Recently diagnosed with osteoporosis and I am terrified

@normahorn thank you so much for your reply. I am using the word "severe" because that's the word my general physician used when she called me to give me the results of my Dexa scan. The actual numbers are available to me but I'm too scared to look. If it's really bad, I will panic.
I broke my wrist last summer (before I was diagnosed with osteoporosis) but that was a severe fall (I was running as fast as I possibly could to get home before a rainstorm, tripped over an uneven part of the sidewalk, and flew headlong to the ground ) and I really don't think "weak bones" had anything to do with it. I think anyone's wrist would have broken in those circumstances. It healed nicely.

@gently I haven't started the treatment yet, but I assume my endocrinologist will discuss the follow up with me when the time comes.

drterri, it's just that drug sequencing for Evenity can put you on a path to Prolia. It is significant in agreeing to Evenity to you know the direction. While Evenity is amazing in the amount of bone it adds, it also comes back off in a year after treatment without a follow-up medication. If you have messaging service with your physician, you might ask so that you would understand their thinking. If it is to be Prolia, you'll want to know as much as you can about Prolia and as much as you can about Evenity, of course. You might want to look at the side effects and adverse events with Evenity. You might rather just trust your endocrinologist.

As someone on evenity you have a choice as to which drug will follow the Evenity. Taking Evenity does not automatically lead to Prolia.

@drterri Ah, Terri - I share your dread of snow and ice, mainly because of my several artificial and repaired joints - fortunately I am able to go South for part of the cold. But when I am home, I rely on Yak Traks, cleats that strap onto my shoes or boots, to help keep me safe. My friend, on the other hand "mall walks" with a group in the early mornings. Adapt, adapt, adapt.

As for running versus walking, I resigned myself to walking at 54 when I had my first hip replacement. The doctor told me "Sure, you can keep running, but you'll be back for revisions in 10 years. If you walk or bike, these should last you 20-25 years." And now, at 74, I often use one or two hiking poles on uneven ground just to be sure of my footing.

@drterri

My new endocrinologist Is probably upset with me but I don't care. When she saw the results of my last DEXA, she messaged that I have severe osteoporosis and I should try to get an earlier follow-up appointment than the one scheduled. It was my reply that she probably did not like. I am not ready to go into the "sky is falling" mode as the results are similar to those of 3 years ago, DEXA most is skewed to treating the condition as worse than it is for fine-boned individuals, and I only had a hair-line fracture in my arm after a fall where I landed on my right side (including the hip with a bad femoral neck score.) I do need to pursue treatment but I am not going into panic mode.

@marialyce
Prolia, despite its negatives, increases bone density after Evenity. Because of this and because of intense marketing by Amgen for this sequence, "Evenity can put you on a path to Prolia." Some patients are recommended Reclast. A very few are opting to take Tymlos (and successfuly). Some (few) take a second year of Evenity.
Are you on Evenity and being given a choice.

Please try not to go to that dark place. Many of us here have been dealing with this diagnosis for years and quite a few of us are living good lives even after experiencing an osteoporotic fracture. I am one of them - two years ago I had a vertebral compression fracture even though my T-score wasn't that bad. I went to the same place you did, convinced that I would now start fracturing regularly since I'd been on Fosamax for five years and even that wasn't enough to prevent me from fracturing.

I learned so much from the good people here and from other sources. I have not fractured since and am back to doing everything I used to do before the fracture. I walk, I run, I lift weights, I ride a bicycle, all without fear. I see a great endocrinologist now and have been on anabolic medication for over a year. I am on Evenity right now and will finish up a year of that in April.

I feel great and am no longer scared about what the future might hold. I know this can be scary but I take comfort in the fact that I am doing everything I can to prevent another fracture and that there are lots of people who go on to live a full life.

Wishing you the best and hoping that as you gain more knowledge about this condition you will regain your confidence.

It is scary at first. This is my second go round with osteoporosis. I did forteo the first time followed by a round of reclast. Then I went 15 years with vitamin d and mg because reclast was a no go for me due to side effects and I refused Prolia. This time it’s Prolia. One thing that is true for me, the more careful I try to be the more accident prone I am! I had several fractures before Forteo. Since then I have had a few falls with no broken bones. I believe that is all God!

@oopsiedaisy

That is great. What will be next for you after Evenity?