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annette1
@annette1

Posts: 5
Joined: Nov 17, 2016

Question about Lung Cancer

Posted by @annette1, Nov 17, 2016

Hi, my name is Annette. I was diagnosed with lung cancer the latter part of 2015. Had a half of my lung took out in march 2016. my breast still hurt and am still numb in that area. is that normal? I had a half of my lung removed in March of this year. My breast still hurt and am numb in that area still. Is that normal and happens to you?

REPLY

Why did you have lung removed? MAC?

@kaystrand

Why did you have lung removed? MAC?

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I had lung cancer

Hi @annette1, Welcome to Connect. I combined your question that you posted onto Diabetes/Endocrine to this discussion and moved it to the Cancer group so that all of the messages about lung cancer would be in one place. I’d like to introduce you to other members of Connect who are living with or caring for someone with lung cancer. Please meet @merilee @alvinw @llwortman @shortshot80 @mryzuch @amws and @burrkay.

@annette1, Have you discussed this concern/frustration with your physician?

Annette, My name is Merilee I was diagnosed and May of 2015 with stage 2A lung cancer, I had surgery where they did a wedge resection followed by chemo . some in the lymph nodes that were found later so had chemo and radiation. It has been 16 month since my surgery and about five months since my last radiation and chemo for the lymph nodes. I still have discomfort and numbness on the left side where they did my surgery. I also find it difficult to even lay on that side just very uncomfortable I’m a very petite person and I know I didn’t have a lot of fat to work with when they did the my stitches.. so I assume it’s from that…My Dr doesn’t understand why I still have numbness and some discomfort,. but from what I’ve read a lot of people do..have been going for massages which help but only on a temporary basis so for now I live with it….and that’s fine .. please feel free to ask any questions take care good luck to you…MM

@hironopiro

Hi @annette1, Welcome to Connect. I combined your question that you posted onto Diabetes/Endocrine to this discussion and moved it to the Cancer group so that all of the messages about lung cancer would be in one place. I’d like to introduce you to other members of Connect who are living with or caring for someone with lung cancer. Please meet @merilee @alvinw @llwortman @shortshot80 @mryzuch @amws and @burrkay.

@annette1, Have you discussed this concern/frustration with your physician?

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Annette,
As someone with lung cancer who had half a lung removed two years ago, and who still has some numbness in one area of my rib cage, I can offer the following information. When I spoke to my surgeon about the numbness many months after the surgery, he stated that sometimes the nerves in this area are damaged during surgery, and that there may be pain or numbness afterward. Furthermore, he said, that pain or numbness may eventually disappear, or it may remain permanently. Apparently, it’s not predictable ahead of time. Although some of us may have had an experience similar to yours, I would still suggest that you check with your own surgeon or family physician to confirm that your pain and numbness are normal, and whether there is some safe and effective way to alleviate the pain.
Good Luck!
Alvin

@merilee

Annette, My name is Merilee I was diagnosed and May of 2015 with stage 2A lung cancer, I had surgery where they did a wedge resection followed by chemo . some in the lymph nodes that were found later so had chemo and radiation. It has been 16 month since my surgery and about five months since my last radiation and chemo for the lymph nodes. I still have discomfort and numbness on the left side where they did my surgery. I also find it difficult to even lay on that side just very uncomfortable I’m a very petite person and I know I didn’t have a lot of fat to work with when they did the my stitches.. so I assume it’s from that…My Dr doesn’t understand why I still have numbness and some discomfort,. but from what I’ve read a lot of people do..have been going for massages which help but only on a temporary basis so for now I live with it….and that’s fine .. please feel free to ask any questions take care good luck to you…MM

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Hi Annette:
9 years ago I was shock d to hear the diagnosis, you have lung cancer (I never smoked)
I also had lung resection & nerve bundle pain. Due to deep pain it hurt to breath, sleep, sit, & walk! My husband tied my ski shoes & said, “Let’s go, you belong outside”!” It took me 1 hour to
Slide 200 feet it hurt to breathe!
But everyday we repeated the drill.
Acupuncture gave me pain control, along with Dr Amit Soods “Paced Breathing Research Study” with a DVD ( I initially practiced many hours a day) that told me exactly how to relax my body, nervous system and brain. I know this helped me to save my quality of life and made me strong.
I continue Paced Breathing, Acupuncture, exercise, bicycle & run races. The pain is gone and only “twinges” if I am really ill with a respiratory issues. I am a 9 year survivor, lung cancer advocate and on a mission to stop the unfair stigma I know most lung cancer patients suffer.

Lung Health deserves much more attention. Because, lung cancer is anyone’s disease!

