Pudendal Nerve Entrapment/Neuropathy/Damage
Hello from a new member. Am wondering if anyone suffers from the monster Pudendal Nerve Entrapment/Neuropathy/Damage? I do. And I'm very alone in it. It is a very uncommon condition, and because of its personal nature, one that many people may not be comfortable opening up about. There seems to be a more vocal/visible presence of patients in the US, AUS and France. I hope, I need, I want - for it be made more aware of here in Canada. If there is any one who suffers from it, or who thinks they might, please feel free to open up about it. Please join me in advocating for ourselves in this horrible condition.
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Thank you!
My doctor put me on 50 mg and it didn't do a darn thing! They are so paranoid of prescribing for pain. Its ridiculous. Thanks for the reply!
In my experience, 50 mg is worthless. Need to be at 200-300
Why are these physicians in the field of pain management? If a patient is still suffering from paranoia of prescribing meds, what's the point? Its a waste of time! We can thank the media hype as well. They report on things they know absolutely nothing about and create a stigma thats unnecessary. Unfortunately they are not the sharpest tools in the shed yet people listen anyway. Total insanity.
I agree, most pain doctors don't prescribe either enough or the wrong medication to treat the pain. I live in South Carolina and the doctors here are scared to help the patient get relief. I think some of it may because to many people sue the doctors and the pharmacies. I think a patient should be evaluated by a good mental health specialist to see if the patient would be a good candidate for chronic pain management. If the doctor prescribes the recommended dose by the manufacturer of the medication and the allowable by the insurance company then the doctor and insurance can't be sued. Maybe reevaluate the patient every 3-6 months by the mental health specialist, not just the ones that ask you a couple questions and have you fill out a standard form.
I am 2½ years now. The pain has changed my life. I try every day to enjoy what has been given to me today. Still doing pelvic floor therapy. It has helped shrink the area. But the tip on of my penis hits on my clothes It sends me through the roof. Every type of under garment known to man. Urologist, dermatologist can see swelling on the meatus around the utearha opening. If anyone has as idea I am very desperate. The toll on the mind for chronic pain is extreme. I end up just thinking of others who have it way worse. Live day to day best I can.
Yes, commented below. 2 ½ years of torture now. Nerve blocks, meds, therapy, acupuncture, every under garment, will try anything. No idea not worth trying. Currently doing pelvic floor therapy along with dermatologist. Urologist in the loop as well.....
Has anyone bothered to prescribe an MRI? Something is causing the swelling that aggravates nerves. Any pressure,swelling, lifting or certain exercises will irritate a nerve. Ask for a 3T. MRI, the 3T scan is more advanced with better imaging than the 2T or 1.5T. Is anyone helping you with pain management ( meds) until someone determines the problem? In my experience,a pain Management Doc who is an Anesthesiologist might be your best bet. Get more than one opinion.
I go to a pain doctor every month for severe feet neuropathy. They prescribe Xtampza which is an opioid but the manufacturer has tweaked it to do away with the euphoria high and addictive features. It works pretty good for me. It’s considered a Tier 4 medicine and the clinic considers it at the top of the opioid scale behind oxycodone. I was traveling overseas to work for a month after using Xtampza for years and I couldn’t get back to renew the medicine. The only side affect I had was I couldn’t sleep well but that went away after 3-4 nights but of course my feet were back in the frying pan and I went nearly 2-weeks without so I’m satisfied it isn’t habit forming. I’ve tried a few other remedies including Qutenza wrap, didn’t help, ($1000) wasted. Tried THC gummies, worked somewhat if I used it constantly but didn’t like the high, couldn’t drive, and many other side effects.
Hi Vicky
This sounds hopeful! Are your procedures covered by insurance?