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DiscussionAnyone have pure autonomic failure? I was just diagnosed at Rochester
Brain & Nervous System | Last Active: Apr 1 8:56am | Replies (18)Comment receiving replies
Replies to "I understand "foundry rat's" frustration with some medical providers, but also understand that autonomic failure is..."
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@bmfoster Excellent advice! I recently sorted out, and wrote down my many symptoms. My neurologist retired, and I have a new neurologist with movement disorders training! For the first time, in years, this medical provider actually LISTENED to me, and acted on my list of problems. This neurologist got out the pin, and checked out my symptoms of pins and needles sensations, and numbness, in both hands and feet! The diagnosis this caring Doc came up with, was polyneuropathy! Then, my autonomic system symptoms, are related to my Parkinson’s Disease, but, additionally, the Neurologist ordered MRI and MRA scans, which revealed the reasons why I have had worsening balance issues, walking, ataxia problems, incontinence, falls, blurred and double vision, blood pressure labile problems and vascular migraine headaches, etc. This Doctor cared enough to check it all out, and, unfortunately, or fortunately, depending upon how one looks at the causative effect picture, the MRI findings revealed that I have had SEVERAL LACUNAR STROKES, and white matter small vessel disease, in my brain. The day after I got that news, from my new Neurologist, I had an emergency appointment set up, with my Cardiologist ( because I have had numerous atrial fibrillation episodes, in the last year or so ). The Cardiologist immediately put me on a blood thinner, and I am scheduled to have a Watchman implant operation for my heart, in March! So, now I have to take back, some of my denigrated remarks about some providers, because, it could be, that this new, young Neurologist, who is showing concern for helping me with solving my symptom problems, may have just saved my life! This is updated info, that has just occurred in my life, the last couple of weeks. Again, thanks for your wise reply, to my previous post!