Pyoderma gangrenosum

Posted by aunkey @aunkey, Aug 12, 2021

2 yrs, 4 Drs, 4 diagnoses & unsuccessful surgery ending in this !
Supposedly mastectomy is the last option but MRSA & type 1 diabetes (50 plus yrs) makes it ultra risky but do I survive without surgery?
Rare case and no experts here. Considering Mayo

Interested in more discussions like this? Go to the Infectious Diseases group.

I'm sorry to hear that you are suffering this rare and painful condition. Welcome to Mayo Connect, a community of people suffering from a wide variety of conditions and diseases. We share our experiences and try to help one another along the way. We are not medical professionals, but are willing to share what we have learned as we travel along, living as well as we can.

I haven't found any current posts from others with your condition, but maybe someone will see this and reply. In the meanwhile, if you want to seek treatment at Mayo, here is the link: http://mayocl.in/1mtmR63

Here is some info from Mayo about the condition: https://www.mayoclinic.org/diseases-conditions/pyoderma-gangrenosum/symptoms-causes/syc-20350386#: They try many non-surgical options first in this condition.

Please let me know what you decide to do.
Sue

REPLY

Reference to a 5th dr and 5th diagnosis in 2 1/2 yrs. now it’s necrobiosis lipoidica. That ties my long term type 1 diabetes mellitus with Hashimoto (long term hypothyroidism. She flipped from all steroids all the time to doxycycline & tacrolimus. Mastectomy is ruled out.

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