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rPSC
I had my liver transplant 13 months ago due to PSC. My liver numbers have been elevated for a while and I asked for a MRCP, The scan suggest rPSC. I am waiting for an appointment to discuss these findings.
For those who have rPSC, do you have any advice on how I can communicate with my doctors to think creatively about any possible interventions I could try save this new liver? I don’t want to live through another round of liver failure. What has been your experience being diagnosed with rPSC, are there any newer treatments that you were able to explore?
Thank you
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@celeste317, I want to Welcome you to Connect. I see that this is your first post and I look forward to the opportunity to walk with you on your post liver transplant journey.
I am a transplant recipient, and like you, PSC is the reason for my liver and kidney transplant 17 years ago. Your current questions about returning PSC is something that I am questioning, too. It is one that I have always wondered about, and as time passes it becomes more of a concern.
An MRCP is a good way that shows doctors (and us) what is happening inside the liver and biliary system. I can clearly understand your concern by what the results of the scan are suggesting. I am also glad to see that you want to discuss this with the doctor. I am not familiar enough with returning PSC to know whether there have been any new treatments or interventions. You might want to look at the website for PSC Partners Seeking a Cure https://pscpartners.org/
Do you have a scheduled date for your an appointment to discuss the results? Is your liver transplant team involved?