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Sarcoidosis: What treatments have you had with few side effects?

Posted by Linda.G @lindag2, Aug 27, 2012

Has anyone had a good result with their treatment with very few side effects?

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darlenecaywood164 | @darlenecaywood164 | Jun 25, 2023
In reply to @chesneydell1965 "My husband isvtakibg the same meds also vicodin and is still in awful pain . We..." + (show)
Profile picture for chesneydell1965 @chesneydell1965

My husband isvtakibg the same meds also vicodin and is still in awful pain . We filed for disability and was turned down

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Everyone is turned down the first time, keep trying, God Bless!

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akrauch | @akrauch | Mar 26 1:55pm
In reply to @yturner "I spoke to my doctor today and my sarcoidosis is active and I was informed that..." + (show)
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I spoke to my doctor today and my sarcoidosis is active and I was informed that I have new nodules on my lungs. I am still suffering with headaches and with no answers. The sarcoidosis is now on my skin and possibly in nervous system, I am scheduled for a MRI of my brain, neck and spinal cord on the 15th with the possibility of a spinal tap to address these horrible headaches. I have no answers just possibilities laced with new meds. I have just graduated to a third inhaler and possible infusion or Himra. I need to know if anyone has any experience with any of these meds. I am wondering how I will fit it in my life. I am already having a hard time with feeling weak and tired and if any one else is having a problem with a sore stomach or painful defecation.

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@yturner I have neurosarcoidosis, and before I was diagnosed 4 years ago, I suffered from severe migraines for over 20 years. Once I was diagnosed and started treatment, the numer of headaches have been cute dramatically. Migraines are one of the many symptoms of neurosarcoidosis.

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