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Hi! I too live in Tucson/Vail, AZ. I was diagnosed with MAC last January, 2017 and am on all 3 of the meds for 18 months. Azithromycin, Ethambutol and Rifampin. So far all 3 meds are agreeing, the side effects are mild but experiencing less appetite and low energy. But to reply to Teresa, yes, the rifampin makes your urine orange but I never experienced orange sweat. Linda, I'm wondering if MAC is prevalent in Tucson, AZ, my doctor is Dr. Clements. I hope and pray both of you are feeling better!!! -Filis (64 year old female)
Replies to "Hi! I too live in Tucson/Vail, AZ. I was diagnosed with MAC last January, 2017 and..."
@lindaaz, Linda, not to worry about the move/change. If/when you have read all the back pages of our Forum .. you will have educated yourself to the point that you will KNOW if you are being misdirected by a doctor .. AND you will KNOW how to advocate for yourself .. AND you will know to come back to our community to check things out! We are not doctors but we sure know how to "sniff" things out and smell trouble! We will be here for you .. just keep coming back! Hugs to all! Katherine
(I THINK I am coming back alive .. one day at a time .. but of course the next 2-28 day cycles of Tobramycin are still ahead!)
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HI, this is Linda Knox replying to you.....I am in Tucson all winter....We should meet and say hello .I am just getting ready to try to leave in July to go back to Youngstown Ohio for the summer.....Yo is about an hour from Cleveland.....I was diagnosed this winter also.....I write to this group under lindaknoxaz....Interesting to see another person from Tucson .......About Rifampin .......I have the orange urine but also have an orange tint to my stool......No one mentioned that before so I thought I should tell everyone that it is a possibility as well.....My ID doctor is T. Zangeneh from UA Banner group....Seems to be up on everything......Started me on each drug a week apart. This is my 3rd week on all the drugs 3 days a week. Not having anything too bad to complain about yet......Maybe it's still early......I am also the one who is taking infusions monthly for IgG count that is low.......
Was wondering if anyone from the Cleveland area has a doctor that they like who is treating them in Cleveland???? I would like to have a name in case of an emergency while in YO.......if I actually really leave......It's scary to think about leaving because everything is set here and when I leave for Yo......I will have different people and doc to deal with......Don't really know what that means in the scheme of things.....
Wishing everyone good luck and sending prayers....
lindaknoxaz xoxo.