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mima2018
@mima2018

Posts: 9
Joined: Feb 05, 2018

Right side daily headache and no diagnose

Posted by @mima2018, Sun, Feb 4 8:25pm

I’ve been having a daily headache since October 2016. Have tried several neurologists, physical therapy, chiropractor, acupuncture, dentist and no one had given me a diagnose. I have tried so many different pills and botox. No help. I have a constant aching pain on the top right of the head, above and around ear, jaw, shoulder and neck. Im considering mayo clinic as the last resort. Anyone dealing with this type of headache? Any suggestions? MRI, CT scan and blood work or all normal. It all started while being extremely stressed and overloaded with work.

Liked by grandmaR

REPLY

My wife has the same pain problem. Hers was finally diagnosed by a neck and spinal orthopedist who referred her to a pain specialist who performed a radio frequency ablation. It solved her many year problem.

@klaus

My wife has the same pain problem. Hers was finally diagnosed by a neck and spinal orthopedist who referred her to a pain specialist who performed a radio frequency ablation. It solved her many year problem.

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@klaus thank you so much for your reply. I was just wondering if you could tell me the name of the diagnosis for your wife. I’m instrested I’m googling and finding out more information. Thank you.

Hi Mima,
You might be interested in reading this discussion thread:
New Daily Persistent Headache https://connect.mayoclinic.org/discussion/new-daily-persistent-headache/
I’m also tagging @jenapower @quazar and @upnorthnancy to invite them to this discussion.
Mima, have you been able to reduce your work-related stress while you dedicate some time to your health?

@colleenyoung

Hi Mima,
You might be interested in reading this discussion thread:
New Daily Persistent Headache https://connect.mayoclinic.org/discussion/new-daily-persistent-headache/
I’m also tagging @jenapower @quazar and @upnorthnancy to invite them to this discussion.
Mima, have you been able to reduce your work-related stress while you dedicate some time to your health?

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Hi Colleen, I worked with the headache for one year and it was very difficult as my job is sitting in front of the computer for hours. I have 3 months that I don’t work and I still have a headache. I was hoping to be much better since I am not in front of the computer but no luck so far..I’m considering to come to the Mayo Clinic. Any suggestions of the best doctor in neurology? Thanks a lot!

I had the exact same pain and realized I was chewing only on the right side causing my jaw to deviate and the muscles to be extremely sore tender and just constant tension causing the headache. So I started using the left side of my mouth to eat building up the muscles on that side and it is helped a ton with my symptoms, but I also found out that I was low on blood, which causes low oxygen to the brain. I started taking a salt pill and drinking more water and it seemed like overnight my symptoms were gone!

Hi mima, I’m one of the people Colleen tagged. I do have chronic headaches every day. I have had them for years though. Mine has been diagnosed as coming from the vertebrae in my neck, C4-5, C5-6 now. When I was younger and now I know I have migraines.

A few things I’ve learned along the way, if you use over-the-counter pain medicine like Excedrin, Fioricet (prescription), and other meds, you will develop rebound headaches. It ends up a vicious cycle with the headaches get worse and the only way to get out of it is stop taking the medicines daily. The Botox works for tension headaches and migraines. I know I do have migraines because migraine medications work for me. Mine does tend to go from the right back of my neck through the top of my head and out my right eye. But it’s a migraine.

Sorry I don’t have better answers for you specially.

@jenapower

Hi mima, I’m one of the people Colleen tagged. I do have chronic headaches every day. I have had them for years though. Mine has been diagnosed as coming from the vertebrae in my neck, C4-5, C5-6 now. When I was younger and now I know I have migraines.

A few things I’ve learned along the way, if you use over-the-counter pain medicine like Excedrin, Fioricet (prescription), and other meds, you will develop rebound headaches. It ends up a vicious cycle with the headaches get worse and the only way to get out of it is stop taking the medicines daily. The Botox works for tension headaches and migraines. I know I do have migraines because migraine medications work for me. Mine does tend to go from the right back of my neck through the top of my head and out my right eye. But it’s a migraine.

Sorry I don’t have better answers for you specially.

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Oh, I have been getting botox since it was still experimental and it helps a lot, but I have multiple types of problems that cause headaches, including bone spurs down my entire cervical spine.

@jenapower

Hi mima, I’m one of the people Colleen tagged. I do have chronic headaches every day. I have had them for years though. Mine has been diagnosed as coming from the vertebrae in my neck, C4-5, C5-6 now. When I was younger and now I know I have migraines.

A few things I’ve learned along the way, if you use over-the-counter pain medicine like Excedrin, Fioricet (prescription), and other meds, you will develop rebound headaches. It ends up a vicious cycle with the headaches get worse and the only way to get out of it is stop taking the medicines daily. The Botox works for tension headaches and migraines. I know I do have migraines because migraine medications work for me. Mine does tend to go from the right back of my neck through the top of my head and out my right eye. But it’s a migraine.

