Restless Leg Syndrome (RLS) and Opioids

Posted by kd1958 @kd1958, Oct 21, 2019

Getting nearly impossible to get meth in Wa. St. By Rx but heroin given out like candy. Will heroin work? Desperate

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@judithjoy, a grandmother is a mother as well and with much more experience. Sad that your daughter seems to resent that your grandchildren want to spend time with you. How old are they now?

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Greetings. I live about 2000 miles from my grandchildren. It is my daughter-in-law that is jealous of my relationship with my grandchildren. She i controlling personality in general about everything. My only consolation is when I am with them (their other grandmother lives 5 minutes from them, lucky woman) they tell me I am their favorite. I know I am and when they are older some day I will be there physically as well as always there for all their needs because they will have a choice. Enjoy ur facetime with them. My son and his wife don't have time to set us up so I send letters.

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I have taken Pramipexole for over 30 years for RLS with very good results. I was diagnosed with RLS in my early 30’s. I started with one 0.5 mg tab @ bedtime and eventually added 0.5mg. I am now 93 and taking 1.5mg @ bedtime.

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Hi everyone.. I have had RLS for years. I’ve taken iron supplements / didn’t work. I’ve taken over counter meds / no luck. I’ve done tons of research like I’m sure everyone has. I bought a weighted blanket 50 lbs and I use A535 lotion and a heating pad and I found this product called Calm. It’s a magnesium powder and I get some sleep after I’ve done all this. Hope maybe this might help others. It’s a horrible disease. People don’t understand unless they have it.

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Profile picture for shellrusk @shellrusk

Hi everyone.. I have had RLS for years. I’ve taken iron supplements / didn’t work. I’ve taken over counter meds / no luck. I’ve done tons of research like I’m sure everyone has. I bought a weighted blanket 50 lbs and I use A535 lotion and a heating pad and I found this product called Calm. It’s a magnesium powder and I get some sleep after I’ve done all this. Hope maybe this might help others. It’s a horrible disease. People don’t understand unless they have it.

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I’ve has RLS for over 50 years. I’ve taken a mild antidepressant, Trazadone, since 1995. I’d say the only thing it does for me is make me sleepy. It’s helped me

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Profile picture for catstx @catstx

I’ve has RLS for over 50 years. I’ve taken a mild antidepressant, Trazadone, since 1995. I’d say the only thing it does for me is make me sleepy. It’s helped me

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Sleep would be so nice.. especially all at once Can’t remember when the last time I had a good sleep and woke up happy

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I agree, only people with RLS really understand the torture we go through.
I've had RLS for about 40 years. I recently started taking pramipexole and
it does let me get some sleep. However, it requires a prescription. It's nice
to correspond with someone who understands.

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Profile picture for rjjb @rjjb

I agree, only people with RLS really understand the torture we go through.
I've had RLS for about 40 years. I recently started taking pramipexole and
it does let me get some sleep. However, it requires a prescription. It's nice
to correspond with someone who understands.

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@rjjb, you'll notice that we removed your email address from your post. Connect is a public forum. We recommend sharing personal contact information using the secure private message function.

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Hydrocodone works actually the best. As little as 5 mg evey 4 hours (30mg a day) will control RLS.
The every 4 hours is because hydrocodone only lasts 4 hours.

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Profile picture for rjjb @rjjb

I agree, only people with RLS really understand the torture we go through.
I've had RLS for about 40 years. I recently started taking pramipexole and
it does let me get some sleep. However, it requires a prescription. It's nice
to correspond with someone who understands.

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@rjjb
I understand. I have had it in my chest for over 20 years. It sends me into arrhythmia then Congestive Heart Failure. What controls it EASILY is 5mg of hydrocodone every 4 hours, BUT.... the opioid hysteria has turned treatment into accusation. You dont drink, smoke, do drugs, don't even drink caffeine... but "you have a script for hydrocodone? Well, you are obviously an addict and we need to punish those kind of people." I spent two days in a hospital for a hernia. They played with my hydrocodone (refusing to even look at my chart). I left and spent the next two weeks with CHF and trying to not die - without any care. What?

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Profile picture for catstx @catstx

I’ve has RLS for over 50 years. I’ve taken a mild antidepressant, Trazadone, since 1995. I’d say the only thing it does for me is make me sleepy. It’s helped me

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@catstx
I have dealt with it 40 years and a neuologist tried the anti-depressant thing... turns out for a monthly payment from my insurance for "treatment". My PCP helped me figure out that the hydrocodone (4 to 5 mg every 4 hours) worked beautifully. From 2005 ish to 2012, I had NO problems keeping it under control. Long ago, it was THE recommended as the best treatment from various studies in treating RLS.
Unfortunately, the current climate assumes that all patients taking pain meds should be treated as criminals.
We have no choice over the medical conditions we have, nor the medication that works.
They have a choice in their behavior.

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