Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Let’s talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let’s chat. Why not start by introducing yourself?

@kanaazpereira

Hello @gizmanbarb,

Welcome to Connect; thank you so much for introducing yourself and joining the group.

Although for different conditions, we have quite a few members who have used methotrexate; @jerseygirl926, @crhp194, @lisa_sj99, @lorrainechavez, @debcha, @sherw, @emmur16, @sallyann, @luladavis, @rosestea, @julied838, @mswanda, @djfd @amkaloha @taterjoy @lisabeans @zenk @jewel8888 @smgarner1 would you share your experience with this drug?

You may also wish to view these discussions, and tag members there for more insight:
I’m looking for information on Methotrexate for Autoimmune Diseases: http://mayocl.in/2h2kHZY
Is it possible to go off RA drugs by following a plant based diet: http://mayocl.in/2oJgPDN
Side affects from Anastrozole and MCTD leaves my body achey: http://mayocl.in/2p6loo8

@guzmanbarb, what side effects are you experiencing? Has your physician offered other medications to relieve the pain?

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i take the methatrexate injections weekly and it agrees with me. maybe you can try it this way. no nausea or reactions for seven years.

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@kanaazpereira

This is so great! Thank you so much for responding.

The process is the same when following, joining and posting in any discussion thread; it’s just that formerly, the RA discussions were mixed in with Chronic Pain, Bones, Joints & Muscles, Autoimmune Diseases, and conversations were getting scattered throughout the community.
This discussion or section of the community is dedicated to topics specifically related to rheumatoid arthritis.

Here’s a quick refresher about posting your messages and joining in the discussion:

Click “DISCUSS” in the top navigation bar. Then select “Groups” from the drop-down menu.
Click a group that interests you, like Autoimmune Diseases.
Scroll to review a list of the most recent discussions.
Click the title of an interesting discussion, in this example, “Rheumatoid Arthritis (RA) – Introduce yourself and meet others.”
This will take you to the discussion thread where you can read all of the comments.
To add your own comment, scroll to the bottom of the page and type your comment into the “Write your reply here…” box.
Once you have written your comment, click “POST REPLY.”
You can also reply directly to another member’s comment by clicking “REPLY” below their comment.

Please let me know if you have any other questions.
I look forward to connecting you with others, sharing insights, experiences, and suggestions about living with rheumatoid arthritis.

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Hi @peach414144,

We’re so happy you’ve joined this group on Connect! Here are some instructions for uploading your picture:

How to Upload a Profile Picture

1. Click the “Profile and settings” or avatar button in the top right.
2. Select “Account Settings” from the drop-down menu.
3. Scroll down to the “SITE PROFILE” section.
4. Click the “Upload Photo” button to the right of the page under the “PROFILE PICTURE” heading.
5. Click “Choose File” to select a photo from your files. The file cannot be larger than 5 MB and must be in a JPG, GIF or PNG format.
6. Your photo will then appear in the avatar box as it will appear on your profile. Once you are happy with your photo selection, click “I’m finished. Close this popup.”
7. The popup will close and you’ll be back on the profile page. To finish, scroll to the bottom of the page and click “Save Profile.”

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@kanaazpereira

This is so great! Thank you so much for responding.

The process is the same when following, joining and posting in any discussion thread; it’s just that formerly, the RA discussions were mixed in with Chronic Pain, Bones, Joints & Muscles, Autoimmune Diseases, and conversations were getting scattered throughout the community.
This discussion or section of the community is dedicated to topics specifically related to rheumatoid arthritis.

Here’s a quick refresher about posting your messages and joining in the discussion:

Click “DISCUSS” in the top navigation bar. Then select “Groups” from the drop-down menu.
Click a group that interests you, like Autoimmune Diseases.
Scroll to review a list of the most recent discussions.
Click the title of an interesting discussion, in this example, “Rheumatoid Arthritis (RA) – Introduce yourself and meet others.”
This will take you to the discussion thread where you can read all of the comments.
To add your own comment, scroll to the bottom of the page and type your comment into the “Write your reply here…” box.
Once you have written your comment, click “POST REPLY.”
You can also reply directly to another member’s comment by clicking “REPLY” below their comment.

Please let me know if you have any other questions.
I look forward to connecting you with others, sharing insights, experiences, and suggestions about living with rheumatoid arthritis.

