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Managing SCAD (spontaneous coronary artery dissection) and Migraines
Hi
I was diagnosed with Scad II just some weeks ago. Had a scad infarct in August. I’m still recovering and trying to get as much information as possible about this illness. My main concern is my other diagnosis- severe chronic migraines and cluster headaches/ migraines. I have to inject sumatriptan as treatment for attacks about 13-17 times a month/ sometimes more than one injection pr attack. I’m also having
Other medical treatment as botox and atogepant ( cgpr). As far as I know there is no alternative for triptans and that is a big NO NO when it comes to Scad. That’s information from my neurologist and my cardiologist says- it’s your choice to take triptans. My choice based on what information I say. I’m really frustrated at the lack of information into this issue. Can someone help me with understanding and information?
I’m living in Norway / Norwegian female 61 year- (my writing could be better - sorry)
… and marry x- mas.
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Hello @anmagritt63, welcome to Mayo Clinic Connect.
Facing any new diagnosis can be challenging, stressful and overwhelming. When combined with pre-existing conditions, like yourself, those feelings of uncertainty can be heightened. Here are a few resources you may find helpful in the beginning stages of your diagnosis:
- The Relationship Between Migraine and SCAD
https://www.migrainedisorders.org/the-relationship-between-migraine-and-scad/
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- Spontaneous coronary artery dissection (SCAD)
https://www.mayoclinic.org/diseases-conditions/spontaneous-coronary-artery-dissection/symptoms-causes/syc-20353711
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- SCAD Research
https://scadresearch.org/
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I'd also like to invite @ngl, @bensmom1, @azdan99, @sunflower843 and @melanie14 who have all talked about the uncertainty and ongoing monitoring of living with or having had a scare with SCAD on Mayo Clinic Connect.
@anmagritt63, to be clear, your neurologist is telling you that the triptans (that you need for your migraines) are a no-go for SCAD but your cardiologist says it is your choice? Did your cardiologist confirm the dangers of triptans but said it is ultimately your choice, or did they not elaborate on whether or not they are a risk? I can certainly see why this would be confusing and frustrating and something that may need to be cleared with your cardiologist in more detail.
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2 ReactionsThank you so much for replying. My cardiologist told me taking triptans was not recommended but also said it was my choice to take. And that fine with me if I just had an idea of what the choice was. What does the choice consist of? What are the choices? My first cardiologist is the head of the Norwegian research group ( Scad ) so he’s as good as they come here. My second cardiologist ( the one that’s “ looking after me” don’t know a lot about Scad he confirmed at our meeting. But not many doctors do I’ve learned. What I like to know about is my options. But neither of them seems to know