!! Yay!!!!
No more "Light It Up blue"……
No more "#%^%# Speaks……when only four per cent of their budget actually goes for services to Autistic people.
No more mamallamadrama about how horrible it is to have an Autistic child.
No more Search For A Cure…..we are not sick. We are not diseased. We want to live.
No more actively treating us like we are not even in the room.

Autism Acceptance. We are beyond the "Aware" stage.

Thank you all for welcoming us here. We hold no negative thoughts towards those who have not reached this point of view.

We all grow at a different rate. I clearly remember being shocked and angry when I learned that some folks want to prevent us from even being born.

Autism is not a disease. It is not a mental illness. It is not a disability. It is simply a differently wired brain.

If you need more information on this, I suggest you start with Everyday Aspbergers, written by the noted author and speaker, and Autism Advocate, Samantha Craft. There are many others I can mention at another time.

Normally I am cozysquishyhuggyGramma on here. But when people start giving little ones bleach enemas to "cure" their child's Autusm, it's time to step up the game.

Don't be misinformed by flash and popularity. Search out the facts for yourself. "Nothing about us, without us."

Love and light to you all.

Mamacita

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@mamacita I'm shocked (bleach enemas) how horrible that sounds like Dr Frankenstein I'm so sorry this happens never heard of it before rediculus

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@mamacita

Good morning guys and dolls! @mamacita here wirh late breaking news!

April is over!!! Yay!!!!
No more "Light It Up blue"……
No more "#%^%# Speaks……when only four per cent of their budget actually goes for services to Autistic people.
No more mamallamadrama about how horrible it is to have an Autistic child.
No more Search For A Cure…..we are not sick. We are not diseased. We want to live.
No more actively treating us like we are not even in the room.

Autism Acceptance. We are beyond the "Aware" stage.

Thank you all for welcoming us here. We hold no negative thoughts towards those who have not reached this point of view.

We all grow at a different rate. I clearly remember being shocked and angry when I learned that some folks want to prevent us from even being born.

Autism is not a disease. It is not a mental illness. It is not a disability. It is simply a differently wired brain.

If you need more information on this, I suggest you start with Everyday Aspbergers, written by the noted author and speaker, and Autism Advocate, Samantha Craft. There are many others I can mention at another time.

Normally I am cozysquishyhuggyGramma on here. But when people start giving little ones bleach enemas to "cure" their child's Autusm, it's time to step up the game.

Don't be misinformed by flash and popularity. Search out the facts for yourself. "Nothing about us, without us."

Love and light to you all.

Mamacita

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@mamacita well said. I know many people truly feel they are helping, by recommending their ideas of how to cure someone with autism, without realizing they may be dangerous. After 14 yrs of living with an autistic son, I am thankful I didn't listen to all the ideas everyone wanted me to try on him. Autistic people are not guinea pigs, and I would not chance experimenting on anyone's child with the next "natural cure-all" Of course there are awesome therapies and some medications out there to help anyone on the spectrum, or any disability to achieve their potential. Speech therapy, occupational therapy, and ABA have helped our little guy progress so much, and at the same time, teach parents to always gently push them out of their comfort zone. I've also learned not to take silly comments, that we all hear over and over, about what we did to cause Autism, try this, try that etc, etc… to fall like water off a duck's back. Life's much better that way. 🙂

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@lizaa

@mamacita well said. I know many people truly feel they are helping, by recommending their ideas of how to cure someone with autism, without realizing they may be dangerous. After 14 yrs of living with an autistic son, I am thankful I didn't listen to all the ideas everyone wanted me to try on him. Autistic people are not guinea pigs, and I would not chance experimenting on anyone's child with the next "natural cure-all" Of course there are awesome therapies and some medications out there to help anyone on the spectrum, or any disability to achieve their potential. Speech therapy, occupational therapy, and ABA have helped our little guy progress so much, and at the same time, teach parents to always gently push them out of their comfort zone. I've also learned not to take silly comments, that we all hear over and over, about what we did to cause Autism, try this, try that etc, etc… to fall like water off a duck's back. Life's much better that way. 🙂

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@lizaa Thanks for your input. Your son is lucky to have you in his corner.
Ginger

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Wow. You guys. @mamacita here. I told the truth and you're still here?!! Wonderful!
I so agree with the majority of those who understand that there are often co-morbidities along with Autism. Anxiety: Who would NOT be anxious, when every single sense is magnified to the extreme.