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thank you but i am quite ignorant on the computer wordage.  at 80 i need to be shown exactly how to.  so at this time my brain is my photograph.  but again, i thank you.

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@lapiii

1) What's the difference between our rheumatoid cyst and rheumatoid nodule?
2) How might I get flareups?

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Hello @lapiii, welcome to Connect. Here are a couple of pages that will give some good explanations for you.

Mayo Clinic — Rheumatoid arthritis – Symptoms & Causes
https://www.mayoclinic.org/diseases-conditions/rheumatoid-arthritis/symptoms-causes/syc-20353648

Rheumatoid Nodules: What Does a Rheumatoid Nodule Feel Like?
https://www.rheumatoidarthritis.org/ra/symptoms/rheumatoid-nodules/

RA Symptoms: What are the First Signs of Rheumatoid Arthritis?
https://www.rheumatoidarthritis.org/ra/symptoms/

@lapiii have you been diagnosed with rheumatoid arthritis?

John

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1) What's the difference between our rheumatoid cyst and rheumatoid nodule?
2) How might I get flareups?

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Hi @lapiii,

You may notice that I moved your discussion to this existing conversation about rheumatoid arthritis (RA) with the hope that you will meet fellow Connect members who have discussed RA, and may be able to help further answer your questions.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones’ experiences.

@lapiii, I look forward to getting to know you better; would you be able to share a few more details about yourself?

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@kanaazpereira

Hello @kozlo52 @blindeyepug @barneythe2nd @nanke99 @vickiekay @tbeckys @iman_im @lisa_sj99 @1825 @callyrae @jewel8888 @boomerexpert,

I’d like to invite you to this new discussion about rheumatoid arthritis, where it will be easier for you to meet other Connect members living with, and talking about RA. Pull up a chair and tell us a bit about yourself.

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I would like to introduce myself. I was diagnosed with RA at age 30 and have dealt with it for 30 years. I am on my fifth biologic which if Actemra. I get it by way of infusions. Fatigue is profound for me but my doctor has me on medication that helps take the edge off of it. I look forward to supporting others and being supported in this group.

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I was diagnosed with RA in my mid fifties. I started on methotrexate which worked well, but negatively impacted my liver. I was switched to Enbrel and did well for several years. Then during a stressful period my Vectra D score was elevated. The doc switched me to Humira My Vectra continued to be elevated so he trie Orencia. That did not work either. I was then given actemra. Aftrer three infusions I developed a rash. At that time I was retested for TB and was found to have latent TB. I was treated for that and then found to have MRSA. I was treated for that. I was off of meds for two years I am back on Enbrel and it is working quire well. RA is difficult and painful. I have several other autoimmune disease that are challenging me right now….Pemphigus Vulgaris in the esophagus and alopecia areata. Good luck. I hope Actemra works for you.

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Hello @oregongirl, thanks for the private message. I thought I would tag you here in the discussion I think you were looking for – Rheumatoid Arthritis (RA) – Introduce yourself and meet others. Just post any questions you might have here and meet other members talking about RA. You also mentioned wanting to find other discussions on atrial fibrillation (A-Fib) Here is a discussion you might want to read through:

Groups > Heart Rhythm Conditions > Atrial fibrillation and medication side effects
https://connect.mayoclinic.org/discussion/side-efects/

If you are trying to find a particular topic or discussion you might want to try using the Connect search function. It's a great tool for finding discussions. It's how I found this group discussion for you. There are some tips here:

Groups > Just Want to Talk > Search – It can help you!
https://connect.mayoclinic.org/discussion/search-it-can-help-you/

Good luck!

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I am looking for people who have BOTH Afib and RA

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@oregongirl

I am looking for people who have BOTH Afib and RA

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For Texas Freedom: I was told that I have RA and also have fast heart beat (treated with drugs metoprorlol, losartan and cartia. Suffering with much, much pain in the joints with bad pain, swelling, hot feet and legs and cannot walk and am using a wheel chair until it subsides. I also have psoriatic arthritis so I do not know which one is kicking up at the time, or maybe they are both being active at the same time. Also have vascular problems. Am going in for a bone marrow biopsy in two days. Perhaps cancer? ( Maybe that pain will knock out the other pains?) Must laugh somehow.

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@peach414144 sounds like you have much unmanaged inflammation, causing many other problems including heart…once you get inflammation under control I think you'll feel a great improvement

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