Just diagnosed with Renal Cell Carcinoma (RCC): Treatment options?

Posted by JadeUnicorn26 @maryellen26, Jan 2 6:52pm

I was just diagnosed yesterday with RCC. I'm devastated. My head is spinning. I'm waiting for my Dr to give me referrals to kidney RCC specialist so I can find out what my options are.
I've been looking at surgery to remove my whole kidney, surgery to remove just the tumor , cold ablation and heat ablation, laparoscopic surgery etc .

Interested in more discussions like this? Go to the Kidney Cancer Support Group.

Profile picture for Colleen Young, Connect Director @colleenyoung

@iwitlin33186, I assume the date of October was suggested to accommodate your work and travel schedule. Is that correct? Were you able to discuss your concerns about waiting until October with your urologist?

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@colleenyoung, yes, the doctor said it would not be a problem. I went to another doctor who felt the same because of the size and prior CT scan showed little growth according to the written radiology report , But the last doctor no longer does surgery , and I made a third appointment with another physician for more input.
I brought my CD of the MRI to the last doctor (#2) but said he wasn’t able to view it- which defeats the whole point.

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Profile picture for iwitlin33186 @iwitlin33186

My recent MRI showed renal cell 2.9cm also on out side wall. My physician says I should have partial kidney removal and said he worries that ablation doesn't always work. I am concerned that he told me I could wait until
October for surgery because of work and travel. He feels it is slow growing.
The doctor knows more than I do, but my family says take care of this immediately.

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@iwitlin33186, I assume the date of October was suggested to accommodate your work and travel schedule. Is that correct? Were you able to discuss your concerns about waiting until October with your urologist?

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Profile picture for iwitlin33186 @iwitlin33186

@maryellen26
Thank You, it was the urologist

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@iwitlin33186 maybe get a second opinion from another oncologist?

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Profile picture for JadeUnicorn26 @maryellen26

@iwitlin33186 did your oncologist suggest this or your regular Dr?
Please see an oncologist for determining whether surgery or ablation is an option

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@maryellen26
Thank You, it was the urologist

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Profile picture for iwitlin33186 @iwitlin33186

My recent MRI showed renal cell 2.9cm also on out side wall. My physician says I should have partial kidney removal and said he worries that ablation doesn't always work. I am concerned that he told me I could wait until
October for surgery because of work and travel. He feels it is slow growing.
The doctor knows more than I do, but my family says take care of this immediately.

Jump to this post

@iwitlin33186 did your oncologist suggest this or your regular Dr?
Please see an oncologist for determining whether surgery or ablation is an option

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My recent MRI showed renal cell 2.9cm also on out side wall. My physician says I should have partial kidney removal and said he worries that ablation doesn't always work. I am concerned that he told me I could wait until
October for surgery because of work and travel. He feels it is slow growing.
The doctor knows more than I do, but my family says take care of this immediately.

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Saw my oncologist today to go over last months CT scan.
He said the tumor is really small - half an inch and on the outside wall of my kidney and he likes where it is and the size.
Wants me to do another CT scan with contrast dye in December to see if it grows from May to December at all. If it doesn't grow then my choice is to either do ablation or leave it and just do CT scans every year to make sure it isnt growing. He said it's a slow growing tumor so the voice is mine to make. The ablation will take an hour in the hospital same day release if I go that route.
For now I'm going to just monitor it going forward if it doesn't grow when I have the Dec scan.
If it does grow in the next six months then I'll do the ablation next year sometime.

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I can tell you that I had kidney cancer in 1964 and had my kidney removed. My son was diagnosed with it at age 53 and also had his kidney removed. He went onto Keytruds and finished his course without side effects,which was a blessing. My personal philosophy is when in doubt cutbit out. You can decide on options I didn’t have back then. But, for us the kidney removal has eliminated cells going elsewhere and living with one kidney is fine! I had 2 children and my kidney grew to adjust. I hope this helps you and good luck with your decision and outcome! Do not delay treatment, however!

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Today had my CT scan with and without contrast.

Diagnosis from that this morning is papillary rcc and the CT scan found two additional subcentimeter left renal cortical cysts.
June 8 I see my oncologist to go over the results and plan what I do next .

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Profile picture for ronsale @ronsale

@ronsale that may be the reason. My husband’s is 4.3cm. Thank you for letting me know.

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