Depression: Again, who would NOT be depressed when you feel like you don't belong, people constantly tell you that "you aren't doing it right." When you don't understand social expectations.

Gut disorders, such as IBS. Gluten sensitivity. Watch the documentary The Magic Pill. You will have some answers there. And after that, more questions.

Autistics deserve the same respect as every other person on this planet. Many of us tend to believe that we are all made in the image of God. Some of us have even laughingly said that God is an Aspie. After all, who do you know who can listen to a gazillion conversations at the same time?

That's right. An Autie or,….God! You are welcome.

Love you big!

Mamacita

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@lioness

@mamacita I'm shocked (bleach enemas) how horrible that sounds like Dr Frankenstein I'm so sorry this happens never heard of it before rediculus

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anger from this abhorrent act you cant cure us but its important to maintain good gut flora of all of us auties

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Hello – thought you'd be delighted to know that @gingerw, who's been an active participant in this thread on the autism spectrum, is highlighted as this week's Connect Member Spotlight. Learn about how she came to Connect and what motivates her to take part in the community, how she finds balance in life, and some of her favorites pastimes https://connect.mayoclinic.org/page/about-connect/newsfeed-post/sharing-caring-and-lending-a-virtual-ear-meet-gingerw/

Please check it out and make a comment.

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Haaaaapy Weekend, you guys!!!!! Here where I live, we have an entire weekend of festivities to celebrate Memorial Day Weekend.
I can probably count on the fingers of one hand how many times I have attended these festivities.
I WANT to attend all the events.
I would be content if I could attend only two or three of the events.
I will most likely only attend maybe one event.
And that's a big "maybe."

As most of you know, I did not know that I was Autistic, until my senior years. I knew I was a bit of an extroverted introvert. I learned in my fifties that I was most indeed ADHD. So I lived most of my life believing that there was something "wrong" with me. Always on the outside looking in. Depressed, sad, anxious, while trying to raise beautiful children who were simply perfect.

Somehow I knew that I had to mimic the "normal" people around me, in order to get along and have friends. To be able to work with co-workers. I was actually really good at that. But now I understand that is referred to as "masking." Pretending to be someone you are not in order to get along.

My life is so different today. To quote a phrase, it is the best of times, and it is the worst of times. Best: Because I am free to remove the masks and simply be myself. Worst: Because sometimes it is painful to let go of who you have always been, to walk into who you really are.

I like the real me.
I like the real you.
No masks needed here at the Spectrum Cafe.
Be who you are. Pull up a chair. There is a place already set at the table for you.

Life is not always easy. We know that. But it really can be better when we are together! So, here's some homework for you.

Look up "masking" and see if you can identify with any of it. It will benefit you, I can sure tell you that much.

Adios, amigos. Talk to you again soon!

Mamacita

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@sirgalahad

anger from this abhorrent act you cant cure us but its important to maintain good gut flora of all of us auties

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@sirgalahad, a clean gut is important for everyone. My family takes probiotics, eats yogurt, and we love it.

But it seems to me that common sense would tell folks that bleach and little children just don't go together.

Desperate people do desperate things. This is why we are all trying to get the word out that Autism is just a Neurodiverse brain. Sure, there are sometimes conditions that accompany Autism. Those are the issues that need to be worked on. Not medieval torture methods designed to remove those issues..

This is why you and I and so many others share at every venue we can. To help as many as we can. When we say "love and light" we really mean it.

Love and light to you and all our Neurodivergent Tribe!

Mamacita

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@mamacita

Haaaaapy Weekend, you guys!!!!! Here where I live, we have an entire weekend of festivities to celebrate Memorial Day Weekend.
I can probably count on the fingers of one hand how many times I have attended these festivities.
I WANT to attend all the events.
I would be content if I could attend only two or three of the events.
I will most likely only attend maybe one event.
And that's a big "maybe."

