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Rare Cancer: Gynecologic Extramammary Paget's Disease
Gynecologic Cancers | Last Active: 14 hours ago | Replies (94)Comment receiving replies
Thanks for sharing more of your diagnosis story. I'm not surprised that this is a cancer that often goes unrecognized. To find out more about your elibility and enrollment in the study, please contact Mayo Clinic Clinical Cancer Trials. Here's the info:
CANCER-RELATED CLINICAL STUDIES QUESTIONS
https://www.mayo.edu/research/clinical-trials
Phone: 855-776-0015 (toll-free)
Contact form https://www.mayo.edu/research/forms/cancer-clinical-trials
Replies to "Thanks for sharing more of your diagnosis story. I'm not surprised that this is a cancer..."
@colleenyoung yes, it is rare and the Paget's Disease of the Vulva diagnosis is often missed-- that is what happened to my relative. I doubt she can tolerate travel due to mobility issues as well as this condition. I am wondering if any Mayo specialists can refer us to someone who can help. Desperate to find comfort measures if not a cure. Thank you.
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Thank you for the information. I filled out the information for a EMPD clinical trial.
My history and experience will be helpful to early diagnosis.
Nancy Gilligan