I am so sorry to read that your uti’s got so bad. I’m glad to hear you have a team of doctors involved in your care. Please write soon and update us on how you are doing. I have the same question that Rosemary has. How did you get referred to an infectious disease specialist? Thanks for posting. Hopefully we can all help each other.

@mpeters,, It is good to hear from you. Last time we talked, you were in the midst of deciding how to manage until your April appointment. Have you learned anything that has been helpful? How are you doing?
Rosemary

No new uti’s, thankfully, but I do often feel some heat in that area so perhaps it is still there. Thanks for asking and I will post again after my visit with the specialist at Mayo on April 25.

I have been taking d-mannose 500mg powder for 2 years for my urinary track infections and it has done well. Except recently I had a infection which I went to the ER for. I am wondering if my system is now immune to d-mannose and I need something stronger? Anyone has suggestions. D-mannose also comes in capsile form should I switch is there now something more effective?

Welcome back, @safetyshield!
You may notice that I moved your discussion and combined it with this existing discussion on urinary tract infections. I did this as I thought it might be beneficial for you to connect with a few members may have more insights to share.

I'm tagging @pizon @kareniowa @bearylynn @ksey @jmaa and @predictable – you may have connected with some of them, previously – to see if they could offer more information on D-mannose.
I also thought you might be interested in reading this 2017 article about, "Executive summary of the diagnosis and treatment of urinary tract infection…"
https://www.sciencedirect.com/science/article/pii/S2529993X17301120
@safetyshield, may I ask if you've talked to your urologist about the recent UTI?

I’ve been in the same situation with recurring UTIs for three years. Kidney stones were the cause of mine. Seven of them! Tell your Doctor that you demand a CatScan which will determine if you have stones and it may show something else

I will ask my doctor for a cat scan.thanks so much for the advice.are u in stage 3a?

@picster, I want to welcome you to Connect. Kidney stones were discovered in a cat scan for me, too. My last scan showed that they had passed (?) . I have had UTI's, a couple per year. I have not had any since March, I don't know if mine were related or not. I hope that is going to be my new normal!
picster, do you have any underlying kidney or bladder conditions that could be contributing to the stones?

So far I don't have any stones but from time to time I do have back pain..I am going to ask for the scan if I can get it without the deye.thanks again for you help..it makes me feel warm..and that IAM NOT alone!…

That's way too many in such a short period of time, are you a kidney transplant ? You should see a urologist or your nephrologist if your a transplant.

Have you found the answers to you issue

Always feeling bad. Blood work is great. My dr says I am fine. I do have Recurrent UTI s. But no real bad symptoms. So no meds are given. Just discusted and want to feel better

Hi @sandyhelman, welcome to Mayo Clinic Connect. Can you explain a bit more? Are you feeling generally in poor health? How do you manage the recurring urinary tract infections?

The dr does not give me antibiotics unless I bleed etc. which I don’t. Sex will bring it on. They won’t put me on a daily dose. About10 years ago I had a bladder prolapse and they put two mesh inside me to hold up the bladder
I have a little more prolapse. A rectacyle. No one seems to want to remove the mesh.

Thanks for explaining, Sandy.
Mayo Clinic offers these prevention tips https://www.mayoclinic.org/diseases-conditions/urinary-tract-infection/symptoms-causes/syc-20353447
– Drink plenty of liquids, especially water. Drinking water helps dilute your urine and ensures that you'll urinate more frequently — allowing bacteria to be flushed from your urinary tract before an infection can begin.
– Drink cranberry juice. Although studies are not conclusive that cranberry juice prevents UTIs, it is likely not harmful.
– Wipe from front to back. Doing so after urinating and after a bowel movement helps prevent bacteria in the anal region from spreading to the vagina and urethra.
– Empty your bladder soon after intercourse. Also, drink a full glass of water to help flush bacteria.
– Avoid potentially irritating feminine products. Using deodorant sprays or other feminine products, such as douches and powders, in the genital area can irritate the urethra.
– Change your birth control method. Diaphragms, or unlubricated or spermicide-treated condoms, can all contribute to bacterial growth.

You may also be interested in these discussions:
– Bladder lift surgery (Prolapse repair) https://connect.mayoclinic.org/discussion/mrs/
– recurrent bladder infections after prolapse surgery https://connect.mayoclinic.org/discussion/recurrent-bladder-infections-after-prolapse-surgery/