PVC in HOCM
My daughter underwent myomectomy in 2020. Now she's 17. Had breathing difficulty. After MRI, discovered scarring in the LV of the heart muscles. Dr advised for ICD. Anyone had this problem before? What did you do? Is it high risks?
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Hello @selinac, and welcome to Mayo Clinic Connect.
I am sorry to hear your daughter is having issues after all she's been through. It has to be frustrating and frightening at the same time.
I found this article online that is interesting, but I am not sure it answers the questions you asked
*Scarring in the left ventricle after a septal myectomy can occur as a result of the surgical procedure, which involves removing thickened heart tissue. This scarring may affect heart function, but many patients experience improved blood flow and reduced symptoms of hypertrophic cardiomyopathy following recovery.
Cleveland Clinic
Understanding Left Ventricle Scarring After Septal Myectomy
What is Septal Myectomy?
Septal myectomy is an open-heart surgery aimed at treating hypertrophic cardiomyopathy, a condition where the heart muscle thickens, particularly affecting the septum between the ventricles. During the procedure, a portion of the thickened septal tissue is removed to improve blood flow.
Causes of Left Ventricle Scarring
Scarring in the left ventricle can occur after any open-heart surgery, including septal myectomy. The primary causes include:
Surgical Trauma: The incision and manipulation of heart tissues can lead to scar formation.
Healing Process: As the heart heals, fibrous tissue may replace normal heart muscle, resulting in scarring.
Ischemia: Reduced blood flow during surgery can contribute to tissue damage and subsequent scarring.
Implications of Scarring
Left ventricle scarring can affect heart function in several ways:
Reduced Contractility: Scarring may impair the heart's ability to contract effectively.
Arrhythmias: Scar tissue can disrupt the electrical pathways in the heart, leading to irregular heartbeats.
Heart Failure: Significant scarring may contribute to heart failure symptoms over time.
Management and Monitoring
Post-surgery, patients should have regular follow-ups to monitor heart function. Key management strategies include:
Echocardiograms: To assess heart structure and function.
Medications: To manage symptoms and prevent complications.
Lifestyle Changes: Adopting a heart-healthy lifestyle can support recovery and overall heart health.
Understanding the potential for scarring and its implications is crucial for patients undergoing septal myectomy. Regular monitoring and proactive management can help mitigate risks associated with left ventricle scarring.
Cleveland Clinic*
Is your daughter's cardiologist up to date on HOCM/HCM and post op septal myectomy conditions?
Have you considered a second opinion with a Center of Excellence such as the Mayo Clinic or Cleveland Clinic?
The Mayo Clinic is the world leader in Hypertrophic Cardiomyopathy and the see the most complicated cases that need an expert's input.
Hopefully another member who may be familiar with this same situation will respond, but in the meantime,
I would not hesitate to get another opinion. Your daughter has been through so much (and you as well as a mother!) and it's important to get the right answers.