Rapid Progression and autoimmune disease
I was diagnosed in October with Parkinsons following a SPECT and PET scan.
It has progressed very rapidly. I unable to walk more than about twenty steps, l sleep about half of the day and feel unable to carry out tasks around the house. I generally feel very unwell. My neurologist sees me once a month and is shocked by how quickly things have worsened for me.
I also have autoimmune encephalitis and wonder if the two could be linked. I am not currently having treatment for the autoimmune encephalitis. I am steroid resistant so have always been treated with IVIG. The last infusion was in November 2024.
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Thank you. I will check it out but I am currently in Spain.
So sorry this has progressed so fast for you! I guess I’m lucky! I had a few good years, before my Parkinson’s progressed, where walking has become a real challenge! Wishing you the best!
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3 Reactions@esther589
I'm not doing any better but thank you for your kind thoughts.
😊
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