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Questions for people taking Actemra and Kevzara injections

Posted by jeff97 @jeff97, Aug 1 5:04am

I'm curious about other people's experience getting their injections. Recently my rheumatologist sent in a new prescription for me for 2 refills of Actemra where each refill had 12 injections. My Medicare Advantage plan imposed a 4 injection limit per refill, so the specialty pharmacy changed the prescription to 6 refills of 4 injections each. I live in the Raleigh area of North Carolina, and the specialty pharmacy is in Memphis Tennessee, which is about 750 miles away.

How many injections do you get at a time, and how far away is the specialty pharmacy you deal with?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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kathren | @kathren | Aug 11 7:12am
In reply to @dadcue "I had problems with sleep quality, fatigue. exercise intolerance and I rated my quality of life..." + (show)
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I had problems with sleep quality, fatigue. exercise intolerance and I rated my quality of life as poor when Actemra was started. Those things didn't improve until I was off Prednisone. All those things gradually improved the longer I was able to stay off prednisone.

The most amazing thing to me was how many prescription medications I was apparently taking for Prednisone side effects. In addition to tapering off Prednisone ... I was able to discontinue at least 5 additional medications. My doctor says she likes to deprescribe medications better than prescribing medications. I have also stopped several over-the-counter medications.

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I like your doctor's "DEPRESCRIBE!"
Thx for sharing.
It sounds like all is improving.
Peace for the journey.

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navymom154 | @navymom154 | Aug 11 8:03am

On Friday, 8/8 I gave my 8th injection of Kevzara. I'm on 5mg of pred. What is the average # of injections before you see improvement. Does it take a few days after each injection to get the maximum benefit?
Thanks!

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