I went through all of the tests for autonomic failure and found my catecholamines were still at good function. Workup showed autonomic neuropathy and dysfunction due to systemic disease chronic inflammation.
Do you have neurogenic orthostatic hypotension and peripheral neuropathy?
I am doing well with Midodrine and bladder meds. Currently enrolled in an observational study for neurological disease progression. Still golfing at 79.

Welcome, @sdinus. I moved your question to this discussion started by @seniormed recently.
- Anyone have pure autonomic failure? I was just diagnosed at Rochester https://connect.mayoclinic.org/discussion/pure-autonomic-failure-just-diagnosed-at-rochester/

I did this so you can connect with @seniormed @foundryrat743 @bmfoster and others. Here are additional PAF-related discussions: https://connect.mayoclinic.org/search/discussions/

@sdinus, is this a new diagnosis for you?

@sdinus
I have been diagnosed with Autonomic Dysfunction, as well as many others. I did the tilt table, and my heart rate increased over 30 bpm, so I have the POTS diagnosis too. I am seeing an Autonomic Neurologist on May 1st. My BP has been out of control since a box fell on the back of my head (plus 30 years ago, I was in a motor vehicle accident that put me in a two-week coma). From my understanding, it is hard to get into and see an Autonomic Neurologist quickly. Good luck with all!