I’m so glad you are bravely sharing your story! Thanks for joining connect!
Linda

@merilee

Annette, My name is Merilee I was diagnosed and May of 2015 with stage 2A lung cancer, I had surgery where they did a wedge resection followed by chemo . some in the lymph nodes that were found later so had chemo and radiation. It has been 16 month since my surgery and about five months since my last radiation and chemo for the lymph nodes. I still have discomfort and numbness on the left side where they did my surgery. I also find it difficult to even lay on that side just very uncomfortable I’m a very petite person and I know I didn’t have a lot of fat to work with when they did the my stitches.. so I assume it’s from that…My Dr doesn’t understand why I still have numbness and some discomfort,. but from what I’ve read a lot of people do..have been going for massages which help but only on a temporary basis so for now I live with it….and that’s fine .. please feel free to ask any questions take care good luck to you…MM

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I bought am adult trike and had full intentions on riding it every day. But it is still parked at where I parked it. No motivation and tired of the shortness of breath when I do try to do something. I wish it would end

@hironopiro

Hi @annette1, Welcome to Connect. I combined your question that you posted onto Diabetes/Endocrine to this discussion and moved it to the Cancer group so that all of the messages about lung cancer would be in one place. I’d like to introduce you to other members of Connect who are living with or caring for someone with lung cancer. Please meet @merilee @alvinw @llwortman @shortshot80 @mryzuch @amws and @burrkay.

@annette1, Have you discussed this concern/frustration with your physician?

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not my surgeon since I seen him for my six weeks checkup and he said it was normal. I do not like him so don’t really put much weight in his theory. I go see my oncologist again in two months and I will see what he says.

@merilee

Annette, My name is Merilee I was diagnosed and May of 2015 with stage 2A lung cancer, I had surgery where they did a wedge resection followed by chemo . some in the lymph nodes that were found later so had chemo and radiation. It has been 16 month since my surgery and about five months since my last radiation and chemo for the lymph nodes. I still have discomfort and numbness on the left side where they did my surgery. I also find it difficult to even lay on that side just very uncomfortable I’m a very petite person and I know I didn’t have a lot of fat to work with when they did the my stitches.. so I assume it’s from that…My Dr doesn’t understand why I still have numbness and some discomfort,. but from what I’ve read a lot of people do..have been going for massages which help but only on a temporary basis so for now I live with it….and that’s fine .. please feel free to ask any questions take care good luck to you…MM

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They took half of my lung, they say that they got it all, did not have to do chemo or radiation. It was a good thing because due to complications from surgery, my kidneys started shutting down and I had to have emergency kidney dealiyous (spelled wrong, I know). They say my kidney’s are fine now but I can’t have chemo due to that. I take an awful amount of Lasix to help the kidney
s so I spend a lot of time in the bathroom. Hopefully one day I can cut back on Lasix

Hi @annette1, I thought I would check in and see how you are doing.

I wanted to share Dr. Amit Sood’s website that @llwortman mentioned. http://stressfree.org/happiness/ In this page you can sign up for a week of mindfulness “training” to help reduce stress and maybe give a boost to motivation. Perhaps you can use this to support a new year resolution.

Annette, have you had any changes in the numbness or pain this past month? Have you tried acupuncture or massage?

@colleenyoung

Hi @annette1, I thought I would check in and see how you are doing.

I wanted to share Dr. Amit Sood’s website that @llwortman mentioned. http://stressfree.org/happiness/ In this page you can sign up for a week of mindfulness “training” to help reduce stress and maybe give a boost to motivation. Perhaps you can use this to support a new year resolution.

Annette, have you had any changes in the numbness or pain this past month? Have you tried acupuncture or massage?

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Hi Annette :
Isn’t Colleen Young amazing with her help
In connecting patients and survivors! I really encourage you to follow Dr Amit Sood …I had the amazing and healing opportunity to work with Dr Sood 9 years ago when I was diagnosed with lung cancer. As a never smoker facing crazy odds, I truly believe the mindful training taught me resilience to win this cancer battle. Keep a positive attitude and keep communicating with the rest of us because support is also a huge part of the healing g process.
Best
Linda

Hi Annette:
I’m thinking of you and your pain as mentioned due to lung cancer surgery. I have experience a similar pain. However, with acupuncture and
even chiro procedures, massage (after years of not wanting anyone to touch me due to 5 scars from lung cancer surgery) my body now accepts
a healing hand near my scars. I have also found paced breathing practices at least two times daily, have helped my lung function better and I feel
better. I pushed myself for 3 years plus, even though it hurt to breath. I also feel the “stress of it all” was a “pain”. After I learned how to tell my
nervous system to relax, it has been amazing what I have achieved…as I pace breath my way through life.
I hoping this helps. We hope to hear from you again on CONNECT. We’re on your team.
Linda

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