Mayo Clinic Connect
Is there any one out there that has PF?
What are the types of examination can give ACCURATELY diagnosing of PF?
I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don’t seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013
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what is the relation between acid reflux pills which you used and IPF?
do you have gatsrIicproblems causing IPF?
Hello @hishamhussain. While I see that you tagged spicegirl and Colleen Young, here are the techniques used by Mayo Clinic to diagnose Pulmonary Fibrosis, http://mayocl.in/2jiwXcU.
Have you had issues with an inaccurate diagnosis regarding PF in the past?
Hi @oliver22, thanks for welcoming new member @loisblo.
Let me introduce you to a few other Connect member who have been talking about pulmonary fibrosis @nancyligon @pd02 @powderpuf @inspiration @muskiemama @chicoco @jvivian @mairi.
Are you on oxygen?
yes 24-7 5 ltrs pulse setting for 3 yrs
Could you please tel me why you use acid reflex pills?
do you have GERD or Digestive problems?
and what the relation between PF and acid reflex pills?
Thanks Justin for your caring
Yes I have symptoms of excess mucus without coughing up for 4 months
and still I could not fin the accurate diagnosis
I use montelucast and anti histamine medicines but it did not give me any better
currently I use serrapeptase enzyme and i feel it help me temporally
so my question id what are the types of medical examinations can help in giving accurate diagnose for the PF?
Hisham, click this link http://mayocl.in/2jiwXcU to see tests and examinations done to accurately diagnose PF.
I went in the hospital for what I thought was a heart attack it turned out to be a false alarm although when my dr came in to discuss the cat scan told me I had IFP kinda through me for a loop I have a consultation set up for later this week and a second appointment set up in 5 weeks which I believe will be for another c scan or image to see the progression he did mention that it is very early because I have no symptoms. I have acid reflex for the past 10 years or so.
I was so tired I had to nap all the time and then got short of breath so I was sent to see a pulmonologist and after many tests he discovered I also had IPF. I am not a smoker or had other conditions which cause this disease. I have been around smokers a lot and now I think it could be second-hand smoke. I am early stages also but was put on night-time oxygen and feel much better. I hope you are doing well after your further testing. Exercise and keep up your strength.
Liked by Colleen Young, Connect Director
similiar situation, i am non smoker that is why they define it idiopathic pulmonary fibrosis..I have been on O2 5 yrs @ first 3 ltr then 5, now. I have had good results withEsbriet med 2 yrs now. Be encouraged, this IS a liveable condition with some adaptation to you life style!
Liked by steve1948
Thanks for your great response I was beginning to think the worse thanks again
@agullotti, getting a new diagnosis like IPF can be a shock. Here’s more information from Mayo Clinic http://mayocl.in/2jAEmAi I’m glad you found Connect to ask questions of people who are living well with IPF. What’s your biggest concern?
@loisblo, what is your exercise of choice?
I haven’t even seen my pulmo yet other than the 10 minutes in the hospital. It is all surreal. I see them tomorrow. I also have submitted the form to see someone in mayo. I am just numb. In the hospital they did the c scan, an echo and numberous other tests and I guess I’m just in the dark about all this.
I have been very active working a lot 60 hours on average played hockey when I was younger. Still love to scuba dive with my wife. I guess that’s all going to change.
I went to pulmonary rehab at a local hospital. I have an exercise program for my situation. My doctor just stressed how exercise is what will keep me strong. I will be 80 years old in a couple months and am still active although I had to give up golf. Good luck with the scuba diving. What fun!
Liked by Colleen Young, Connect Director, steve1948
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