PV Itching Not After Bathing

Posted by trillium @trillium, Mar 16, 2021

There’s so much information out there about PV itching following contact with water. My question is simple—can the PV-related itching happen at other times of the day? I consistently start itching at 7 pm every night. Interestingly, the itching last night started at 8 pm I presume because of daylight saving time change. Does anyone else experience this? Should I look elsewhere for the cause of the itching? I’d be interested to hear anyone’s stories about when they itch, not just what to do about it.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

claire39 | @claire39 | Mar 18, 2021

In reply to @trillium "@claire39, thank you so much for your reply. I, too, have had some sort of dermatitis..." + (show)

Hello Trillium.....thank you for responding....your symptoms are exactly the same as mine. My doctor recommended a lotion called Taro-Mometasone and you need a prescription for it, she also told me to take an allergy pill when I need to and it also helps. I will check out Chris Trout's post as well. Hope this helps

Chris, Alumni Mentor | @artscaping | Mar 18, 2021

In reply to @trillium "@claire39, thank you so much for your reply. I, too, have had some sort of dermatitis..." + (show)

Good morning @trillium, @claire39. I just realized that I might have a solution for your scalp itch. My dermatologist diagnosed my 10 year battle with scalp itch as seborrheic dermatitis. It started behind my ears and was very yucky and annoying. She has develop a 3 day treatment program that combines shampoo changes with overnight application of fluocinonide twice a week. I did the process 2 times and that was 2 years ago. It is not 100% gone...vanished.......but it is close to at least 95%. I only use the topical every once in a while behind my right ear. That is also my main tinnitus ear.

I wish I could give you a gift of this treatment....it was my first “itch” relief introduction. Wish my hands responded to something or anything to help with the rest of my body.

May you have happiness and the causes of happiness.
Chris

trillium | @trillium | Mar 18, 2021

In reply to @artscaping "Good evening @trillium. I just follow itching because I have now been suffering from the "itch"..." + (show)

Thank you, Chris! I’ll definitely check out the posts on skins conditions.

trillium | @trillium | Mar 18, 2021

In reply to @claire39 "Good morning Trillium.......I have ET and MPN, I have been on Hydrea for three years. Before..." + (show)

@claire39, thank you so much for your reply. I, too, have had some sort of dermatitis on my scalp for about 2 years. It itches, blisters, and flakes. I’ve lost count of the different hair products I’ve cycled through to try to figure out the culprit. I never thought to correlate it to blood. This is very helpful information. What is the lotion that you use on it?

Chris, Alumni Mentor | @artscaping | Mar 18, 2021

Good evening @trillium. I just follow itching because I have now been suffering from the "itch" for about a year. You can find up-to-date posts when you go to the group Skin Health. https://connect.mayoclinic.org/group/skin-conditions/. I have started a few discussions in that group that may be helpful.

Be safe and protected.
Chris

claire39 | @claire39 | Mar 17, 2021

Good morning Trillium.......I have ET and MPN, I have been on Hydrea for three years. Before diagnosis I developed itchiness on my scalp with outbreaks of blister like spots. Dermatologists said it was an allergy to fragrance. After I started to take Hydrea it slowly calmed down to just a bit of itchiness sometimes at night. My Blood Doctor said it was side effects of the cancer. I have a lotion that I put on it if I have an outbreak. I do not have itchiness anywhere else. Hope this information is helpful

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