Recently diagnosed with osteoporosis and I am terrified
Hi, I was diagnosed with severe osteoporosis in my spine and hips about a month ago and I am now living in fear. I feel like I'm made of glass and I'm afraid to move. I walk around stiffly, afraid to bend, afraid to twist, stepping carefully to avoid falling, scared to drive or ride in a car in case I get in an accident. Note that I am actually doing everything I need to do (taking care of myself and my house, working full time, going out with friends) but I am doing it all in a constant state of anxiety. Every so often I go down a very dark path, mentally, and decide it would be better to just end it before it gets worse. I have been able to talk myself out of it every time, thankfully, by thinking about how sad my family would be without me. Will I be able to get past this and live my life without fear again? I'm 62 and figure I have another 20+ years on this earth. I have been looking forward to spending my final years peacefully, enjoying life but at this rate, that isn't going to happen. Any positive stories or encouragement would be much appreciated!
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Learning the importance of the hip hinge movement has been very helpful for me. Stops me from bending forward from the waist. Maybe you already have done so too
Good luck. I agree trying brick house bones snd Melioguide too
bendammc, yes. The most common choice after Prolia is Reclast, if you doctor agrees. They have the power of the pen. Zometa comes in lower doses of the same bisphosphonate as Reclast.
@oopsiedaisy once you start Prolia it’s pretty hard to stop safely.
more clearly (sorry) Prolia is the most common choice of medications after Evenity. Reclast is the second most common choice made. Common "wisdom" is that Evenity should be followed by an antiresorptive because Evenity is called an anabolic, though it is known to be mixed being more antiresorptive at the second half of a year's treatment. So a patient could take any of the bisphosphonates that they can tolerate. Many of our doctors are sold on the Evenity to Prolia sequence. Amgen sells the sequence.
Doctors aren't always receptive to our preferences. If a patient finds out when they finished evenity that their doctor isn't giving them a choice, it is a great scramble to find a new and interactive physician who might prescribe their choice in the short timeframe between medications.
My own doctor, who may be the best doctor on the planet, was absolute that I would have to take Reclast for two years after Forteo. Before I even received the pens, I was looking for a doctor to switch over to at the end of the two years. I consulted with several, found two likely. six months before what would have been my last Forteo injection, I scheduled a follow up with both of them. While I have complete respect for doctors who have opinions different from mine, I even like to consider those opinions carefully, this is how Evenity can become part of the Prolia trap.
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1 Reaction@barbyb50 it yourself some ice cleats for your shoes/boots. I like stabilicers. Some folks like Yaktrax. There are lots of brands. I wear them whenever there is ice around! They take a lot of the stress out of winter!
Please look up Brickhouse Bones (Dr Linda Moore) She has excellent advice, and provides tons of free YouTube videos on exercises, balancing and diet for osteoporosis. She also has a facebook page. I am 65 , choosing not to take medication. Her videos have made me feel stronger and safe in the activities I do
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2 ReactionsYou should ask your Dr to do blood tests to your parathyroid, calcium and thyroid levels to make sure those aren't contributing to your osteoporosis.
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2 Reactions@daisy17 hi , I’m new to OP, albeit fairly low level….as a CRC patient currently cancer-free as far as I know from recent tests, I really don’t want to take most of the harsh meds, at least for now….so am trying New Chapter because it’s plant-based and 3rd party tested and—important for me—less magnesium (than AlgaeCal) that can cause loose stools….still researching, but my cancer team seems okay with New Chapter for now…some people take separate pills for separate elements rather than a combo supplement…
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1 Reaction@nycmusic PS I have a PT with background in training OP patients, very helpful.
@daisy17 hi, it may be possible that my cancer therapy accelerated my osteoporosis…it did give me some temporary mild arthritis, which I exercised away, thank heaven ! Cure one thing, maybe cause another..not a bad trade-off for me though.