Rheumatoid arthritis and Sjogrens neuropathy

Posted by chamtj @chamtj, Jun 30, 2022

Does anyone else have polyneuropathy as a complication from these 2 autoimmune diagnosis? I’ve had this since 2020. The neuropathy is a beast for me.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Hello @chamtj, Welcome to Connect. I think neuropathy is a beast for a lot of us, especially when you have multiple conditions. @athenalee has posted in other discussions about neuropathy and Sjogren's and may have some thoughts or information for you. Here are a couple of articles that I've found on the topic.

-- Expert Insight: A Closer Look at Neurological Manifestations of Sjogren Syndrome: https://www.rheumatologyadvisor.com/home/general-rheumatology/expert-insight-a-closer-look-at-neurological-manifestations-of-sjogren-syndrome/
-- Neuro-Sjögren: Peripheral Neuropathy With Limb Weakness in Sjögren's Syndrome: https://www.frontiersin.org/articles/10.3389/fimmu.2019.01600/full
-- Types of Peripheral Neuropathy - Inflammatory: https://peripheralneuropathycenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/vasculitis/sjogrens.shtml

Do your doctors have you on any treatments for the neuropathy symptoms?

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@johnbishop

Hello @chamtj, Welcome to Connect. I think neuropathy is a beast for a lot of us, especially when you have multiple conditions. @athenalee has posted in other discussions about neuropathy and Sjogren's and may have some thoughts or information for you. Here are a couple of articles that I've found on the topic.

-- Expert Insight: A Closer Look at Neurological Manifestations of Sjogren Syndrome: https://www.rheumatologyadvisor.com/home/general-rheumatology/expert-insight-a-closer-look-at-neurological-manifestations-of-sjogren-syndrome/
-- Neuro-Sjögren: Peripheral Neuropathy With Limb Weakness in Sjögren's Syndrome: https://www.frontiersin.org/articles/10.3389/fimmu.2019.01600/full
-- Types of Peripheral Neuropathy - Inflammatory: https://peripheralneuropathycenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/vasculitis/sjogrens.shtml

Do your doctors have you on any treatments for the neuropathy symptoms?

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Thank you for replying and yes I’m currently on Lyrica and tramadol. Adding the tramadol helped me a lot. Nothing takes it away completely ever! I am currently in a flare up for my RA and my neuropathy symptoms are at an all time high. I just left my rheumatologist and added back in a medication for my RA/Sjogrens. I see a neurologist for my neuropathy week after next. I’m just curious if this is how it happens for most. My RA has been controlled for a while now so I wasn’t expecting to be hit so hard by both at the same time.

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@chamtj

Thank you for replying and yes I’m currently on Lyrica and tramadol. Adding the tramadol helped me a lot. Nothing takes it away completely ever! I am currently in a flare up for my RA and my neuropathy symptoms are at an all time high. I just left my rheumatologist and added back in a medication for my RA/Sjogrens. I see a neurologist for my neuropathy week after next. I’m just curious if this is how it happens for most. My RA has been controlled for a while now so I wasn’t expecting to be hit so hard by both at the same time.

Jump to this post

@chamtj, I'd like to add my welcome and point you to related discussion threads where you can connect with other members like you. For example, see these discussions:
- Small Fiber Polyneuropathy https://connect.mayoclinic.org/discussion/polyneuropathy/
- Sjogren’s Syndrome – Introduce yourself and meet others https://connect.mayoclinic.org/discussion/sjogrens/
- Rheumatoid Arthritis (RA) - Introduce yourself and meet others https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-ra-introduce-yourself-and-meet-others/

You may also wish to follow the Neuropathy group and join the discussions there:
- Neuropathy Support Group https://connect.mayoclinic.org/group/neuropathy/

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