Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Let’s talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let’s chat. Why not start by introducing yourself?

@kanaazpereira

Hello @kozlo52 @blindeyepug @barneythe2nd @nanke99 @vickiekay @tbeckys @iman_im @lisa_sj99 @1825 @callyrae @jewel8888 @boomerexpert,

I’d like to invite you to this new discussion about rheumatoid arthritis, where it will be easier for you to meet other Connect members living with, and talking about RA. Pull up a chair and tell us a bit about yourself.

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I would like to introduce myself. I was diagnosed with RA at age 30 and have dealt with it for 30 years. I am on my fifth biologic which if Actemra. I get it by way of infusions. Fatigue is profound for me but my doctor has me on medication that helps take the edge off of it. I look forward to supporting others and being supported in this group.

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I was diagnosed with RA in my mid fifties. I started on methotrexate which worked well, but negatively impacted my liver. I was switched to Enbrel and did well for several years. Then during a stressful period my Vectra D score was elevated. The doc switched me to Humira My Vectra continued to be elevated so he trie Orencia. That did not work either. I was then given actemra. Aftrer three infusions I developed a rash. At that time I was retested for TB and was found to have latent TB. I was treated for that and then found to have MRSA. I was treated for that. I was off of meds for two years I am back on Enbrel and it is working quire well. RA is difficult and painful. I have several other autoimmune disease that are challenging me right now….Pemphigus Vulgaris in the esophagus and alopecia areata. Good luck. I hope Actemra works for you.

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Hello @oregongirl, thanks for the private message. I thought I would tag you here in the discussion I think you were looking for – Rheumatoid Arthritis (RA) – Introduce yourself and meet others. Just post any questions you might have here and meet other members talking about RA. You also mentioned wanting to find other discussions on atrial fibrillation (A-Fib) Here is a discussion you might want to read through:

Groups > Heart Rhythm Conditions > Atrial fibrillation and medication side effects
https://connect.mayoclinic.org/discussion/side-efects/

If you are trying to find a particular topic or discussion you might want to try using the Connect search function. It's a great tool for finding discussions. It's how I found this group discussion for you. There are some tips here:

Groups > Just Want to Talk > Search – It can help you!
https://connect.mayoclinic.org/discussion/search-it-can-help-you/

Good luck!

Liked by lioness, Lyn

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I am looking for people who have BOTH Afib and RA

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@oregongirl

I am looking for people who have BOTH Afib and RA

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For Texas Freedom: I was told that I have RA and also have fast heart beat (treated with drugs metoprorlol, losartan and cartia. Suffering with much, much pain in the joints with bad pain, swelling, hot feet and legs and cannot walk and am using a wheel chair until it subsides. I also have psoriatic arthritis so I do not know which one is kicking up at the time, or maybe they are both being active at the same time. Also have vascular problems. Am going in for a bone marrow biopsy in two days. Perhaps cancer? ( Maybe that pain will knock out the other pains?) Must laugh somehow.

Liked by lioness

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@peach414144 sounds like you have much unmanaged inflammation, causing many other problems including heart…once you get inflammation under control I think you'll feel a great improvement

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@peach414144

For Texas Freedom: I was told that I have RA and also have fast heart beat (treated with drugs metoprorlol, losartan and cartia. Suffering with much, much pain in the joints with bad pain, swelling, hot feet and legs and cannot walk and am using a wheel chair until it subsides. I also have psoriatic arthritis so I do not know which one is kicking up at the time, or maybe they are both being active at the same time. Also have vascular problems. Am going in for a bone marrow biopsy in two days. Perhaps cancer? ( Maybe that pain will knock out the other pains?) Must laugh somehow.

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@peach414144 Glad to hear your sense of humor I'm sorry you have so much inflammation . Did the Dr. ever prescribe anti inflammatory meds for you? If he didn't check with him also there is ginger ,turmeric ,ice these all are anti inflammatory I wish you the best and hope your biopsy doesn't show anything bad

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@lioness

@peach414144 Glad to hear your sense of humor I'm sorry you have so much inflammation . Did the Dr. ever prescribe anti inflammatory meds for you? If he didn't check with him also there is ginger ,turmeric ,ice these all are anti inflammatory I wish you the best and hope your biopsy doesn't show anything bad

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No anti-inflammatory prescribed. I do use tumeric with raw honey. The doctors have no answers for me. I also have hypothroidism, diabetes type 2, gerd, H-pylori, COPD,, restless leg syndrome, gloucoma, (almost legally blind at this time) dry eye, anemia, and a recent bout with sepsis this september, October. A few other medical problems cannot remember right now. How should I make an appointment with Mayo and address all these problems at the same time when Mayo wants the appointment to be made for one subject? Which one goes first? Think if I would go into assisted living i will be dead in a few months. Somehow still smiling but for how long! Have just about given up with the doctors here where I live.

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@peach414144

No anti-inflammatory prescribed. I do use tumeric with raw honey. The doctors have no answers for me. I also have hypothroidism, diabetes type 2, gerd, H-pylori, COPD,, restless leg syndrome, gloucoma, (almost legally blind at this time) dry eye, anemia, and a recent bout with sepsis this september, October. A few other medical problems cannot remember right now. How should I make an appointment with Mayo and address all these problems at the same time when Mayo wants the appointment to be made for one subject? Which one goes first? Think if I would go into assisted living i will be dead in a few months. Somehow still smiling but for how long! Have just about given up with the doctors here where I live.

