Recurring kidney stones and Randall plague

Posted by cayoya1971 @cayoya1971, Jul 17 12:55pm

I’m so frustrated with my kidney stones situation. Getting the doctors also frustrated. I’m creating and passing them every 2 months. They keep telling me that they are running out of options here at Cleveland Clinic. I’m only 55 please help me. I’m changing diet, taking madications, seen so many specialists and still can take a break. I’m exhausted. Confused l, lost trust to doctors. Is there any study that I can be part of. Maybe my case can help Mayo Clinic with research and ways to help me and others.

Interested in more discussions like this? Go to the Kidney Conditions Support Group.

@cayoya1971 Welcome to Mayo Clinic Connect! Have your doctors checked these stones to figure out what kind they are? There are three main types, and knowing what to do to handle them is important.

Here is an article from Mayo Clinic that you will find helpful to figure out what you can do https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/preventing-kidney-stones
Ginger

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Profile picture for Ginger, Volunteer Mentor @gingerw

@cayoya1971 Welcome to Mayo Clinic Connect! Have your doctors checked these stones to figure out what kind they are? There are three main types, and knowing what to do to handle them is important.

Here is an article from Mayo Clinic that you will find helpful to figure out what you can do https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/preventing-kidney-stones
Ginger

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@gingerw you might want to read the note I posted earlier on this Board about water and kidney stones.

I had 20 years of kidney stones several rounds of lithotripsy and lots of painkillers until a friend. Introduced me to what I now call Bill miracle cure.

I doubled or tripled my water intake and continued to increase my water intake until I got up at at least two times each night to pee.

During the transition. I had two or three more stones. Bill suggested in addition to the water when I have a stone to go someplace quiet with a six pack of beer and drink the beer until the Stone passed.

I have followed Bill‘s recommendation since I was 40 and after 20 years of recurring kidney stones, I have not had a single one in the past four years.

I don’t know if this counts as cure, but it certainly deals with the symptoms.

I like boating in the outdoors so I occasionally get overheated and dehydrated and within a few hours, I get the lower back pain that shows the Stone is coming.

When this happens, I drink as much water as I possibly can. The back pain goes away and I never get a Stone.

I suspect the extra water is less harm than the frequent painkilling medication I used to take.

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@stuartbell We need to be careful about overhydration, which is also called hyponatremia. This can cause our electrolytes and other minerals to become unbalanced. In some cases, it could lead to seizures, increased brain pressure, and so forth.

I stand by my thought to discuss with your medical team to determine what kind of kidney3 stones one has, and use our diet as the frontline defense.
Ginger

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Profile picture for Ginger, Volunteer Mentor @gingerw

@stuartbell We need to be careful about overhydration, which is also called hyponatremia. This can cause our electrolytes and other minerals to become unbalanced. In some cases, it could lead to seizures, increased brain pressure, and so forth.

I stand by my thought to discuss with your medical team to determine what kind of kidney3 stones one has, and use our diet as the frontline defense.
Ginger

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@gingerw I certainly agree that would you pass a stone you should have it tested to see what kind it is.

Almost all the stones are oxalate.

You don’t need the weight for the Stone urologist can examine your urine and determine if it has material that would form a stone before you have one.

Has the overhydration, it is an unlikely problem when you eat, balanced meals and hydrate at a consistently high level after examining your blood chemistry during periodic blood testing

I have been hydrating at a level, but most people would call excessive for about 40 years.

I have blood work done four times a year and careful exam of the electrolytes with my primary care provider.

I’m not advocating that you begin out of the blue double or triple your hydration but rather you discuss it with your physician and work up slowly to a level that urologist says has kept the crystallization in your urine to a minimum.

Careful management of overhydration is better than three or four times a year of painkillers or hospitalization for kidney stones.

It is likely but not absolutely determined that these stones were the principal cause of my kidney disease. because of the stone, I was frequently unable to urinate and this has to have caused my kidneys to have some problem.

Stage four kidney disease is far harder to balance advantage but occasional overhydration while you’re learning how to adjust your diet with the help of your physician.

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