Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Let's talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Hi John @mombo, You can receive email notifications for this discussion or other discussions you are interested in following by scrolling to the top of the discussion and clicking on the small bell icon to change the setting to receive email notifications. See the screen below for an example.

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Hi- Chris here ( from CT). RA is a real treat isn’t it! I was an active soul for my 40 yrs of it so far - till the disease and the long term prednisone caused muscle atrophy more recently - possibly last couple of years but didn’t know it till last Dec when all but my Maximus glutes ‘popped’! Shoulders lost muscle too - hard to walk etc. anyone else have this response and have any tips? Am doing PT and keep moving - in spite of pain and weakness - eating protein more etc. Lost a lot of weight too (97 lately). Scary but I trudge on!

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@mombo

I have been diagnosed with RA. Please send me the daily emails.
John Keelan

Jump to this post

@mombo Welcome!! I’ll be glad to help you with getting daily emails. You begin by going to the New to Mayo Clinic Connect site on the right side of the post. Then, click on Tips on how to use the site. This will take you to the Help Center where you will find all sorts of information. I included pictures, too. Halfway down the page is another tab, “Tips on how to use this site.” Click here to manage your preferences. You should already be receiving the Daily Digest.
Let me know if you have any problems!

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So I was clumsily trying to make the point that from a diagnosis or treatment perspective, whether or not you are sero-positive matters not. Yes if you are positive for RA Factor that makes at least that part of the diagnosis easy. But being sero negative doesnt mean you dont have RA. And the whole disease profile is rarely straightforward.

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I have either inflammatory Sjogrens arthritis or RA
lots of joint pain, damage
I wish we had better treatments

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