Reclast side effects

Wow! Thanks everybody for your comments. I had the same response from my doctor, "It's not the Reclast. Go see your primary care doc." My primary care doc just gives me a blank stare. How can you get help when no doctor will at least entertain the thought that it might be the Reclast!! I'm going to another endocrinologist on Monday. I'll see how that goes. In the meantime I'm going to try walking, a heating pad and chlorophyll. And, yes, where do you find chlorophyll? Does it require a prescription?

I had the same side effects. Several times I thought I was going to die. I hurt all over as well, but never got dizzy. I am functional,but I know I would be better had I not had Reclast!
I ordered chlorophyll. It is mint flavored. Mix with water and drink. It cleans cells and works on whole body. I use a heating pad often. I had my infusion about three years ago. It was a poison to my body and I will never take it again.

Wow! Thanks everybody for your comments. I had the same response from my doctor, "It's not the Reclast. Go see your primary care doc." My primary care doc just gives me a blank stare. How can you get help when no doctor will at least entertain the thought that it might be the Reclast!! I'm going to another endocrinologist on Monday. I'll see how that goes. In the meantime I'm going to try walking, a heating pad and chlorophyll. And, yes, where do you find chlorophyll? Does it require a prescription?

I had a Reclast infusion in 2018 with no side effects. I had a second infusion on Thursday, August 1 of this year, one month after completing a year of Evenity. That night, I began to feel distressed. By 4:00am, I had a temperature of 101. I continued to have spiking temperatures as high as 103.2 despite taking Tylenol. I was so weak I could barely make it to the bathroom. Couldn’t eat or drink, slept when I could. By Sunday afternoon, I agreed to go to the ED. I was admitted with fever, tachycardia to 120, low BP (85/54). Labs showed anemia, hypokalemia and lowered electrolytes. Other symptoms included episodes of profuse sweating, coughing that was painful to the lungs, labored breathing (O2 at 85) and blurred vision. The docs thought the Reclast was a red herring and that I had a viral upper respiratory infection, due to having a chronic lung condition. I was treated with two IV antibiotics, IV fluids, and Tylenol and discharged with a 14-day prescription of oral antibiotics the following Wednesday. Today, 16 days after the infusion, my temperature is almost normal at 97.2 (by baseline is 96.8). My body is relaxed and I’m enjoying food again. Still tire easily, am fatigued going upstairs and sitting to floss. Because I developed anemia, I Googled Reclast and anemia and found a very long list of side effects. I identified 22. I have no doubt that this acute event was caused by the Reclast.

So what I’m wondering @heartfelt, did the Reclast still prevent bone loss for you, even though you had an adverse reaction? Also wondering what you and your docs decided on treatmentwise since then.

Regarding resolution, I’m drinking a lot of electrolyte water, and will go to the gym for paced treadmill walking and easy leg press to begin to gain strength. Thank you all for sharing and thanks @dingus for posting the question.

Wow! Thanks everybody for your comments. I had the same response from my doctor, "It's not the Reclast. Go see your primary care doc." My primary care doc just gives me a blank stare. How can you get help when no doctor will at least entertain the thought that it might be the Reclast!! I'm going to another endocrinologist on Monday. I'll see how that goes. In the meantime I'm going to try walking, a heating pad and chlorophyll. And, yes, where do you find chlorophyll? Does it require a prescription?

I called the FDA in Atlanta on the correct line for help. I got a recording. There is no help and if you find any please let me know. No doctor will say it was Reclast. They make money for our taking the infusion.
I eat really well, and cut out specific foods that are bad for bones. I walk and lift weights. I take supplements and I do have chlorophyll that is mixed with water and I drink that. There is a lot of information out there about osteoporosis. There are online groups and special exercise coaches just for people with low bone mass. Check them out. You will find more information online than from any doctor.

This appears in the medication guide for Evenity and Prolia. I have not checked other drugs.

"Call your healthcare provider for medical advice about side effects. You may report side effects to FDA at 1-800-FDA1088."

Please, please do call FDA and report them.

Why should I not call the FDA? The medicine is poison. I asked my Endocrinologist if a 300 lb person gets the same mgs. in their bag as a 115 lb. person and she said yes. Does that make sense to you?

I had a Reclast infusion in 2018 with no side effects. I had a second infusion on Thursday, August 1 of this year, one month after completing a year of Evenity. That night, I began to feel distressed. By 4:00am, I had a temperature of 101. I continued to have spiking temperatures as high as 103.2 despite taking Tylenol. I was so weak I could barely make it to the bathroom. Couldn’t eat or drink, slept when I could. By Sunday afternoon, I agreed to go to the ED. I was admitted with fever, tachycardia to 120, low BP (85/54). Labs showed anemia, hypokalemia and lowered electrolytes. Other symptoms included episodes of profuse sweating, coughing that was painful to the lungs, labored breathing (O2 at 85) and blurred vision. The docs thought the Reclast was a red herring and that I had a viral upper respiratory infection, due to having a chronic lung condition. I was treated with two IV antibiotics, IV fluids, and Tylenol and discharged with a 14-day prescription of oral antibiotics the following Wednesday. Today, 16 days after the infusion, my temperature is almost normal at 97.2 (by baseline is 96.8). My body is relaxed and I’m enjoying food again. Still tire easily, am fatigued going upstairs and sitting to floss. Because I developed anemia, I Googled Reclast and anemia and found a very long list of side effects. I identified 22. I have no doubt that this acute event was caused by the Reclast.

So what I’m wondering @heartfelt, did the Reclast still prevent bone loss for you, even though you had an adverse reaction? Also wondering what you and your docs decided on treatmentwise since then.

Regarding resolution, I’m drinking a lot of electrolyte water, and will go to the gym for paced treadmill walking and easy leg press to begin to gain strength. Thank you all for sharing and thanks @dingus for posting the question.