Right side daily headache and no diagnose

Posted by mima2018 @mima2018, Feb 4, 2018

I’ve been having a daily headache since October 2016. Have tried several neurologists, physical therapy, chiropractor, acupuncture, dentist and no one had given me a diagnose. I have tried so many different pills and botox. No help. I have a constant aching pain on the top right of the head, above and around ear, jaw, shoulder and neck. Im considering mayo clinic as the last resort. Anyone dealing with this type of headache? Any suggestions? MRI, CT scan and blood work or all normal. It all started while being extremely stressed and overloaded with work.

Liked by grandmaR

@colleenyoung

Hi Mima,
You might be interested in reading this discussion thread:
New Daily Persistent Headache https://connect.mayoclinic.org/discussion/new-daily-persistent-headache/
I’m also tagging @jenapower @quazar and @upnorthnancy to invite them to this discussion.
Mima, have you been able to reduce your work-related stress while you dedicate some time to your health?

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Hi @mima2018
Mayo Clinic’s top-ranked team of neurologists diagnoses and treats more than 500 neurological conditions, including many rare or complex disorders. I personally can’t recommend a specific neurologist, but can tell you that they work together as a team, even between campuses. So while you may start by seeing one neurologist, you’re getting the expertise of a team.

Here’s a link to the contact numbers to request an appointment http://mayocl.in/1mtmR63

Additionally, here’s more info about the neurology department: https://www.mayoclinic.org/departments-centers/neurology/home/orc-20117057

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@colleenyoung

Hi Mima,
You might be interested in reading this discussion thread:
New Daily Persistent Headache https://connect.mayoclinic.org/discussion/new-daily-persistent-headache/
I’m also tagging @jenapower @quazar and @upnorthnancy to invite them to this discussion.
Mima, have you been able to reduce your work-related stress while you dedicate some time to your health?

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That is great to hear. I may go up north again. Do you know if they do the same with Rheumatologists. Often many auto-immune diseases are listed as rare and not a great deal of research or knowledge of potential causes or even varied treatments. Symtoms and Treatments seem to be the same for just about all of them like Lupus, etc. I go by my experience the last 5 years going for second, third and fourth opinions as they varied and that is why I never wanted them to know what the last doctor said. It just showed me how very little doctors know about some of these where tests are not always conclusive and they vary.

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@1000016352

Hi,
Dear, I have read your post, and what come to mind first is how old are you? No need to tell everyone about age, but the thing that I kept it and marked as valuable information and getting it from my experience working in twenty hospitals is that elderly suffering form headache which is related to one side of the face penetrating into and to the shoulder mentioned as coming from heart problem. Our visiting to doctors might keep us saving more pain or sever pain and help us to be familiar with what would alarm us suddenly and kidnap us from our normal daily life. Wish you good luck!
Amani

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Hi,
I’m 36 years old. I have gone to the cardiologist and I don’t have and issues with the heart. It all started while being stressed and overloaded with work. I work in the computer for hours. I know stress was the trigger when my headache begun but don’t know what’s behind it.

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@raychelk22

Botox actually tightens muscles, which may be why it made it worse. Let me get some info that I found and send it to you and see if it might help!

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@raychelk22 sounds right as I am way more stiff and have muscle spasms. Thank you I will be waiting for your information.

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@jenapower

Hi mima, I’m one of the people Colleen tagged. I do have chronic headaches every day. I have had them for years though. Mine has been diagnosed as coming from the vertebrae in my neck, C4-5, C5-6 now. When I was younger and now I know I have migraines.

A few things I’ve learned along the way, if you use over-the-counter pain medicine like Excedrin, Fioricet (prescription), and other meds, you will develop rebound headaches. It ends up a vicious cycle with the headaches get worse and the only way to get out of it is stop taking the medicines daily. The Botox works for tension headaches and migraines. I know I do have migraines because migraine medications work for me. Mine does tend to go from the right back of my neck through the top of my head and out my right eye. But it’s a migraine.

Sorry I don’t have better answers for you specially.

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@jenapower I’m glad migrane medications are working for you. The doc has given me so many migrane pills, nasal sprays, and yet haven’t found anything heat helps. I don’t have nausea or sensitivity to light or noise. I feel like mine is not a migrane.

