Thank you.

Just saw an infectious disease doc at Penn for similar problem. Mine got so bad that I went into septic shock one time and ended in the ICU and the others became sepsis. Apparently I have a colonization of ecology iin either my bladder or ureathea. No decision of continuing treatment until my other docs give their opinions due to other issues.

@renarikiw, Thank you for sharing in this discussion. That has to have been quite a painful and frightening experience for you. It sounds promising for you that your doctor has found what is causing it.
I have experienced several uti's that were relatively minor, in comparison. I never had any until after my transplant and my required immunosuppresant medications which weaken my immune system.

How long have you been suffering with these recurring infections?
And how did you get referred to an infectious disease doctor?
Rosemary

I am so sorry to read that your uti’s got so bad. I’m glad to hear you have a team of doctors involved in your care. Please write soon and update us on how you are doing. I have the same question that Rosemary has. How did you get referred to an infectious disease specialist? Thanks for posting. Hopefully we can all help each other.

@mpeters,, It is good to hear from you. Last time we talked, you were in the midst of deciding how to manage until your April appointment. Have you learned anything that has been helpful? How are you doing?
Rosemary

No new uti’s, thankfully, but I do often feel some heat in that area so perhaps it is still there. Thanks for asking and I will post again after my visit with the specialist at Mayo on April 25.

I have been taking d-mannose 500mg powder for 2 years for my urinary track infections and it has done well. Except recently I had a infection which I went to the ER for. I am wondering if my system is now immune to d-mannose and I need something stronger? Anyone has suggestions. D-mannose also comes in capsile form should I switch is there now something more effective?

Welcome back, @safetyshield!
You may notice that I moved your discussion and combined it with this existing discussion on urinary tract infections. I did this as I thought it might be beneficial for you to connect with a few members may have more insights to share.

I'm tagging @pizon @kareniowa @bearylynn @ksey @jmaa and @predictable – you may have connected with some of them, previously – to see if they could offer more information on D-mannose.
I also thought you might be interested in reading this 2017 article about, "Executive summary of the diagnosis and treatment of urinary tract infection…"
https://www.sciencedirect.com/science/article/pii/S2529993X17301120
@safetyshield, may I ask if you've talked to your urologist about the recent UTI?

I’ve been in the same situation with recurring UTIs for three years. Kidney stones were the cause of mine. Seven of them! Tell your Doctor that you demand a CatScan which will determine if you have stones and it may show something else

I will ask my doctor for a cat scan.thanks so much for the advice.are u in stage 3a?

@picster, I want to welcome you to Connect. Kidney stones were discovered in a cat scan for me, too. My last scan showed that they had passed (?) . I have had UTI's, a couple per year. I have not had any since March, I don't know if mine were related or not. I hope that is going to be my new normal!
picster, do you have any underlying kidney or bladder conditions that could be contributing to the stones?

So far I don't have any stones but from time to time I do have back pain..I am going to ask for the scan if I can get it without the deye.thanks again for you help..it makes me feel warm..and that IAM NOT alone!…