1. < Autoimmune Diseases

Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Mar 30, 2017

Let's talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 4, 2020
In reply to @rivergirl8243 "i don't have RA but may have other arthritis problems. I was at Mayo in June,..." + (show)
@rivergirl8243

i don't have RA but may have other arthritis problems. I was at Mayo in June, they found nothing

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@rivergirl8243 Hello! See you’ve been busy posting! That’s great. But, what made you pick this thread if you don’t have arthritis? What ‘arthritis problems’ do you have?

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rivergirl8243 | @rivergirl8243 | Sep 4, 2020

I was diagnosed with osteoarthritis years ago

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deborahfrick123 | @deborahfrick123 | Sep 4, 2020

Hi, my name is Debbie. I have RA, Diabetes 2, Fibro and Osteo, I was on methotrexate and it didn't agree with me. I take melocicam, an anti inflammatory and it works for me. I have to live a spontaneous life as the fatigue that I experience rules my life. If I do anything stenous the next day I am bedridden. I have multiple spurs in both knees and they lock up at night. I get up and literally have to apply my hands to my knees to straighten them out. It hurts like the dickens and is happening just about every night.

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1 reply
lioness | @lioness | Sep 4, 2020
In reply to @deborahfrick123 "Hi, my name is Debbie. I have RA, Diabetes 2, Fibro and Osteo, I was on..." + (show)
@deborahfrick123

Hi, my name is Debbie. I have RA, Diabetes 2, Fibro and Osteo, I was on methotrexate and it didn't agree with me. I take melocicam, an anti inflammatory and it works for me. I have to live a spontaneous life as the fatigue that I experience rules my life. If I do anything stenous the next day I am bedridden. I have multiple spurs in both knees and they lock up at night. I get up and literally have to apply my hands to my knees to straighten them out. It hurts like the dickens and is happening just about every night.

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@deborahfrank123. I just took my first Reclast infusion for my Osteoporosis I was afraid of side effects but I didn't have any I take Meloxicam also for my O.A.

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rivergirl8243 | @rivergirl8243 | Sep 5, 2020

Hi all, just trying to figure out what my problem is, I was diagnosed with Osteoporosis years ago around 2006 by a Rheumatologist, I also have degenerative Scoliosis. Now, my balance is off, my left hip gives me problems and I'm plagued with fatigue. I've had a workup at Mayo Clinic by a neurologist, Nothing shows. They told me "no medical reason", for my symptoms, so I came home. They also said the degenerative scoliosis wasn't the problem, so is it the Osteoporosis? I understand you can't legally tell me what is going on, but maybe some of you have had some of my symptoms.

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1 reply
lioness | @lioness | Sep 5, 2020
In reply to @rivergirl8243 "Hi all, just trying to figure out what my problem is, I was diagnosed with Osteoporosis..." + (show)
@rivergirl8243

Hi all, just trying to figure out what my problem is, I was diagnosed with Osteoporosis years ago around 2006 by a Rheumatologist, I also have degenerative Scoliosis. Now, my balance is off, my left hip gives me problems and I'm plagued with fatigue. I've had a workup at Mayo Clinic by a neurologist, Nothing shows. They told me "no medical reason", for my symptoms, so I came home. They also said the degenerative scoliosis wasn't the problem, so is it the Osteoporosis? I understand you can't legally tell me what is going on, but maybe some of you have had some of my symptoms.

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@rivergirl8243 Hi I have Osteoporosis , fibromyalgia ,2back fractures the one in my lower back gives me a lot of pain ,fatigue can't walk a lot The only way you can tell how bad your Osteoporosis is by a Dexa scan When did you have your last one? My L hip hip hurt me a lot of trouble but my Rheumatologist ordered a Reclast infusion 15 minutes and I was done my hip doesn't hurt now the infusion is only once a year

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1 reply
rivergirl8243 | @rivergirl8243 | Sep 5, 2020

Sounds like me ... I live in southern Arizona. I don't have a rheumatologist, I think that will be my next step. Mayo did a bone density on me in June 2020 thanks for the feedback.

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1 reply
lioness | @lioness | Sep 5, 2020
In reply to @rivergirl8243 "Sounds like me ... I live in southern Arizona. I don't have a rheumatologist, I think..." + (show)
@rivergirl8243

Sounds like me ... I live in southern Arizona. I don't have a rheumatologist, I think that will be my next step. Mayo did a bone density on me in June 2020 thanks for the feedback.

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@rivergirl8243 Glad I could help I fought for awhile before I told her I would get it but now am glad I did I'm going n SoCal 106 today

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1 reply
rivergirl8243 | @rivergirl8243 | Sep 5, 2020

thanks, it is over 100 here

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rivergirl8243 | @rivergirl8243 | Sep 5, 2020
In reply to @lioness "@rivergirl8243 Glad I could help I fought for awhile before I told her I would get..." + (show)
@lioness

@rivergirl8243 Glad I could help I fought for awhile before I told her I would get it but now am glad I did I'm going n SoCal 106 today

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my daughter lives in Southern California

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