Radiation destroyed my bladder.

Posted by randyn @randyn, Aug 25 9:52pm

Failed prostate radiation treatment caused urine bag to fill up with blood etc. and reduced bladder capacity to just two ounces.
Urethra irreparably blocked and damaged.
Is this considered bladder cancer?
How long can I subsist on a Cystostomy tube and bag?
Asymptomatic antibiotic resistant UTI which is not treated by antibiotics will remain present.

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Hi @randyn, how long ago did you have radiation? It sounds like a second medical opinion might be a good idea.

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Thanks for suggesting. A second opinion is always valued.
Radiation was Feb/March 2021.
Strictures in urethra immediately blocked and damaged it. Before a graft could be constructed, bladder
shrank & capacity was 2 ounces.
Started hormones Sept 2021 and blood/tissue had filled bag for months. What options are possible after yearling hormones stop working? I am comfortable with the care that I received and believe the outcome could not have changed. Thank you again.

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My husband had Proton therapy in 2009 in Jacksonville FL. He is in remission but after 8 yrs he started to have bladder issues. Bleeding is the most common side effect of Proton therapy and it could be rectal or bladder. He went through ablations and urinary retention many times. Mayo Clinic in Jax diagnosed him with Radiation Cystitis due to Prostate cancer treatment. He was recommended to have Hyperbaric Oxygen Treatment because the bleeding in the bladder was difficult to stop. He had 80 treatments and his bladder healed. It doesn’t mean he was “cured” from his diagnosis because he still has the bladder affected but he is not bleeding. He just drinks lots of water and doesn’t lift heavy stuff. His quality of life changed a lot after being diagnosed but he is taking one day at a time. The oncologists in Proton Institutes don’t mention it but it happens. Hope this helps.

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@naiviv

My husband had Proton therapy in 2009 in Jacksonville FL. He is in remission but after 8 yrs he started to have bladder issues. Bleeding is the most common side effect of Proton therapy and it could be rectal or bladder. He went through ablations and urinary retention many times. Mayo Clinic in Jax diagnosed him with Radiation Cystitis due to Prostate cancer treatment. He was recommended to have Hyperbaric Oxygen Treatment because the bleeding in the bladder was difficult to stop. He had 80 treatments and his bladder healed. It doesn’t mean he was “cured” from his diagnosis because he still has the bladder affected but he is not bleeding. He just drinks lots of water and doesn’t lift heavy stuff. His quality of life changed a lot after being diagnosed but he is taking one day at a time. The oncologists in Proton Institutes don’t mention it but it happens. Hope this helps.

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See my comment below.

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