Just diagnosed with Renal Cell Carcinoma (RCC): Treatment options?

Posted by JadeUnicorn26 @maryellen26, Jan 2 6:52pm

I was just diagnosed yesterday with RCC. I'm devastated. My head is spinning. I'm waiting for my Dr to give me referrals to kidney RCC specialist so I can find out what my options are.
I've been looking at surgery to remove my whole kidney, surgery to remove just the tumor , cold ablation and heat ablation, laparoscopic surgery etc .

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@ronsale May I ask the size of your original mass? Our oncologist seems reluctant to do neoadjuvant therapy. Thank you and best wishes for continued nonexistence.

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@cobb 12 x 11 mm.

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@deebee41 the ablation didn't destroy the whole tumor and make it shatter into pieces and go away? So the ablation just kills it but the tumor is still there just smaller?

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The tumor is not viable as the cold destroys all the blood vesells connected to it. It gradually decomposed.

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The tumor is not viable as the cold destroys all the blood vesells connected to it. It gradually decomposed.

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@deebee41 ooh ok. So eventually it will basically shrivel up and go away ? Or shrivel up so small but stay on the kidney?
My RCC oncologist wants to do ablation on mine as long as the MRI results come back that it's a good candidate for ablation. I thought the ablation would kill it and destroy it ( make it go away once killed) a

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Your doctor can answer these type of questions. This is all the inforation I have. My docs are not concerned about regrowth or recurrnce.

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@mlpw :
I can understand how you are feeling devastated. My kidney cancer, and my lung cancer, were both found incidental to an MRI done for an enlarged prostate. I was also devastated, as well as dumbfounded. When I was able to take a deep breath, I realized that on some level I was grateful that these two disparate cancers were found early.
I had biopsies done of each tumor to determine if they were, in fact, malignant (which they were), and if they were from the same cancer or were separate and distinct tumors (which they were).
At the time I was 82, and did not wish to undergo any major surgeries. The thoracic oncologist told me that radiation will take care of the lung cancer, and the urologic oncologist said that radiation may take care of the kidney cancer.
I have chest CT scans every three months, and follow up with a Nurse Practitioner in the thoracic dept. The lung cancer has probably been stopped in it's tracks.
I have an MRI every six months with a follow up visit with the urologic oncologist following. The kidney cancer has not grown or metastasized. All of that said, I still sometimes feel that there is a guillotine above my neck, and it may drop at any time.
Why do I write all of this? To let you know that you are not alone. That cancer is scary, but it is not a dirty word. I'm confident that when you are over the initial shock of being told you have cancer, you will find it easier to deal with. You'll probably do some research about your type of cancer, and you will make a list of questions to ask the oncologist that you see. Share your thoughts and feelings with people you are close to and trust. You might be surprised at the understanding some folks have. Speak to a professional counselor when you need to. You will reach a point when you think, and feel, differently.
I would suggest that you take a trusted family member or close friend with you when you do visit the Onc Doc, as you may not be able to immediately process what you are being told, but your assistant is there to listen and learn as well.

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@ronsale that may be the reason. My husband’s is 4.3cm. Thank you for letting me know.

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Today had my CT scan with and without contrast.

Diagnosis from that this morning is papillary rcc and the CT scan found two additional subcentimeter left renal cortical cysts.
June 8 I see my oncologist to go over the results and plan what I do next .

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I can tell you that I had kidney cancer in 1964 and had my kidney removed. My son was diagnosed with it at age 53 and also had his kidney removed. He went onto Keytruds and finished his course without side effects,which was a blessing. My personal philosophy is when in doubt cutbit out. You can decide on options I didn’t have back then. But, for us the kidney removal has eliminated cells going elsewhere and living with one kidney is fine! I had 2 children and my kidney grew to adjust. I hope this helps you and good luck with your decision and outcome! Do not delay treatment, however!

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Saw my oncologist today to go over last months CT scan.
He said the tumor is really small - half an inch and on the outside wall of my kidney and he likes where it is and the size.
Wants me to do another CT scan with contrast dye in December to see if it grows from May to December at all. If it doesn't grow then my choice is to either do ablation or leave it and just do CT scans every year to make sure it isnt growing. He said it's a slow growing tumor so the voice is mine to make. The ablation will take an hour in the hospital same day release if I go that route.
For now I'm going to just monitor it going forward if it doesn't grow when I have the Dec scan.
If it does grow in the next six months then I'll do the ablation next year sometime.

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My recent MRI showed renal cell 2.9cm also on out side wall. My physician says I should have partial kidney removal and said he worries that ablation doesn't always work. I am concerned that he told me I could wait until
October for surgery because of work and travel. He feels it is slow growing.
The doctor knows more than I do, but my family says take care of this immediately.

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