question re: vaccine and treatments for debilitating fatigue

Yes, but first things first. I’d like to enjoy that cocktail without falling into the lounger for a crushing fatigue pass out coma…

Yes to the fatigue getting worse after vaccination. Did you see the two posts I left for fatigue? I talks about Pacing. It helps some but not a cure, at least for me. Some days you have no choice to be able to Pace. Then you crash. I’m in a crash right now again. Hurts horribly and slept 13 hours today and 12 yesterday. I slept 18 the other day. I try to Al least get up and use bathroom a few times to move. It hurts but I know I can get clots. I don’t even roll anymore in a crash state. I just thought of that. I guess that’s really bad for clotting. Dang.

My daily goal since this all started was to make my bed (even if I had to crawl back in) and empty the kitchen sink of dishes before going to bed for the night. Anything else is bonus. I’ve been able to keep that up for the majority of the past 4 years.

My speech therapist worked on energy management, basically pacing. She taught me the “Spoon” exercise. Give yourself an amount of spoons that represents all your energy (mental, emotional, and physical) for the day. She uses 100 spoons. As you go through a standard day, assign an amount of spoons each activity uses. Activities can use spoons or give spoons. Everything is an activity. Brushing teeth, making bed, walking across the house, naps, listening to music, reading a book, making a meal, eating a meal, cleaning the dishes… The goal is to have a good amount of spoons left at the end of a day. The key is to alternate negative spoon activities with positive spoon activities so you can do a positive re-charge activity (listening to soothing music; read an enjoyable book) between energy intensive tasks. It makes total sense. I’m working on it.

Like you said, some days are more conducive to pacing than others. But on the days we can, we probably should.

My problem would be the brain fog in all that. The spoons would be lost. Yes, I sound like I’m being funny but I’m not. Thinking too hard anymore kills me. I was, hence the word WAS, great with math. I was in sales and handled accounting in my past. Now, I have to “ keep it simple stupid” ( that stupid is me, not you!). My fiancé calls bingo as a side gig. He likes to go take his mom too. I would go on occasion and realized I kind of like it, when I win of course. Now, he takes her by himself. Even prior to body completely pooping out. Brain fog hit me early 2021. I get so mad I throw my dauber down and quit. I can’t keep up. I feel like yelling out, SLOW DOWN. lol. I would get spit at by some serous old bingo ladies though. That’s kind of how the spoon thing comes across as. I get pacing. I make it simple. If I go out tomorrow for more than to Dr and back (like going to bingo as example) then I know, next day I do nothing except sleep, bathroom, and run to kitchen for applesauce or cereal. Fiancé will cook a meal at some point and I veg out to Dr Pimple Popper. lol. I said that cause it’s on right now. I thought, self, who the heck would watch that??? Never knew it would be me. I gross out but still watch. Haha. Running out of crap to watch. I seen every movie on since 2000. Even started watch ones that the lips are going in their language and some bad English actress is reading the lines. Hopeless. Do you do any of this?? Lol

I am with you 100%. Brain fog from day one along with several other symptoms. I am (was) a career bookkeeper. The kind that would balance books to the penny as my mother taught me. Now I cannot do any, and I mean any, math. In my head or on paper. [This has cost us $1000s in errors made in our business.] As a log in security question I was asked what 9x7 is. I couldn’t do it from memory of my times tables or the process to figure it out. Don’t even try to give me a phone number unless it is 2 numbers (max) at a time. The spoons? As I said, I’m working on it, but only in general terms. ST said to break up tasks into parts and add in the positive breaks in between. I try. But I’ve always been a finish anything you start kind of person, so attempting to split a task into parts doesn’t work so well. But I try. My husband and I turned the TV off about 15 years ago and switched to reading. Reading is difficult now. If it is anything technical and more than a few paragraphs, you can forget it. A couple hours usually to get through one article. Novels are easier because it just flows and is entertaining. Don’t usually remember it but I know I enjoyed it. I was a very slow reader from childhood. I didn’t know what slow was. What may have taken me a few weeks to read before it takes me months now. Uggghhh. I also have been writing a weekly column for our local paper since 2013. It was fortunate for me, not the paper, that they reduced the size of the paper and can only accept 400 word articles. Mine were typically 600-700. I have written only a few original articles in the last four years. Mostly I take old articles and edit them down. It’s been working. But I cannot focus to put my jumbled thoughts into new original pieces. Even so, writing (typing) is the best way for me to communicate because I can think about what I want to say and take time to organize my thoughts. One on one conversations ared horrible because I am always searching for words and rarely find them when I need them. Uggghhh. I could go on, especially for someone who understands. Thank you for your time. It’s been enjoyable talking. I am a people person and i don’t get enough people time.

I am with you 100%. Brain fog from day one along with several other symptoms. I am (was) a career bookkeeper. The kind that would balance books to the penny as my mother taught me. Now I cannot do any, and I mean any, math. In my head or on paper. [This has cost us $1000s in errors made in our business.] As a log in security question I was asked what 9x7 is. I couldn’t do it from memory of my times tables or the process to figure it out. Don’t even try to give me a phone number unless it is 2 numbers (max) at a time. The spoons? As I said, I’m working on it, but only in general terms. ST said to break up tasks into parts and add in the positive breaks in between. I try. But I’ve always been a finish anything you start kind of person, so attempting to split a task into parts doesn’t work so well. But I try. My husband and I turned the TV off about 15 years ago and switched to reading. Reading is difficult now. If it is anything technical and more than a few paragraphs, you can forget it. A couple hours usually to get through one article. Novels are easier because it just flows and is entertaining. Don’t usually remember it but I know I enjoyed it. I was a very slow reader from childhood. I didn’t know what slow was. What may have taken me a few weeks to read before it takes me months now. Uggghhh. I also have been writing a weekly column for our local paper since 2013. It was fortunate for me, not the paper, that they reduced the size of the paper and can only accept 400 word articles. Mine were typically 600-700. I have written only a few original articles in the last four years. Mostly I take old articles and edit them down. It’s been working. But I cannot focus to put my jumbled thoughts into new original pieces. Even so, writing (typing) is the best way for me to communicate because I can think about what I want to say and take time to organize my thoughts. One on one conversations ared horrible because I am always searching for words and rarely find them when I need them. Uggghhh. I could go on, especially for someone who understands. Thank you for your time. It’s been enjoyable talking. I am a people person and i don’t get enough people time.

I only experience physical fatigue, so I appreciate your detailed description of your Brain Fog. Like so many comments on this site, yours provides me with a sense of the range and severity of LC’s impact on people’s lives. I’ve realized that, by comparison, my symptoms are mild, and I’m grateful for that.

Hey there. I’m up from my 12 hour Bear nap. Is your name Susan? Sorry for asking but I’m sure you posted it in a Chat. So hard to find things. I laughed at “ Don’t usually remember it but I know I enjoyed it”. I do get that. So you and your husband don’t watch TV at all? Oh my poor feeble mind couldn’t handle not having those DUH moments watching and nothing intellectually going on upstairs. lol. My fiancé is sports guy so he gets big screen in my living room. I get bedroom and movie channels. His mom not visiting (has been for a long while) has her soaps etc in my spare room. So you write. Very interesting. What type of articles do you post? I like reading some too. Books if really interesting. More on Learning Articles. Like LC!! I am amazed how not many understand or even know about LC. I personally think my fiancé has it minimally. Brain fog and some fatigue. That’s another story in itself. I will share later. Going to veg brain for an hour. Getting a headache. 🤕