Red Light for Myositis

Posted by elisaSS @elisaonthego, Mar 22 8:11am

Has anyone tried red light or ARRC LED photobiomodulation (PBM) devices for myositis? I have antisynthetase syndrome and have been taking Cell Cept for a year. My lungs and skin have stabilized, but I'm still struggling with myositis. I'm concerned on any unwanted side effects. Thank you.

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scomer | @scomer | Mar 22 2:50pm

I haven’t tried red light but was on a myositis foundation zoom last week and ask the doctor session and he discussed it. The zoom may be recorded on their website

Recently diagnosed with dermatomyositis NXP-2 and Jo 1. Waiting to have several tests scheduled. Extremely weak, using walker as thigh muscles are deteriorating.

elisaSS | @elisaonthego | Mar 22 4:06pm

Thank you very much. Was it a webinar or conference presentation? Do you have the name or date? Too many there, hard to find without a direct link. Mine is in quads and glutes too. Have you tried IVIG? I have not. Prefer less drugs vs. more, so looking into ARRC LED.