Pudendal Nerve Entrapment/Neuropathy/Damage

Posted by mandiPNE @mandee, Oct 5, 2018

Hello from a new member. Am wondering if anyone suffers from the monster Pudendal Nerve Entrapment/Neuropathy/Damage? I do. And I’m very alone in it. It is a very uncommon condition, and because of its personal nature, one that many people may not be comfortable opening up about. There seems to be a more vocal/visible presence of patients in the US, AUS and France. I hope, I need, I want – for it be made more aware of here in Canada. If there is any one who suffers from it, or who thinks they might, please feel free to open up about it. Please join me in advocating for ourselves in this horrible condition.

@bkruppa

We currently are looking into and having treatments called MFR or MyoFacialRelease. This is the area between the outer skin and muscles or between two muscles. Normal action of this area is to allow one part of the body to slide over the other like one muscle over the other muscle. The theory is that if one is inactive for a long period of time (like my wife was with the shingles episode and bed ridden for about 3 months) this layer can become hardened and not work as it normally would. It can also entrap nerves that pass through this area which can cause pain. Treatment for MFR is specialized massaging techniques that help restore this area to it's original fluid from a harden state. We have also tried some new dual beam laser treatments that offer temporary relief but nothing permanent.

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I have begun my first MFR treatment of three, and I have begun to have less neuropathy in my my feet, after 2 days, and I have a sense of feeling better overall with my body. I’ve had CRPS and nerve pain for several years and this is the first treatment that I feel might really give me some long term pain relief. You need to be diligent in doing exercises st home, and communicate with your therapist what hurts and what doesn’t. I feel it’s a great procedure that had been producing results. I have tried some many different treatments, epidurals, neural stimulators, etc and this procedure has given me some hope for getting some long term relief. I know it’s early but as we know, it’s good to be optimistic.

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@mlross4508

I have begun my first MFR treatment of three, and I have begun to have less neuropathy in my my feet, after 2 days, and I have a sense of feeling better overall with my body. I’ve had CRPS and nerve pain for several years and this is the first treatment that I feel might really give me some long term pain relief. You need to be diligent in doing exercises st home, and communicate with your therapist what hurts and what doesn’t. I feel it’s a great procedure that had been producing results. I have tried some many different treatments, epidurals, neural stimulators, etc and this procedure has given me some hope for getting some long term relief. I know it’s early but as we know, it’s good to be optimistic.

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@mlross4508 That's wonderful that MFR is helping you. I would be surprised in 3 treatments are enough. Ask about how you can self treat at home for your issues. Also doing something like Yoga where you hold a stretch will also release fascia and might be a way to continue improving. Just don't stop moving after you are better because the issues can re-occur. You can keep this going after you stop treatments. We have a discussion for MFR where there is a lot of information and links. Would you join us there and copy & paste your comment to that discussion? It's good to hear success stories. Good for you!

https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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@mlross4508

I have begun my first MFR treatment of three, and I have begun to have less neuropathy in my my feet, after 2 days, and I have a sense of feeling better overall with my body. I’ve had CRPS and nerve pain for several years and this is the first treatment that I feel might really give me some long term pain relief. You need to be diligent in doing exercises st home, and communicate with your therapist what hurts and what doesn’t. I feel it’s a great procedure that had been producing results. I have tried some many different treatments, epidurals, neural stimulators, etc and this procedure has given me some hope for getting some long term relief. I know it’s early but as we know, it’s good to be optimistic.

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I have neuropathy in both feet. After reading this I’m going to try mfr to see if it makes a difference. Thank you for your post x

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Great. Get ready to feel the grass under bare feet again. It takes time and commitment. I an sure that the only reason I am still driving is because of MFR. Be safe and protected. Chris

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@artscaping

Great. Get ready to feel the grass under bare feet again. It takes time and commitment. I an sure that the only reason I am still driving is because of MFR. Be safe and protected. Chris

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In regards to the neuropathy of the feet, what do they focus the release on that has created great results? Is it the feet themselves etc?

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@mlross4508

I have begun my first MFR treatment of three, and I have begun to have less neuropathy in my my feet, after 2 days, and I have a sense of feeling better overall with my body. I’ve had CRPS and nerve pain for several years and this is the first treatment that I feel might really give me some long term pain relief. You need to be diligent in doing exercises st home, and communicate with your therapist what hurts and what doesn’t. I feel it’s a great procedure that had been producing results. I have tried some many different treatments, epidurals, neural stimulators, etc and this procedure has given me some hope for getting some long term relief. I know it’s early but as we know, it’s good to be optimistic.

