sarcoidosis and weight gain

Posted by denmac @denmac, Apr 14 11:18am

I am researching to find out exactly how many actually lost weight especially as the first symptom? Every support group I have been on talk about gaining weight and not losing it. I kept on a diet around 1,200-1,500 calories and still gained weight. It has been a on going battle. It took making my lungs damaged so much to finally realize that exertion is what causes the sarcoid to attack my lungs. Since I stop exerting myself my lungs have stayed the same.

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zippy222 | @zippy222 | Apr 30 11:32am

I started being diagnosed in late 2022. Since that time, I have gained about 25 pounds, and struggle to maintain or lose weight. However, this also coincides with taking a new medication. So, I'm not sure which is the cause. Having said that, I certainly am having no issues with weight loss.

As for exertion, my doctors have advocated for more exercise, not less. I cannot say that I feel worse after working out. I am curious what others' experiences may be.

zippy222 | @zippy222 | Jun 25 2:31pm

I have gained 25 pounds in the past year, but I have attributed it to an unrelated medicine I now take. My lungs struggle (feels like asthma) in the first 3 minutes of exercise, but feel much better after that. I am assuming that exercise helps me breathe better, at least it seems that way.