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Does anyone have a solution to help manage Reclast side effects?
Osteoporosis & Bone Health | Last Active: 4 days ago | Replies (795)Comment receiving replies
I had a Reclast infusion in 2018 with no side effects. I had a second infusion on Thursday, August 1 of this year, one month after completing a year of Evenity. That night, I began to feel distressed. By 4:00am, I had a temperature of 101. I continued to have spiking temperatures as high as 103.2 despite taking Tylenol. I was so weak I could barely make it to the bathroom. Couldn’t eat or drink, slept when I could. By Sunday afternoon, I agreed to go to the ED. I was admitted with fever, tachycardia to 120, low BP (85/54). Labs showed anemia, hypokalemia and lowered electrolytes. Other symptoms included episodes of profuse sweating, coughing that was painful to the lungs, labored breathing (O2 at 85) and blurred vision. The docs thought the Reclast was a red herring and that I had a viral upper respiratory infection, due to having a chronic lung condition. I was treated with two IV antibiotics, IV fluids, and Tylenol and discharged with a 14-day prescription of oral antibiotics the following Wednesday. Today, 16 days after the infusion, my temperature is almost normal at 97.2 (by baseline is 96.8). My body is relaxed and I’m enjoying food again. Still tire easily, am fatigued going upstairs and sitting to floss. Because I developed anemia, I Googled Reclast and anemia and found a very long list of side effects. I identified 22. I have no doubt that this acute event was caused by the Reclast.
So what I’m wondering @heartfelt, did the Reclast still prevent bone loss for you, even though you had an adverse reaction? Also wondering what you and your docs decided on treatmentwise since then.
Regarding resolution, I’m drinking a lot of electrolyte water, and will go to the gym for paced treadmill walking and easy leg press to begin to gain strength. Thank you all for sharing and thanks @dingus for posting the question.
Replies to "I had a Reclast infusion in 2018 with no side effects. I had a second infusion..."
my reply disappeared before I finished but won’t repeat will just say— couldn’t sleep night after Reclast infusion, heart beat at 137,,sweating, miserable, Next afternoon went to ED — heart still in tachycardia , now in AFib
also It was terrifying. Got hydration AV and they did all kinds of tests. Sent me home after afib calmed. PA in endo office says never heard of Reclast causing that
@roisin11 hi did you have a preexisting condition of lung problems? Before reckast iv.? Did the dr check all your electrolytes BEFORE GOING ON RECLAST. HE SHOUKD HAVE ? GLAD YOUR BETTER. I HAVE COPD IM SCARED TO DEATH TO TAKE THIS DRUG IN 4 MONTHS. IM GOING TO MAKE SURE I HAVE A COMPLETE ELECTROLYTE PANEL BEFORE I GET THIS. WAS TOLD TO HAVE NO LOW VIT D OR CALCIUM OR IRON, PHOSPHOROUS, POTASSIUM, MAGNESIUM, SODIUM ETC. DR SHOULD CHECK CREATINE AND CREATINE CLEARANCE AND EGFR FIR KIDNEY FUNCTION AND I HAVE HAD LIVER PROBLEMS. I NEED THEM ENZYMES CHECKED BEFORE TO? GLAD YOUR OK NOW.
I had the same bad reaction to it. I just had my 1st infusion feb 25th. I woke up yesterday with a very high fever, tylenol barely touched it. I had to basically sweat it out. I have bad bad bone pains all over my body. Even my jaw bone hurts 🙁
I got it due to having a very rare bone disease that has no cure. Just can mange symptoms with Bisphosphonates. Right now there is only 2 for my rare disease. Im nervous to get it done again if my body reacted this bad to it. I been staying hydrated so i dont get it. I even threw up in middle of the night, the night of my infusion. Dr said if i have bone pain a few more days to let her know
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My PCP doesn't do anything. He didn't diagnose. However, since my experience with Reclast, I have not wanted another. I have read and studied and my choice right now is to eat really well, take specific supplements, walk, and I have a weight trainer now.
My second DEXA showed improvement in bone and blood tests showed I wasn't losing calcium in my urine.