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@peach414144 oh Peach my heart goes out to you I'm so sorry for all you are going through.You are in my thoughts and prayers . I wish I had some answers for you I'm sure you have seen every Dr there is including an Infectious disease Dr. ?

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@lioness

@peach414144 oh Peach my heart goes out to you I'm so sorry for all you are going through.You are in my thoughts and prayers . I wish I had some answers for you I'm sure you have seen every Dr there is including an Infectious disease Dr. ?

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good idea. Have not thought of an infectious disease doctor. Seems the doctors and I have been going around in circles. They are stumped and I am not a doctor. It is embarasing. The doctors seem to not want to bother with me. How can I make an appointment with the Mayo Clinic when the clinic wants to make the appointment for one medical problem. I do not know where to start. What diagnosis should I make the appointment for? An infectious disease doctor?

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@peach414144

good idea. Have not thought of an infectious disease doctor. Seems the doctors and I have been going around in circles. They are stumped and I am not a doctor. It is embarasing. The doctors seem to not want to bother with me. How can I make an appointment with the Mayo Clinic when the clinic wants to make the appointment for one medical problem. I do not know where to start. What diagnosis should I make the appointment for? An infectious disease doctor?

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@peach414144 If this helps I will be happy I love to research and found some sites for you to look at. https://healthzone/infectious disease ,, https:www.niad.nih.gov also WebMD.com this I use a lot . My suggestion is a Gastroenterologist but see what you think these sites have a lot of information. Good luck hope this helps Linda

Liked by Lyn

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I was diagnosed with RA when I was 18 and my knees had swollen up, turned red and were hot. Of course that was 42 years ago. I never had another flare up that I noticed. Eventually my knees became bone on bone and have a restricted range of movement.
I have other joints with pain and my opthamologist diagnosed RA, especially in my left eye.
All these years I've never had a doctor send me to a specialist for my RA and no meds for it. I just cope and keep going. Some days are harder than others of course.
Starting last Friday I've been having what I'd call a mild flare. It started with the backs of my hands between the knuckles. This morning it's my wrists too. Not huge swelling or bright red. My neighbor said they look bruised.
I have a doctor appointment the first week of March. Is this something I need to address now? I'm not having bad pain with this–just uncomfortable.

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@pearlbaby7

I was diagnosed with RA when I was 18 and my knees had swollen up, turned red and were hot. Of course that was 42 years ago. I never had another flare up that I noticed. Eventually my knees became bone on bone and have a restricted range of movement.
I have other joints with pain and my opthamologist diagnosed RA, especially in my left eye.
All these years I've never had a doctor send me to a specialist for my RA and no meds for it. I just cope and keep going. Some days are harder than others of course.
Starting last Friday I've been having what I'd call a mild flare. It started with the backs of my hands between the knuckles. This morning it's my wrists too. Not huge swelling or bright red. My neighbor said they look bruised.
I have a doctor appointment the first week of March. Is this something I need to address now? I'm not having bad pain with this–just uncomfortable.

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I am so sorry that your doctors have been so negligent in taking care of you. If you have RA it is constantly doing damage to your body inch by inch. You need to be on medication to stop the slow progress. RA does not just affect your joints it also can attack your heart, lungs, and even your brain. It is not something to ignore to a later day. Sometimes we have to tell our doctors what to do…after all, they work for us just like our yard man, plumber, and car mechanic.

Liked by Lyn

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@pearlbaby7

I was diagnosed with RA when I was 18 and my knees had swollen up, turned red and were hot. Of course that was 42 years ago. I never had another flare up that I noticed. Eventually my knees became bone on bone and have a restricted range of movement.
I have other joints with pain and my opthamologist diagnosed RA, especially in my left eye.
All these years I've never had a doctor send me to a specialist for my RA and no meds for it. I just cope and keep going. Some days are harder than others of course.
Starting last Friday I've been having what I'd call a mild flare. It started with the backs of my hands between the knuckles. This morning it's my wrists too. Not huge swelling or bright red. My neighbor said they look bruised.
I have a doctor appointment the first week of March. Is this something I need to address now? I'm not having bad pain with this–just uncomfortable.

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@pearlbaby7 yes…doesn't sound like RA…so first see a Rheumatologist not a GP…get your RA factor checked…(approx. 25% of those w/RA, including me, are factor negative, leaving 75%)…could be Lupus, or a worsening case of osteoarthritis (that's the bone-on-bone you mentioned…it's osteo not RA)

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@boomerexpert

@pearlbaby7 yes…doesn't sound like RA…so first see a Rheumatologist not a GP…get your RA factor checked…(approx. 25% of those w/RA, including me, are factor negative, leaving 75%)…could be Lupus, or a worsening case of osteoarthritis (that's the bone-on-bone you mentioned…it's osteo not RA)

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Actually, it is RA and isn't limited to my knees and eyes. I've lived with it for over 40 years but have never noticed the flares. This time isn't bad but it's affecting me. I can see my hands and wrists but not if I'm also flaring in my lungs and blood vessels. The damages to my body have been going on for two thirds of my life. One of my concerns at this point is how much more damage I can receive internally before something quits.

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