As most of you know, I did not know that I was Autistic, until my senior years. I knew I was a bit of an extroverted introvert. I learned in my fifties that I was most indeed ADHD. So I lived most of my life believing that there was something "wrong" with me. Always on the outside looking in. Depressed, sad, anxious, while trying to raise beautiful children who were simply perfect.

Somehow I knew that I had to mimic the "normal" people around me, in order to get along and have friends. To be able to work with co-workers. I was actually really good at that. But now I understand that is referred to as "masking." Pretending to be someone you are not in order to get along.

My life is so different today. To quote a phrase, it is the best of times, and it is the worst of times. Best: Because I am free to remove the masks and simply be myself. Worst: Because sometimes it is painful to let go of who you have always been, to walk into who you really are.

I like the real me.
I like the real you.
No masks needed here at the Spectrum Cafe.
Be who you are. Pull up a chair. There is a place already set at the table for you.

Life is not always easy. We know that. But it really can be better when we are together! So, here's some homework for you.

Look up "masking" and see if you can identify with any of it. It will benefit you, I can sure tell you that much.

Adios, amigos. Talk to you again soon!

Mamacita

Jump to this post

Yes, I agree with you, @mamacita. It's so good to have the mask off – it's easier to breathe and to also see where you are going. Masks block the sunlight and fresh air. I'm also glad that we are all together. We are better together. 😊👍

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Teresa, Volunteer Mentor, you always have just the right words to say. Not that others don't…they do!

You just have a way of lighting up the room here at the Spectrum Cafe. Others do their part, as well, and I will brag on them too.

You have helped make this a calm, comforting place to be. You are open minded and caring. You transcend the barriers between Typical and Neurodiverse.

That is a big deal.
Enough said.
Naptime.

Love and hugs,

Mamacita

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@mamacita

Teresa, Volunteer Mentor, you always have just the right words to say. Not that others don't…they do!

You just have a way of lighting up the room here at the Spectrum Cafe. Others do their part, as well, and I will brag on them too.

You have helped make this a calm, comforting place to be. You are open minded and caring. You transcend the barriers between Typical and Neurodiverse.

That is a big deal.
Enough said.
Naptime.

Love and hugs,

Mamacita

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Thank you, @mamacita. That means a lot coming from you!! I had a great nap this afternoon. I hope that yours is refreshing as well.

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Happy Memorial Day. Going back to the doc in the box. Shingles and Cellulitis. Oy
vey.

I am a terrible patient. Meltdown. Trigger warning: When you are Autistic and you are totally overstressed and your persons do not understand the words that are coming out of your mouth….you have a meltdown. You can't scream sometimes. You certainly can't talk. You love your person or persons but why can't they see what a fix you are in. Why?

Love and light to you all. This day will get better.
Mamacita Jane

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@mamacita

Happy Memorial Day. Going back to the doc in the box. Shingles and Cellulitis. Oy
vey.

I am a terrible patient. Meltdown. Trigger warning: When you are Autistic and you are totally overstressed and your persons do not understand the words that are coming out of your mouth….you have a meltdown. You can't scream sometimes. You certainly can't talk. You love your person or persons but why can't they see what a fix you are in. Why?

Love and light to you all. This day will get better.
Mamacita Jane

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Oh, @mamacita, I'm so sorry~ Can you write down your thoughts and give it to the doctor? Prayers and good wishes go with you!!

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@mamacita

Happy Memorial Day. Going back to the doc in the box. Shingles and Cellulitis. Oy
vey.

I am a terrible patient. Meltdown. Trigger warning: When you are Autistic and you are totally overstressed and your persons do not understand the words that are coming out of your mouth….you have a meltdown. You can't scream sometimes. You certainly can't talk. You love your person or persons but why can't they see what a fix you are in. Why?

Love and light to you all. This day will get better.
Mamacita Jane

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Love and hugs to you, Mamacita.

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