Sorry I don’t have better answers for you specially.

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Thank you Jenna. I have tried so many migrane medications and none have worked for me. No luck with botox either. I’m hoping the doc will find the right medication that works but not until they find my exact diagnosis.

@jenapower

Hi mima, I’m one of the people Colleen tagged. I do have chronic headaches every day. I have had them for years though. Mine has been diagnosed as coming from the vertebrae in my neck, C4-5, C5-6 now. When I was younger and now I know I have migraines.

A few things I’ve learned along the way, if you use over-the-counter pain medicine like Excedrin, Fioricet (prescription), and other meds, you will develop rebound headaches. It ends up a vicious cycle with the headaches get worse and the only way to get out of it is stop taking the medicines daily. The Botox works for tension headaches and migraines. I know I do have migraines because migraine medications work for me. Mine does tend to go from the right back of my neck through the top of my head and out my right eye. But it’s a migraine.

Sorry I don’t have better answers for you specially.

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I’m glad botox is working for you. I had no luck witj the first two rounds. I also get very stiff shoulders and neck which I believe it might come from there but my neuro doest think so.

My headaches are definitely made worse by neck and shoulder muscle spasms. My muscles in those areas are often like ropes. Trigger point injections help in addition to Botox. My last Botox doc did hit up the muscles in my neck and shoulders. For me it helped a lot. Only thing is if the doc isn’t comfortable using Botox in those areas and uses it in too many muscles, it effects the use of your neck. It paralyzes the muscles injected, so if a lot of neck muscles don’t work you can’t hold your head up in certain positions. I only had this happen once, but it made it so I had to hold my head with my ponytail while leaning over to brush my teeth. It was fine standing or sitting, only a problem leaning over. Make sure your doc has used it in those areas. When mine knew what he was doing it worked great and helped a lot.

@jenapower

My headaches are definitely made worse by neck and shoulder muscle spasms. My muscles in those areas are often like ropes. Trigger point injections help in addition to Botox. My last Botox doc did hit up the muscles in my neck and shoulders. For me it helped a lot. Only thing is if the doc isn’t comfortable using Botox in those areas and uses it in too many muscles, it effects the use of your neck. It paralyzes the muscles injected, so if a lot of neck muscles don’t work you can’t hold your head up in certain positions. I only had this happen once, but it made it so I had to hold my head with my ponytail while leaning over to brush my teeth. It was fine standing or sitting, only a problem leaning over. Make sure your doc has used it in those areas. When mine knew what he was doing it worked great and helped a lot.

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My shoulders and neck are always tight especially my right shoulder feels like a rock. I have been exercising to strengthen muscles for the past thee months and I still feel the same. Muscle relaxers don’t work either. The doctor did botox on me on my shoulders neck and head and it made me worse. The pain is always on my right side from my shoulders neck to right side of head. What is weird is that once in a while my right side clears, no pain, but I have a stiff left shoulder with a left top headache. I haven’t found a medicine that works yet for me.

Botox actually tightens muscles, which may be why it made it worse. Let me get some info that I found and send it to you and see if it might help!

Hi,
Dear, I have read your post, and what come to mind first is how old are you? No need to tell everyone about age, but the thing that I kept it and marked as valuable information and getting it from my experience working in twenty hospitals is that elderly suffering form headache which is related to one side of the face penetrating into and to the shoulder mentioned as coming from heart problem. Our visiting to doctors might keep us saving more pain or sever pain and help us to be familiar with what would alarm us suddenly and kidnap us from our normal daily life. Wish you good luck!
Amani

Liked by grandmaR

I had a close friend with what you are describing, pain on only right side. It ended up that she was holding the phone with her head and right shoulder, just a thought. I also get a lot of help from physical therapy when they work on the muscles and then ultra sound that area. Sorry the other things didn’t work. I also have had a lot of pain right after Botox sometimes, not sure why. Then it works well other times. I have had it done many times and talked to the dr about the neck being weak afterwards (twice), he said it was possible.

Here are some other people talking about neck pain after Botox in their neck/shoulders. It’s not for everyone.

https://www.realself.com/forum/botox-side-effects-neck-pain

This is from the Botox website, concerning medical use of Botox.

Botox is a neurotoxin derived from the bacterium Clostridium botulinum. Botox is used medically to treat certain muscular conditions, and cosmetically to remove wrinkles by temporarily paralyzing muscles. It is made from a neurotoxin called botulinum toxin that is produced by the bacterium Clostridium botulinum.

https://www.medicalnewstoday.com/articles/158647.php

Many of the people from the website I posted had pain after heck/shoulder Botox, they also had floppy heads

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