Reclast infusion long term side effects

@serahjane I'm curious how you are feeling now and whether the weakness in your legs and the bone pain have resolved since you posted this in February. I had my first Reclast injection in February and I've never felt worse. Like you, my legs feel so weak and I have severe bone pain. I've also developed sciatica which may be because my spine is so compressed. I have a T score of -4.1 in my spine and was talked into Reclast after failing both Prolia and Fosomax. Severe bone pain with Prolia as well but was told it was rare with Reclast. I am done with these injections. I was feeling fine until I started these treatments. I hiked, biked, rode my horse and was good until I was told my T scores were so low I needed a "fix." I am 66 and I've never had a fracture. My life has been hell ever since the Prolia and Reclast injections. I keep praying these side effects will wear off at some point. I hope yours have!

@carole59 not to sound discouraging but it has been a little over two years for me and still have symptoms. Started in my shoulders and left foot; they continue to feel extremely lame and weak. Then it went into my hips, groin and vision areas. I am 69 years old and had none of these symptoms before the damn infusion; retirement was going to be fun they say. Well, I was talked into this infusion but Never again. I go in September to review my new scores, not sure why because I’ll never have another infusion. Dr says my symptoms are not from the infusion yet Rheumatology and neurologist find no reason for the on going discomfort. My personal opinion is that the FDA should band this medication unless it is shared All the potential side effects before administration of the medication. Once one receives the medication there are no quick ways ( no treatment that I’ve read) to reverse the side effects .

@carole59 not to sound discouraging but it has been a little over two years for me and still have symptoms. Started in my shoulders and left foot; they continue to feel extremely lame and weak. Then it went into my hips, groin and vision areas. I am 69 years old and had none of these symptoms before the damn infusion; retirement was going to be fun they say. Well, I was talked into this infusion but Never again. I go in September to review my new scores, not sure why because I’ll never have another infusion. Dr says my symptoms are not from the infusion yet Rheumatology and neurologist find no reason for the on going discomfort. My personal opinion is that the FDA should band this medication unless it is shared All the potential side effects before administration of the medication. Once one receives the medication there are no quick ways ( no treatment that I’ve read) to reverse the side effects .

@carole59 not to sound discouraging but it has been a little over two years for me and still have symptoms. Started in my shoulders and left foot; they continue to feel extremely lame and weak. Then it went into my hips, groin and vision areas. I am 69 years old and had none of these symptoms before the damn infusion; retirement was going to be fun they say. Well, I was talked into this infusion but Never again. I go in September to review my new scores, not sure why because I’ll never have another infusion. Dr says my symptoms are not from the infusion yet Rheumatology and neurologist find no reason for the on going discomfort. My personal opinion is that the FDA should band this medication unless it is shared All the potential side effects before administration of the medication. Once one receives the medication there are no quick ways ( no treatment that I’ve read) to reverse the side effects .

@dannyandebbie
Im sorry you’re having to deal with these continuing discomfort.
Same here, after 1 year+ I’m still struggling with pain on my rib cage and stomach.
This drug should be banned and we compensated for the trauma and troubles.

@dannyandebbie
That definitely is discouraging and I am so sorry you continue to deal with those side effects after all this time, although I guess it's comforting to know this is not all in my head. I am with you 100% on Never Again! I am going to try to get a referral to a pain management specialist. I initially had so much pain in my hip I thought my hip replacement had failed, but imaging showed it was fine. The most upsetting thing is that I did this to myself. I had terrible DEXA numbers, but I felt good and I think my active lifestyle was the reason that despite those terrible numbers, I never had a fracture. But the endocronologist insisted I needed to do something and painted such a bleak picture of my future that I agreed. Now I'm so weak and in so much pain I can't do much of anything, which obviously is not helpful. Complete and total insanity!

@dannyandebbie
What drug(s) did you start with before Reclast/Prolia …Forteo…Tymlos?
If you never had this pain before why are the doctors denying that it’s ?
What improvements if any did you have?

@dannyandebbie
That definitely is discouraging and I am so sorry you continue to deal with those side effects after all this time, although I guess it's comforting to know this is not all in my head. I am with you 100% on Never Again! I am going to try to get a referral to a pain management specialist. I initially had so much pain in my hip I thought my hip replacement had failed, but imaging showed it was fine. The most upsetting thing is that I did this to myself. I had terrible DEXA numbers, but I felt good and I think my active lifestyle was the reason that despite those terrible numbers, I never had a fracture. But the endocronologist insisted I needed to do something and painted such a bleak picture of my future that I agreed. Now I'm so weak and in so much pain I can't do much of anything, which obviously is not helpful. Complete and total insanity!

@carole59 not to sound discouraging but it has been a little over two years for me and still have symptoms. Started in my shoulders and left foot; they continue to feel extremely lame and weak. Then it went into my hips, groin and vision areas. I am 69 years old and had none of these symptoms before the damn infusion; retirement was going to be fun they say. Well, I was talked into this infusion but Never again. I go in September to review my new scores, not sure why because I’ll never have another infusion. Dr says my symptoms are not from the infusion yet Rheumatology and neurologist find no reason for the on going discomfort. My personal opinion is that the FDA should band this medication unless it is shared All the potential side effects before administration of the medication. Once one receives the medication there are no quick ways ( no treatment that I’ve read) to reverse the side effects .

@dannyandebbie
What drug(s) did you start with before Reclast/Prolia …Forteo…Tymlos?
If you never had this pain before why are the doctors denying that it’s ?
What improvements if any did you have?