Pure autonomic failure just diagnosed at Rochester
After several years of autonomic symptoms and orthostatic hypotension I was diagnosed at Mayo by the autonomic neuropathy team. Has anyone found symptoms management especially helpful with their quality of life issues like bladder control?
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I’m extremely disappointed in the lack of caring and concern, that I’ve NOT received, by professional, well paid medical providers, who have chosen not to help elderly people like me, instead pacifying with words, rather than treating us with the same care as they give to younger patients. Perhaps this is only happening in the area where I live, but I suspect it is prevalent. Losing autonomic function, and I have that problem, like incontinence, faulty temperature control, labile blood pressure control, heart rhythm problems (a-fib, in my case), etc. is difficult for patients, and providers should address that problem, rather than ignore it! I know that if I lived near Mayo Clinic, all of my autonomic system problems would be addressed by the amazing medical professional staff, so my views only apply to my specific situation, in my particular location!