Reclast infusion side effects?

Sorry to hear this! I too have had issues since having my Reclast infusion! And still experiencing it 11 months later!
There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx?format=PDF&id=4676
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.

I’ve been in here a million times describing the horrible side effects I’ve had from Reclast. It’s been six months and still having problems.
I did see my Endocrinologist and all she would say is how sorry she was that this happened to me and that this is a very strong drug and she would not have me do it again. As if I would even consider it!
So she did not specifically admit this drug caused me all these issues. But she didn’t deny it either.

The document that you have a link to describes patients with cancer metases to bone side effects. Don't know if it makes any difference.

If you feel that you are suffering from these medications long term to report that to FDA.
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.

There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx?format=PDF&id=4676
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.

I have already reported my experience to the FDA. If more of us who have had these awful experiences file a report, hopefully they will listen.

What side effects have you had? I had the infusion in my left arm and after 4 months I started having pain in my left arm. Unable to move arm high or backwards to put on coat. I have been taking Motrin which I think has helped. I have put ice pack on it for a while a few days.
I am sorry you are going thru this, like myself. We trust our doctors that these meds will work for us and not against us.

I had a severe autoimmune response to this drug. It started out with the quote normal flu like symptoms and then 48 hrs after I fainted and ended up having to call myself an ambulance. Thank God I woke up and was able to do so
My. Potassium Levi’s dropped so low ( hence the losing consciousness) I had to be treated twice. Severe esophagitis, acute Colitis
Couldn’t eat so I lost 10 pounds in two weeks. I only weighed 109 to begin with
I was unable to work for 6 weeks. My heart rate is all over the place still and I have been lightheaded for almost 7 months. What a nightmare.
And I know it was the Reclast because I was perfectly fine up until that shot.
Luckily no muscle pain.
I’m sorry you are suffering
I’m so angry for all of us

I'm definitely not a doctor, but have had a frozen shoulder (completely unrelated to osteoporosis). It's very painful and seriously impacts range of motion. Could that be the cause of your pain/immobility in your left arm? In fact, I had frozen shoulders in both shoulders, though at different times.

After unsuccessful physical therapy (PT) on my right shoulder, I had a "surgical release". That is a bit of a misnomer. There is no cutting involved. The orthopedic surgeon manipulated my shoulder under anestheia to release (rip) the adhesions. I woke up with a pain pump that remained for some period of time (3 days? It was a long time ago, so I don't remember exactly.) I then returned for additional PT.

Sometime later my left shoulder froze. Between the two events I had read a research article that said there was no significant difference in outcome between patients who chose a surgical release and those who simply waited for the shoulder to unfreeze. (Sorry, again, it was a long time ago, so I don't have the reference.) I am right handed, so waiting for the left shoulder to simply unfreeze was painful, but didn't interfere as much with my daily activities.

I experienced a severe autoimmune reaction to Reclast. My osteoporosis primarily is in my hips, and my endocrinologist prescribed 12 months of Evenity injections, which I tolerated without any issues. After completing the 12 months, I had another bone density test, which showed significant improvement. My endocrinologist was very pleased with the results and recommended that I receive two Reclast IV infusions, spaced 12 months apart.

I had my first infusion 7 weeks ago, and within 48 hours, I became completely stiff and immobile from my skull down to my feet, with intense pain. My doctor explained that the Reclast had attacked my musculoskeletal system, something she described as “unprecedented.” I was prescribed a 5-day course of Prednisone, but once I finished it, I relapsed completely. Another 5-day course was given, but she then advised me to “tough it out” with Diclofenac since Prednisone is counterproductive for bone health.

The Diclofenac did not help and caused severe stomach issues, so she switched me to Celebrex. By the fourth week, I was 100% back to normal from my shoulders to my feet, but the stiffness and pain in my neck and the back of my head (skull) remain relentless. Every attempt to taper off Celebrex results in such severe stiffness that I’m unable to function. In the past week (6th week) I've developed Vertigo.

Weighing only 100 pounds, I’m worried I might have been given the wrong dosage. I’m physically and emotionally exhausted from the unrelenting stiffness and pain. I’ve decided to consult a Neurologist specializing in neuromuscular disorders, as I’m convinced Reclast has caused lasting damage to my cervical spine. This has been an absolute nightmare, and I see no end in sight. I plan to report my case to the FDA.

miriammoore, it is so helpful that you are posting and reporting. I'm sorry you are caught in this nightmare. There are scattered single patient reports like this one https://pmc.ncbi.nlm.nih.gov/articles/PMC10404464/ There is another one where the woman was hospitalized and given IV steroids. She recovered. The half life of the drug is something like 140 hours, but it attaches to the bone and releases slowly over the year. I'm hoping but also thinking that the damage to your cervical spine isn't permanent. IV steroids are considered stronger than oral tapers. The trouble is the impact of steroids on bones. And then it is so hard to continue to protect bones when it aches too much to even move them.
I would also agree that at 100lbs the dose is probably too high. The actually know that 4mg is as effective as 5mg in the osteoporosis setting, yet the drug is provided in 5mg vials. Since it is primarily your neck, someone might be willing to administer local steroid injections. Pain is exhausting. I do think there is an end to this horrible reaction. The sooner the better. I'm glad you are seeing the neurologist