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PV Itching Not After Bathing
There’s so much information out there about PV itching following contact with water. My question is simple—can the PV-related itching happen at other times of the day? I consistently start itching at 7 pm every night. Interestingly, the itching last night started at 8 pm I presume because of daylight saving time change. Does anyone else experience this? Should I look elsewhere for the cause of the itching? I’d be interested to hear anyone’s stories about when they itch, not just what to do about it.
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@claire39, thank you so much for your reply. I, too, have had some sort of dermatitis on my scalp for about 2 years. It itches, blisters, and flakes. I’ve lost count of the different hair products I’ve cycled through to try to figure out the culprit. I never thought to correlate it to blood. This is very helpful information. What is the lotion that you use on it?
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3 ReactionsGood evening @trillium. I just follow itching because I have now been suffering from the "itch" for about a year. You can find up-to-date posts when you go to the group Skin Health. https://connect.mayoclinic.org/group/skin-conditions/. I have started a few discussions in that group that may be helpful.
Be safe and protected.
Chris
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3 ReactionsGood morning Trillium.......I have ET and MPN, I have been on Hydrea for three years. Before diagnosis I developed itchiness on my scalp with outbreaks of blister like spots. Dermatologists said it was an allergy to fragrance. After I started to take Hydrea it slowly calmed down to just a bit of itchiness sometimes at night. My Blood Doctor said it was side effects of the cancer. I have a lotion that I put on it if I have an outbreak. I do not have itchiness anywhere else. Hope this information is helpful
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