Routine CT Scan 12 years after RCC-Tumor Lower Left Lung - Nvr Smoked

@mistyl- Good morning. It's nice to meet you. I have 25 years behind me of lung cancer and there are many treatments for mutations and it is imperative that you get tested. I suggest that you get a second opinion and be ready to change doctors. You are not getting accurate medical advice or information unless your doctor is not telling you everything.

This sounds very fishy to me. Has your doctor told you what kind of cancer and stage it was? On a positive note, it's excellent news that your nodes and margins are clear.

I would like you to know that it is very normal to be petrified to die. Outside of feeling lousy when you heal from surgery I'm sure that you are anxious to get on with living. One thing that helped me was, to be honest with my husband and let him be honest with me. He needed to tell me things, through tears and sobs. I think that being this open keeps things honest and open.

I hope that you can get to the bottom of genetic testing. If I were you I'd go back to this doctor and ask him/her to set it up. If you don't get a satisfactory answer from him then go to the top of his practice or the hospital. Does this make sense?

I should have put way more details, my apologies! I was sent for an xray in july of this year. incidentally they found the nodule in my right lower lung. after a round of antibiodics and two cat scans, I had a lobectomy. During surgery it was found to be mucinous adenocarcinoma. the oncologist did say it was 1b.
i was hoping i could get a more detailed exclamation about the genetic results. I was also hoping I could know more about how long the tumor had been there? How fast does this actually grow? Ive since had another cat scan and Pet scan to rule out that it had spread from another location.

I made it to see the Oncologist and now have a diagnosis and a treatment plan. This is inoperable, metastatic, stage 4 renal cell carcinoma that has spread to and now is at 3cm diameter in my left mid lobe of my lung .
The original tumor was removed via right partial nephrectomy over 10 year ago. Unfortunately, my oncologist has deemed the tumor inoperable at this time. She has elected to try a targeted drug therapy using (Yervoy and Opdivo) I don't really understand it completely, but from what I have read is stops blood vessel growth in the tumor (if it works). If is doesn't work, she said, "there are other drugs to try." But the wait to see is disconcerting. I asked the doctor about life expectancy and she said "I will be able to tell you how long you have to live in three months." This was a very shocking thing to hear and has been the subject of much worry. The wait, is the issue. I want to know, ASAP, if this treatment is working. And the oncologist seems to be a bit unemotional and/or uncaring. But, I feel like I do not have time to waste on getting other doctors involved. So, I guess I will just have to deal with her cold nature. I start my first treatment on Monday (12/12/22). I having Christmas early today with my family and I hope I can make it through without turning into an emotional basket case. Thank you all for allowing me a safe place to share my feelings. Your replies have been wonderful at helping me to understand I am not alone. Have a good Holiday Season everyone. Chin up! Face forward! Fight!

I made it to see the Oncologist and now have a diagnosis and a treatment plan. This is inoperable, metastatic, stage 4 renal cell carcinoma that has spread to and now is at 3cm diameter in my left mid lobe of my lung .
The original tumor was removed via right partial nephrectomy over 10 year ago. Unfortunately, my oncologist has deemed the tumor inoperable at this time. She has elected to try a targeted drug therapy using (Yervoy and Opdivo) I don't really understand it completely, but from what I have read is stops blood vessel growth in the tumor (if it works). If is doesn't work, she said, "there are other drugs to try." But the wait to see is disconcerting. I asked the doctor about life expectancy and she said "I will be able to tell you how long you have to live in three months." This was a very shocking thing to hear and has been the subject of much worry. The wait, is the issue. I want to know, ASAP, if this treatment is working. And the oncologist seems to be a bit unemotional and/or uncaring. But, I feel like I do not have time to waste on getting other doctors involved. So, I guess I will just have to deal with her cold nature. I start my first treatment on Monday (12/12/22). I having Christmas early today with my family and I hope I can make it through without turning into an emotional basket case. Thank you all for allowing me a safe place to share my feelings. Your replies have been wonderful at helping me to understand I am not alone. Have a good Holiday Season everyone. Chin up! Face forward! Fight!

@douglasfeb15, I'm tagging a few other members who have had the Opdivo (nivolumab) plus Yervoy (ipilimumab) treatment combo like @sammy15 @jimthomasintl and @max326. I'm also tagging @deek15redpeppers @panamaj @jimchardy, who have experience with renal cell carcinoma that has spread to the lungs.

Douglas, how did the first treatment go last week? When do you get the second treatment of Opdiva and Yervoy?

I made it to see the Oncologist and now have a diagnosis and a treatment plan. This is inoperable, metastatic, stage 4 renal cell carcinoma that has spread to and now is at 3cm diameter in my left mid lobe of my lung .
The original tumor was removed via right partial nephrectomy over 10 year ago. Unfortunately, my oncologist has deemed the tumor inoperable at this time. She has elected to try a targeted drug therapy using (Yervoy and Opdivo) I don't really understand it completely, but from what I have read is stops blood vessel growth in the tumor (if it works). If is doesn't work, she said, "there are other drugs to try." But the wait to see is disconcerting. I asked the doctor about life expectancy and she said "I will be able to tell you how long you have to live in three months." This was a very shocking thing to hear and has been the subject of much worry. The wait, is the issue. I want to know, ASAP, if this treatment is working. And the oncologist seems to be a bit unemotional and/or uncaring. But, I feel like I do not have time to waste on getting other doctors involved. So, I guess I will just have to deal with her cold nature. I start my first treatment on Monday (12/12/22). I having Christmas early today with my family and I hope I can make it through without turning into an emotional basket case. Thank you all for allowing me a safe place to share my feelings. Your replies have been wonderful at helping me to understand I am not alone. Have a good Holiday Season everyone. Chin up! Face forward! Fight!

Douglas- I am so sorry to hear your news. And having an unemotional doctor to deal with at the same time makes me angry. Have you thought of getting a second opinion?

In my view, your doctor can not tell you when you will die anymore today than he will in 3 weeks or three months. No doctor should answer this question. But I do understand your reaction.

As of this post, you have had your first treatment. How did it go? You can still get a second opinion, you know!

Please stay with me here so I can hold your hand and help you through what will be. OK?

I recently had my right lower lobe removed. Diagnosed as mucinous adenocarcinoma. It was caught EARLY.... margins were clear and the lymph nodes also.

I also had genetic testing done of the tumor. Did your oncologist explain to you the genetic results? I have a copy of the report and am waiting to see him on the 8th.

I am very curious about the genetic mutations.