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Reducing Pednisone

Posted by pmr52025 @pmr52025, Sep 16 9:59pm

I have been on 15 mgs of Prednisone since May. Recently my doctor had me reduce it to 13 mgs for 2 weeks and now 12 mgs for 2 weeks. I have started having some pain again. Pain in hands, arms and back. Is this normal when reducing prednisone? Has anyone had to go back up in mgs while trying to decrease their dosage?

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tweetypie13 | @tweetypie13 | 3 days ago
In reply to @lori62yb "@st1300 morning! I was diagnosed 4 years ago with PMR, and tried Methotrexate for 9 months..." + (show)
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@st1300 morning! I was diagnosed 4 years ago with PMR, and tried Methotrexate for 9 months and it didn’t work. I’ve been successful as of the last 6 months, by doing a very slow taper. For years, I couldn’t go below 5mg, but with the help of one of the group, when I taper, I alternate my new dose with the new dose…for 10 days. Then I settle in to the lower dose. I’m now on my lowest ever at 3mg. I did begin to have clavicle and side neck pain, along with inner elbow stiffness…especially at night…but it gets better during the days. I stay on the taper for 2 months. I’m 63 and I work out 4 days a week on my Peloton bike, and do weights. It keeps me sane! Life is so much better now! My Rheumatologist said I may always have some pain, but insisted I get off the steroids. As long as it stays like this, I can accept that!

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@lori62yb
Know how you feel.
I too experiencing clavicle and neck pain.
Thx for the reassurance I’m not alone.

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