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Rare Cancer: Gynecologic Extramammary Paget's Disease
Extra Mammary Paget’s Disease - invasive cancer.
No know treatment or clinical trials.
Very rare and rarely studied.
Anyone else have it?
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Welcome, @moffitt. As you said, extramammary Paget's disease (EMPD) is very rare. I had not heard of it. But through my searching online I did find an open clinical trial at Mayo Clinic that may be of interest to you:
- Gynecologic Extramammary Paget's Disease https://www.mayo.edu/research/clinical-trials/cls-20387127
To help me better understand the condition, I also found this educational tutorial for clinicians to learn how to properly evaluate for extramammary Paget disease. It also highlights the role of the interprofessional team in caring for patients with this condition.:
- Extramammary Paget Disease https://www.ncbi.nlm.nih.gov/books/NBK493224/
Moffitt, is this a new diagnosis for you? Are you currently in treatment?
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