Recently diagnosed with osteoporosis and I am terrified
Hi, I was diagnosed with severe osteoporosis in my spine and hips about a month ago and I am now living in fear. I feel like I'm made of glass and I'm afraid to move. I walk around stiffly, afraid to bend, afraid to twist, stepping carefully to avoid falling, scared to drive or ride in a car in case I get in an accident. Note that I am actually doing everything I need to do (taking care of myself and my house, working full time, going out with friends) but I am doing it all in a constant state of anxiety. Every so often I go down a very dark path, mentally, and decide it would be better to just end it before it gets worse. I have been able to talk myself out of it every time, thankfully, by thinking about how sad my family would be without me. Will I be able to get past this and live my life without fear again? I'm 62 and figure I have another 20+ years on this earth. I have been looking forward to spending my final years peacefully, enjoying life but at this rate, that isn't going to happen. Any positive stories or encouragement would be much appreciated!
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@gravity3 I will have a conversation with my endocrinologist in April but her initial suggestion was Prolia. I told her I was uncomfortable with that so she suggested Reclast as another option. I’ve since learned that two shots of Prolia followed by Reclast are sometimes used after Evenity and I might be willing to do that.
I will not go on Prolia for the rest of my life at this point. I am 64 and anything could happen in terms of being able get Prolia regularly for the next 20 years.
Thank you for asking.
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2 ReactionsOnce you learn how to move and practice it will become natural. I had to modify my yoga practice and train myself not to bend forward with a rounded back. Now my movements are second nature. Check out Margaret Martin’s “Melio Guide” online. She is a physiotherapist who specializes in osteoporosis and teaches people exercises and how to move safely while building or maintaining bone mass. I’ll add a https://melioguide.com/
You aren’t alone and there are many good resources in this comment thread to help you get up to speed 0n how to care for yourself.
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4 Reactions@denisejones00
I don’t believe that is true. If you could reverse osteoporosis the manufacturer of AlgaeCalCalcium would be a billionaire ten time over. No doctor I know agrees with you.
@drterri
The trainer has experience with older people, and has been open to learning more!
Winter scares me too! We are in St. Louis, and have our share of ice and snow! It is terrifying!
Always glad to answer and share experiences!
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1 Reaction@oopsiedaisy this is so helpful; thank you so much!
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1 Reaction@z3french9 thank you! I got on the mailing list for Melio Guide!
Can you provide your DEXA score?
Check out New Chapter Bone Strength calcium supplements, which is sourced from algae but I have found it to be cheaper than AlgaeCal (on Amazon).
In addition, I use AlgaeCal Collagen powder with "Fortibone", which is supposed to help bones.
I am 75 and also have severe osteoporosis, worse in my spine. I am also fearful, but so far have not fractured. I am careful with my movements, to keep my spine straight and not twist. I can't take two of the bone building drugs (Forteo and Tymlos) due to parathyroid issues. That leaves Evenity and bisphosphonates. At this time, I have decided not to take either of these medications, due to side effects and absolute risk of bisphosphonates. (Evenity must be followed by a bisphosphonate.).
Go to Facebook and check out Brick House Bones for info on osteoporosis and exercises.
Good luck.
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2 ReactionsI suggest finding a physical therapist who specializes in osteoporosis. They can give you exercises to strengthen your bones and ways to improve balance and prevent falls.
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2 Reactions@gently would reclast not also be an option?