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Posted by pfbacon @pfbacon, Dec 5, 2018

Does Mayo Clinic store our messages ? Does the government have access to our information or the messages we exchange in Mayo Clinic's Support groups? Peggy

Hi Peggy @pfbacon, I'm tagging @colleenyoung our director for a definitive answer to your question but this is all spelled out in the Privacy Policy link at the bottom of every page on Mayo Clinic Connect. Here's the link to Connect's Privacy Policy:
https://www.mayoclinic.org/about-this-site/privacy-policy
John

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Hi @pfbacon
Good question, Peggy. Mayo Clinic Connect messages (content) are stored on a server. First and foremost, it is important to keep in mind that Connect is a public forum. A public forum allows the discussions to be discoverable so that they can help as many patients and families as possible. For this reason, we allow members to use a pseudonym. It is not obligatory to use your name, photo or otherwise identifying information. We do not share the information shared with the government or other third party. However the forum is public and can be viewed by non-members.

In addition to Mayo's Privacy Policy, you may also be interested in this information:
Terms of Use: https://connect.mayoclinic.org/terms-of-use/
Community Guidelines: https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/
About Connect: https://connect.mayoclinic.org/page/about-connect/tab/aboutconnect/
Why and how we moderate: https://connect.mayoclinic.org/page/about-connect/tab/moderators/

Let me know if you have additional questions about using Connect safely.

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@colleenyoung

Hi @pfbacon
Good question, Peggy. Mayo Clinic Connect messages (content) are stored on a server. First and foremost, it is important to keep in mind that Connect is a public forum. A public forum allows the discussions to be discoverable so that they can help as many patients and families as possible. For this reason, we allow members to use a pseudonym. It is not obligatory to use your name, photo or otherwise identifying information. We do not share the information shared with the government or other third party. However the forum is public and can be viewed by non-members.

In addition to Mayo's Privacy Policy, you may also be interested in this information:
Terms of Use: https://connect.mayoclinic.org/terms-of-use/
Community Guidelines: https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/
About Connect: https://connect.mayoclinic.org/page/about-connect/tab/aboutconnect/
Why and how we moderate: https://connect.mayoclinic.org/page/about-connect/tab/moderators/

Let me know if you have additional questions about using Connect safely.

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Thank you. I asked because some states are refusing to renew driver's licenses of people who use lyrica or gabapentin. They are asking for medical information on the application for a license. The same states are also compelling pharmacists to report people who take lyrica and gabapentin, tramadol and other pain meds. They are also asking doctor to share private information. My pain doctor refused to sign and he is boycotted at walmart – the pharmacist told me that she wouldn't fill any prescriptions written by him.

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@pfbacon

Thank you. I asked because some states are refusing to renew driver's licenses of people who use lyrica or gabapentin. They are asking for medical information on the application for a license. The same states are also compelling pharmacists to report people who take lyrica and gabapentin, tramadol and other pain meds. They are also asking doctor to share private information. My pain doctor refused to sign and he is boycotted at walmart – the pharmacist told me that she wouldn't fill any prescriptions written by him.

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What state was this ? Rob

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@pfbacon

Thank you. I asked because some states are refusing to renew driver's licenses of people who use lyrica or gabapentin. They are asking for medical information on the application for a license. The same states are also compelling pharmacists to report people who take lyrica and gabapentin, tramadol and other pain meds. They are also asking doctor to share private information. My pain doctor refused to sign and he is boycotted at walmart – the pharmacist told me that she wouldn't fill any prescriptions written by him.

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@pfbacon Kudos to your doctor! Wish more had a moral ethic like his!
Ginger

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Virginia (in a suburb of Washington DC). I also live part-time in Delaware — a pharmacist there told me that Delaware has also put Lyrica, Gabapentin, and Tramadol on the list of Controlled Substances.

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@pfbacon I seldom see mention of Delaware. Where do you live there? Bethel?, Laurel, Seaford, Milford, Dover, Fenwick Island? Rehobeth Beach. Did I get it yet. Have a great, sunny day.

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Must b a lot stronger gabapentin than I have!

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I'm Bethany Beach. I love it. I wake up every morning and see the sunrise over the Atlantic. Our main house is in a Virginia suburb of Washington DC but I leased the Bethany Beach condo for 6 months. I just retired in April, I was planning to start executing my "bucket list" but I can't do some of it because I'm struggling with pain, doctors, tests, insurance companies, pharmacists, and medicines. I'm trying to get stabilized with medications that work but the condition keeps changing and getting worse. Where are you? You seem to know Delaware well …

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@carolyn37

Must b a lot stronger gabapentin than I have!

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I have 300 mg. gabapentin, doctor said I can take up to 9 a day, but I read on one of these neuropathy support groups a fellow said he has 600 mg. gabapentins. Gabapentin calms down my nervous system, which reduces the pain, and it doesn't cause me any sleepiness or other side affects.

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@pfbacon

I have 300 mg. gabapentin, doctor said I can take up to 9 a day, but I read on one of these neuropathy support groups a fellow said he has 600 mg. gabapentins. Gabapentin calms down my nervous system, which reduces the pain, and it doesn't cause me any sleepiness or other side affects.

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Hi. 15- 20 years ago when the peripheral neuropathy first started in both feet, I was om 800 mg. four/d. It helped the pain but was way too much for me. I was in such a stupor that a dozen times while I was trying to eat, my husband would have to wake me because my face would fall into my food. I went down to 600 mg. and eventually 300 two-three times/d.. I still have the tingling all the time and sometimes burning pain or sharp “electric” jolts, but overall, I’m pretty used to it. Primarily, my memory is good, I can make good decisions and take care of myself. Everyone’s height, weight and tolerance is different, so others can tolerate a higher dose.

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