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pfbacon
@pfbacon

Posts: 34
Joined: Sep 24, 2018

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Posted by @pfbacon, Wed, Dec 5 4:55pm

Does Mayo Clinic store our messages ? Does the government have access to our information or the messages we exchange in Mayo Clinic's Support groups? Peggy

REPLY

Hi Peggy @pfbacon, I'm tagging @colleenyoung our director for a definitive answer to your question but this is all spelled out in the Privacy Policy link at the bottom of every page on Mayo Clinic Connect. Here's the link to Connect's Privacy Policy:

https://www.mayoclinic.org/about-this-site/privacy-policy

John

Hi @pfbacon
Good question, Peggy. Mayo Clinic Connect messages (content) are stored on a server. First and foremost, it is important to keep in mind that Connect is a public forum. A public forum allows the discussions to be discoverable so that they can help as many patients and families as possible. For this reason, we allow members to use a pseudonym. It is not obligatory to use your name, photo or otherwise identifying information. We do not share the information shared with the government or other third party. However the forum is public and can be viewed by non-members.

In addition to Mayo's Privacy Policy, you may also be interested in this information:
Terms of Use: https://connect.mayoclinic.org/terms-of-use/
Community Guidelines: https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/
About Connect: https://connect.mayoclinic.org/page/about-connect/tab/aboutconnect/
Why and how we moderate: https://connect.mayoclinic.org/page/about-connect/tab/moderators/

Let me know if you have additional questions about using Connect safely.

@colleenyoung

Hi @pfbacon
Good question, Peggy. Mayo Clinic Connect messages (content) are stored on a server. First and foremost, it is important to keep in mind that Connect is a public forum. A public forum allows the discussions to be discoverable so that they can help as many patients and families as possible. For this reason, we allow members to use a pseudonym. It is not obligatory to use your name, photo or otherwise identifying information. We do not share the information shared with the government or other third party. However the forum is public and can be viewed by non-members.

In addition to Mayo's Privacy Policy, you may also be interested in this information:
Terms of Use: https://connect.mayoclinic.org/terms-of-use/
Community Guidelines: https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/
About Connect: https://connect.mayoclinic.org/page/about-connect/tab/aboutconnect/
Why and how we moderate: https://connect.mayoclinic.org/page/about-connect/tab/moderators/

Let me know if you have additional questions about using Connect safely.

Jump to this post

Thank you. I asked because some states are refusing to renew driver's licenses of people who use lyrica or gabapentin. They are asking for medical information on the application for a license. The same states are also compelling pharmacists to report people who take lyrica and gabapentin, tramadol and other pain meds. They are also asking doctor to share private information. My pain doctor refused to sign and he is boycotted at walmart – the pharmacist told me that she wouldn't fill any prescriptions written by him.

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