Just diagnosed with Renal Cell Carcinoma (RCC): Treatment options?
I was just diagnosed yesterday with RCC. I'm devastated. My head is spinning. I'm waiting for my Dr to give me referrals to kidney RCC specialist so I can find out what my options are.
I've been looking at surgery to remove my whole kidney, surgery to remove just the tumor , cold ablation and heat ablation, laparoscopic surgery etc .
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I was diagnosed with prcc right kidney in 2023. Had successful partial nephrectomy. Also present in left kidney but stable.
Unrelated rectal cancer diagnosed in 2025. Treatment completed and surgery will be this month for that. Post scan for rectal cancer showed growth of price in left kidney. Surgery for that will be completed along with rectal cancer.
In short, the kidney cancer was easier to deal with than rectal cancer.
Yes, I met with surgeon a few days ago. He is still reluctant to operate. He continues to say the MS will kill me before kidney cancer. He briefly discussed the risk of bleeding out with kidney surgery. He is leaving decision up to me and booked our next appointment for mid-summer '26.
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1 Reaction@donnachaidh, have you met with your oncologist to discuss treatment options? How are you doing?
@vickipm
That would be concerning. The surgeon said this MS patient didn't wake up for 3 days. Her vitals were fine and then she woke up day 3 good to go.
Two years ago I had a robot assisted partial nephrectomy on RIGHT kidney for PRCC grade 3. No problems. Currently just completed treatment for rectal cancer. Scan between my chemo and before my chemo radiation started showed a little surprise. Kidney tumor on left side grew, and will require surgery. I will have that done when my rectal surgery is done. 2 for 1!!
The kidneys surgery i did have was successfully on that right side and recovered well.
Hope all goes well.
@maryellen26 that is scary. Each time my husband goes under, it takes him longer to get come out from the fog.
@vickipm because the last time I was under anesthesia the nurses had a hard time waking me up ... So I'm afraid
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1 Reaction@donnachaidh prayers for you as you go forward. Not sure why the hesitation about removing the kidney. Many folks have told us they have survived well with one kidney. God bless.
Best wishes for your husband to continue to get better. You've been thru so much.
My kidney tumor was found last April when they performed a scan for an appendectomy. It's still in me. They did an mri a few weeks ago and in 7.5 months it has grown from 1.4 cm to 1.6 cm. I just want this thing out of me! The surgeon is reluctant to cut because I have MS and I'm in my 60's. I see him in a few weeks and hope we set an operation date. Not that long ago, they just routinely took the whole kidney. Wonder why that changed?
My husband was diagnosed with non invasive renal cancer in Feb 2023. We also fought the GP for more tests, ended up at an urologist who did find the cancer. We were referred to UTSW urology clinic, did months of trial laser therapy that worked and then didn't. Did six weeks of chemo using Jelmyto, even going of a cruise with a tube in his back. Three month check up and cancer was still there, getting more invasive, then two months to wait for the kidney to be removed and the cancer now was diagnosed malignant, but margins were good. Can't help but wonder had the offending kidney been removed, if all that could have been avoided. It's hard to decide when such procedures seem promising. We now have appointments with an oncologist and urologist who are not 500 miles away and know to be vigilant in staying on top of it. We are blessed that appointments are within the next two weeks. Recovery from the kidney removal is going well and at 75, hubby gets stronger everyday.
Prayers and good friends and family have been a blessing.
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