Pudendal Nerve Entrapment/Neuropathy/Damage

I have pudendal neuralgia and have had pelvic pain for many years. I finally have come to the possibility that the nerve sensitivity is being caused by the brain, that is why the anti seizure medication may have rest the brain. It started after microwave for enlarged prostrate which caused retrograde ejaculation. The pain would come and go originally and the pain was in the perinium area and the penal area feeling like I had to go and like a uti but urine samples never showed anything. I was put on heavy antibiotics for possible prostatsis. They also did surgery to clean up a cyst and “debris”. Over 7 years symptoms were getting worse and when it occurred I also started having fecal issues.
A few years ago I was told I might have prostrate cancer and an MRI pirad of five made it most likely. I was besides myself because I was having all these symptoms and just accepted it. I was extremely stressed and I got a horrific burning sensation in the perinium area. They took a urine test which showed nothing and said it probably a nerve pain. The burning went away but the perinium pain remained until had the prostrate removal surgery and the pain was gone and I felt great. This came the sitting pain, rectal urgency and feeling I had to go continuously. After several years the pain is at a manageable level along I do not aggravate the pelvic area. Even stress causes tension of sphincter muscles causing pain. I have nerve block, physical therapy, and have tried many other things but have learned to live with the pain. I now think that I was getting uti’s in the Seminole vessels and the uti was not showing up on urine sample because I had retrograde ejaculation and it was blocked. I have learned the pain on the tip of the penis like a uti is not occurring there but upstream it just feels like it is there because it is the end of the nerve. My theory is I kept having uti’s and my brain has made the sensory hypersensitive. I continually have pains occur in the pelvic area and any muscle tension and pressure can set off pain At times just a cough sends a shooting pain in my groin area down the leg making me want to collapse. I have gotten pain so bad I think the pain maxed out. At this time I could not get a signal through to go, I thought my bladder was full but could not tell, I pushed on it finally and I wet.
The thing is with my pain I am able to fall asleep, as if the brain shuts off the pain.
Almost anything can trigger pain in this including being stressed. I am hoping if I do not stress the area that the brain will desensitize like my shoulder nerve which was damaged in a car accident. The pains I get at times stops me in my tracks at time because I am afraid something has been hurt but it will go to a lower pain level.
I have a uti currently, my PSA is rising and they indicate if it gets to the value of cancer reoccurrence they would do radiation, and they recommend an AUS valve for my incontinence but I am afraid to have anything done in the pelvic area that can make the pain become lost. It is hard with the amount of pain I am in that nothing is wrong. And when it gets real bad lately it has been short periods of time
I am tired of doctors making comments which I think if they have the pain I have they would not say that
Sorry about going on so long but I believe my pain is my brain magnifying the sensory portion of the pudendal nerve because of the repetitive utis and it became chronic
I wish everyone happiness. I have learned to laugh and smile which helps