Seizures and flying - anyone have experience?

Posted by tonyde @tonyde, Apr 5 1:30pm

I am interested in traveling from my home in Florida to visit my family in Kingston, NY. Driving or riding in a car 1,200 is out of the question. I am considering flying and my wife would be with me.

The possibility of a seizure inflight is a huge concern, yet I very much want to see everyone. What would happen if I had a seizure inflight?
I no longer care about people seeing me, however, I don't want an emergency landing because I had a 10 minute seizure that I would recover from within an hour or so.

I've had 6 seizures in March 2024, most lasted 10 minutes or less, one lasted an hour plus and put me in the hospital overnight.

Any thoughts?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Leonard | @jakedduck1 | Apr 7 12:49am

@tonyde
Those seizures can be vicious.
Were you in Tonic Status Epilepticus?
Jake

tonyde | @tonyde | Apr 7 9:34am

I'm not sure of the difference between Tonic Status Epilepticus and Status Epilepticus if any. I did some research and my seizure seems to fit in the category of a Status Epilepticus continuous for more than one hour without convulsions.

I remember nothing, my family told me my muscles contracted, I was vomiting stomach acid and making blood curdling screams for more than an hour. An ambulance was called when my breathing became shallow. Every muscle in my body ached for days, I had difficulty eating because of a sore throat for days. My lungs ached and I coughed for a week.

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