Mucinous pancreatic cancer: Anyone have experience with this?

@mcoviello I'm sorry your mom is going through this. It sounds like she and Dan have had some unusual spread of the disease. Dan never did have any mets to the liver. Lungs, bones, some lymph nodes. Like your mom, he had a high tolerance for pain.... but the back pain was severe. Radiation did help with that. Wishing good luck to your mom.

How did your husband's scan on Monday go?

I know how overwhelming it can feel, especially when you're told your husband's cancer is a less common subtype and there isn't much information available.

If the "GA" treatment is Gemzar (gemcitabine) and Abraxane, that's a very common treatment after FOLFIRINOX if the cancer remains stable or progresses.

Mucinous pancreatic cancer is less common than the usual pancreatic adenocarcinoma, so it's understandable that you're having trouble finding others with the same diagnosis. The good news is that treatment decisions are generally based on how the cancer behaves and how it responds to therapy rather than the name alone.

I was diagnosed with pancreatic cancer more than seven years ago. My tumor was not resectable, so surgery was never an option for me. I received chemotherapy, radiation, and have been on maintenance 5-FU for more than six years. My experience has taught me that every person's journey is different, and scans often tell a much more important story than statistics.

The fact that your husband's disease was stable after eight treatments of FOLFIRINOX is encouraging, and I hope Monday's scan brings more good news.

If molecular profiling (next-generation sequencing) hasn't already been done, I would ask about it. Sometimes uncommon subtypes have genetic changes that may open the door to targeted therapies or clinical trials.

One other suggestion: the Seena Magowitz Foundation offers Zoom support meetings for pancreatic cancer patients and caregivers twice a month. Many people find it helpful to talk with others who truly understand what they're experiencing.

You're not alone. There are many of us walking this road with you. Wishing you and Tom the very best for Monday's scan.

My husband was diagnosed with adenocarcinoma of the pancreas back in July 2023. He had the whipple done in Sept followed by 12 sessions of 5-FU. He was well for a year and then a small nodule appeared in his right lower lobe. Since it was slow growing and to small to biopsy a close eye was kept on it.
Fast forward to Oct 2025 a biopsy was done and it was found to be mucinous cancer. We were told that it is a slower growing cancer.
He is now on Gem/ Abra since March and tolerating it will so far. He has been wait listed for phase 1 clinical trials. We are in Ontario Canada.
Oct of

Mucinous Colloid Carcinoma tumor of PancreasI had been diagnosed with a neuroendocrine tumor on the tail of my pancreas by endoscope biopsy. After the surgery to remove the 4.5 x 3.6 cm tumor, the pathology showed that it was actually a mucinous colloid carcinoma. It is a very rare tumor. Has anyone else here been diagnosed or treated for this?

@oneilms65, Hi Mike and welcome. I moved your post to this recent discussion:
- Mucinous pancreatic cancer: Anyone have experience with this https://connect.mayoclinic.org/discussion/rare-pan-cancer-mucinous-does-anyone-have-experiences-with-this/

I did this so you can connect with @cyndi1958, whose husband was recently diagnosed with mucinous pancreatic cancer. Click the link to see the many comments from helpful members.

It is a good think that pathology was able to correct and confirm the type of cancer to ensure that you get the right treatment. What treatment plan is being recommened for you? Are you receiving care at a cancer center of excellence?