Pulmonary Fibrosis*

Posted by tetreaulta5 @tetreaulta5, Feb 25, 2012

Is there any one out there that has PF?

What are the types of examination can give ACCURATELY diagnosing of PF?
@spicegirl,
@colleenyoung

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@inspiration

I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don’t seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013

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dear @inspiration
what is the relation between acid reflux pills which you used and IPF?
do you have gatsrIicproblems causing IPF?

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@hishamhussain

What are the types of examination can give ACCURATELY diagnosing of PF?
@spicegirl,
@colleenyoung

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Hello @hishamhussain. While I see that you tagged spicegirl and Colleen Young, here are the techniques used by Mayo Clinic to diagnose Pulmonary Fibrosis, http://mayocl.in/2jiwXcU.

Have you had issues with an inaccurate diagnosis regarding PF in the past?

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@colleenyoung

Hi @oliver22, thanks for welcoming new member @loisblo.
Let me introduce you to a few other Connect member who have been talking about pulmonary fibrosis @nancyligon @pd02 @powderpuf @inspiration @muskiemama @chicoco @jvivian @mairi.

Are you on oxygen?

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yes 24-7 5 ltrs pulse setting for 3 yrs

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@inspiration

I was diagnosed with IPF 16 years ago. Since then I have only been taking acid reflux pills (2) per day. I work out in a gym 3 times/week and don’t seem to lose my breath. When walking, I do. My doctor advises that I should take Esbriet but I am reluctant. My heart is strong and I sleep 7-8 hrs./night. I am at an impass as to what to do. I am 76. My symptoms increased slightly in 2013

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@inpiration
Could you please tel me why you use acid reflex pills?
do you have GERD or Digestive problems?
and what the relation between PF and acid reflex pills?

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@hishamhussain

What are the types of examination can give ACCURATELY diagnosing of PF?
@spicegirl,
@colleenyoung

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@JustinMcClanahan
Thanks Justin for your caring
Yes I have symptoms of excess mucus without coughing up for 4 months
and still I could not fin the accurate diagnosis
I use montelucast and anti histamine medicines but it did not give me any better
currently I use serrapeptase enzyme and i feel it help me temporally
so my question id what are the types of medical examinations can help in giving accurate diagnose for the PF?

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@hishamhussain

What are the types of examination can give ACCURATELY diagnosing of PF?
@spicegirl,
@colleenyoung

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Hisham, click this link http://mayocl.in/2jiwXcU to see tests and examinations done to accurately diagnose PF.

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I went in the hospital for what I thought was a heart attack it turned out to be a false alarm although when my dr came in to discuss the cat scan told me I had IFP kinda through me for a loop I have a consultation set up for later this week and a second appointment set up in 5 weeks which I believe will be for another c scan or image to see the progression he did mention that it is very early because I have no symptoms. I have acid reflex for the past 10 years or so.

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@agullotti

I went in the hospital for what I thought was a heart attack it turned out to be a false alarm although when my dr came in to discuss the cat scan told me I had IFP kinda through me for a loop I have a consultation set up for later this week and a second appointment set up in 5 weeks which I believe will be for another c scan or image to see the progression he did mention that it is very early because I have no symptoms. I have acid reflex for the past 10 years or so.

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I was so tired I had to nap all the time and then got short of breath so I was sent to see a pulmonologist and after many tests he discovered I also had IPF. I am not a smoker or had other conditions which cause this disease. I have been around smokers a lot and now I think it could be second-hand smoke. I am early stages also but was put on night-time oxygen and feel much better. I hope you are doing well after your further testing. Exercise and keep up your strength.

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@agullotti

I went in the hospital for what I thought was a heart attack it turned out to be a false alarm although when my dr came in to discuss the cat scan told me I had IFP kinda through me for a loop I have a consultation set up for later this week and a second appointment set up in 5 weeks which I believe will be for another c scan or image to see the progression he did mention that it is very early because I have no symptoms. I have acid reflex for the past 10 years or so.

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similiar situation, i am non smoker that is why they define it idiopathic pulmonary fibrosis..I have been on O2 5 yrs @ first 3 ltr then 5, now. I have had good results withEsbriet med 2 yrs now. Be encouraged, this IS a liveable condition with some adaptation to you life style!

Liked by steve1948

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Thanks for your great response I was beginning to think the worse thanks again

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@agullotti, getting a new diagnosis like IPF can be a shock. Here’s more information from Mayo Clinic http://mayocl.in/2jAEmAi I’m glad you found Connect to ask questions of people who are living well with IPF. What’s your biggest concern?

@loisblo, what is your exercise of choice?

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I haven’t even seen my pulmo yet other than the 10 minutes in the hospital. It is all surreal. I see them tomorrow. I also have submitted the form to see someone in mayo. I am just numb. In the hospital they did the c scan, an echo and numberous other tests and I guess I’m just in the dark about all this.

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@colleenyoung

@agullotti, getting a new diagnosis like IPF can be a shock. Here’s more information from Mayo Clinic http://mayocl.in/2jAEmAi I’m glad you found Connect to ask questions of people who are living well with IPF. What’s your biggest concern?

@loisblo, what is your exercise of choice?

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I have been very active working a lot 60 hours on average played hockey when I was younger. Still love to scuba dive with my wife. I guess that’s all going to change.

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@colleenyoung

@agullotti, getting a new diagnosis like IPF can be a shock. Here’s more information from Mayo Clinic http://mayocl.in/2jAEmAi I’m glad you found Connect to ask questions of people who are living well with IPF. What’s your biggest concern?

@loisblo, what is your exercise of choice?

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I went to pulmonary rehab at a local hospital. I have an exercise program for my situation. My doctor just stressed how exercise is what will keep me strong. I will be 80 years old in a couple months and am still active although I had to give up golf. Good luck with the scuba diving. What fun!

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