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It appears all I researched, reprinted and wrote are now gone. Not sure why, but it seems that I’m not able to help. Mima, I wish you good results to relieve your headaches and discomfort.

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Hi!
So sorry for what you are going through. I am in no way in the medical field buy I can share what I have learned through my own issues.

I have gotten and still get headaches as you describe for two different reasons.
1. When I used to get the headaches, it came from TMJ (I think it is called something different these days). I would grind my teeth at night and there was an issue with my mandibular joint. My PCP diagnosed it and sent me to a TMJ specialist to deal with it. After a couple of years of treatment, it went away.
2. Currently, I get my headaches from my cervical spine. I have issues in my C2-3 level. I am actually having surgery to help with the headache symptoms and other symptoms I am getting.
3. Although I don’t suffer from this, stress can certainly give you headaches. To deal with this, you would need stress mgt. techniques. Therapeutic massage might be useful.

One thing I have learned is that all pain is real. Everyone reacts to issues differently. When I started dealing with chronic pain, my spine issues were very minor but the pain was horrible and I have a good tolerance for pain. He explained that people with the same sort of problems have no symptoms, while those like me have severe pain.

Good luck in your search for relief!

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@jenapower

My headaches are definitely made worse by neck and shoulder muscle spasms. My muscles in those areas are often like ropes. Trigger point injections help in addition to Botox. My last Botox doc did hit up the muscles in my neck and shoulders. For me it helped a lot. Only thing is if the doc isn’t comfortable using Botox in those areas and uses it in too many muscles, it effects the use of your neck. It paralyzes the muscles injected, so if a lot of neck muscles don’t work you can’t hold your head up in certain positions. I only had this happen once, but it made it so I had to hold my head with my ponytail while leaning over to brush my teeth. It was fine standing or sitting, only a problem leaning over. Make sure your doc has used it in those areas. When mine knew what he was doing it worked great and helped a lot.

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It’s very frustrating for me that the wrong information is being given out here. Botox paralyzes a muscle and makes it unable to be used until the Botox wears off. Please instead of deleting my post look it up

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@jenapower

My headaches are definitely made worse by neck and shoulder muscle spasms. My muscles in those areas are often like ropes. Trigger point injections help in addition to Botox. My last Botox doc did hit up the muscles in my neck and shoulders. For me it helped a lot. Only thing is if the doc isn’t comfortable using Botox in those areas and uses it in too many muscles, it effects the use of your neck. It paralyzes the muscles injected, so if a lot of neck muscles don’t work you can’t hold your head up in certain positions. I only had this happen once, but it made it so I had to hold my head with my ponytail while leaning over to brush my teeth. It was fine standing or sitting, only a problem leaning over. Make sure your doc has used it in those areas. When mine knew what he was doing it worked great and helped a lot.

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Hi @jenapower – we have not deleted any posts of yours. Is this the post that you are looking for where you posted links to information about botox https://connect.mayoclinic.org/discussion/right-side-daily-headache-and-no-diagnose/?pg=2#comment-91026 It is on page 2 of this discussion.

If you ever wish to review the history of your posts, simple click your username to go to your Profile. There you will see all your posts.

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@1000016352

Hi,
Dear, I have read your post, and what come to mind first is how old are you? No need to tell everyone about age, but the thing that I kept it and marked as valuable information and getting it from my experience working in twenty hospitals is that elderly suffering form headache which is related to one side of the face penetrating into and to the shoulder mentioned as coming from heart problem. Our visiting to doctors might keep us saving more pain or sever pain and help us to be familiar with what would alarm us suddenly and kidnap us from our normal daily life. Wish you good luck!
Amani

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Hi!
When I was in my early to mid 50s, I started to get a pain in my pit, down my arm with horrible pain on my forearm. I was sent from doctor to doctor with not diagnosis. Eventually, it was diagnosed as my cervical spine. I had an injection and everything went away. Years later, the pain returned but we knew how to deal with it. Now, I get the pain in my head every morning that it wakes me up. I still have pain down my arm with pains and needles. Anyway, I am now getting surgery on my cervical spine, which is causing the problems. I certainly think it is good to make sure it is not your heart, but may I also suggest checking your cervical spine?

Feel Good…..
ronnie

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I have daily headaches sometimes it’s much worse then others. I have been on many medications for this. I am at a loss it is had to function I have memory loss any suggestions

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