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wht is a MFR treatment

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@gloriajean

wht is a MFR treatment

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@gloriajean MFR is Myofascial Release. We have a discussion with a collection of information about it. It helps by stretching tight fascia and releasing compression on tissues. It can help lots of problems. Here is the link.

https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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Hi all. I'm a new member and I have read all the posts concerning the pelvic pain. Mine started 9 years ago from no apparent reasons and I've been through all the procedures that everyone has described. I've been standing up for these 9 years trying to find a specialist that knows how to deal with this problem. Sitting is very painful but one thing that no one has mentioned in their posts is laying down is just as painful if not worse. Anyone out there that has both problems? The only way I can get any sleep is by taking prescribed medication. Otherwise, I'm awake all night long and of course the pain is there all night long.

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@skiak22

Hi all. I'm a new member and I have read all the posts concerning the pelvic pain. Mine started 9 years ago from no apparent reasons and I've been through all the procedures that everyone has described. I've been standing up for these 9 years trying to find a specialist that knows how to deal with this problem. Sitting is very painful but one thing that no one has mentioned in their posts is laying down is just as painful if not worse. Anyone out there that has both problems? The only way I can get any sleep is by taking prescribed medication. Otherwise, I'm awake all night long and of course the pain is there all night long.

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My wife's pain is worsened when sitting down. The pain is there while standing but this does not aggravate the nerves like sitting does. Sleeping is the best part of the day as the pain seems to subside during the night. Upon wakening the pain level is lower but gradually goes higher as she becomes more active.

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@bkruppa

My wife's pain is worsened when sitting down. The pain is there while standing but this does not aggravate the nerves like sitting does. Sleeping is the best part of the day as the pain seems to subside during the night. Upon wakening the pain level is lower but gradually goes higher as she becomes more active.

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Hello, the pain you described is very similar to mine. I have had this pain for over 8 years found out I have torn muscles in my rectum that's behind a lot of nerves. No one will operate due to the location. The chanches of becoming incontinent are to great to operate. I take pain meds to manage the pain. Wishing you well.

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@jordanabrams30

In regards to the neuropathy of the feet, what do they focus the release on that has created great results? Is it the feet themselves etc?

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@jordanabrams30, Good evening. I think @jenniferhunter described MFR well. There are compressions and restrictions that have to be identified and then using an MFR technique, eradicated. It was fortunate that my MFR therapist was helping an intern. So during the intern's time with me, she concentrated on my feet. It was amazing to feel those leathery and tough soles be turned into sensitive and usable feet. Another technique used was to gently pull on my feet to open up the restrictions. And then there was another one in which I placed my feet on the therapist's shoulders so she could have a different perspective. My experience has been that these expert level MFR therapists can feel so much more than we can. That makes them able to target, define, and treat what is going on under the skin.

Right now I must keep the fascia happy and unrestricted which I do every week in a treatment session and at home. Once you get to this point, you sure don't want to go back.

An even greater improvement for me has been to finally get through the layers of fascia restrictions in my knee after a total knee replacement (TKR) so that I could begin walking again. Three years ago I walked about 3 miles 5 days a week. Since being slammed with small fiber neuropathy (SFN) at the same time as chronic myofascial pain syndrome (CMPS) I have been pretty housebound. In the last 3 weeks, I have gradually increased my walking regimen to 1 mile 3 times a week. A huge improvement and a "feel good" activity. Releases endorphins that we need for happiness. May you be free of suffering, safe and protected.
Thanks for posting, Chris

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@skiah22 and @bkruppa and others. There were many suggestions for coping with sitting pain in old threads, above. Mine has gotten much better thanks to stretching, exercise, MFR and I found a therapist that used intense ultrasound while he does active release stretching. Recently, I've started taking some enzymes (serrapeptidase (biomedic labs) and Nattokinase (Doctor's best); both from Amazon) and these helped immensely. I believe these help the tissue remodel (compression from MFR isn't the only way to remodel the fascia – electrical (galvanic) stimulation, ultrasound, stretching, exercise can assist this process, too). However, I had a lot of stiffness and I do believe it is from deposits of fibrin in muscles, on nerves, on bursa, etc. My pain level (and stiffness) is way down after taking the enzymes I mentioned (on an empty stomach). If you are not on blood thinning medication already, it might be worth a try. That seems to be the contraindication. Also, for some reason 10-15% of Especially if you have stiffness, too. I believe that now I am mostly dealing with healing of tendons that attach to the ischeal tuberosities – hence I have some small sitting pain (which has been getting better over time). Here is a review I wrote for an enzyme product on Amazon:
Long story short I was having some myofascial pain (stiffness, sitting pain) in the legs, glutes, lower back. It’s been getting better thanks to various supplements (especailly Vitamin C with citrus bioflavinoids, quercetin / resveratrol, stretching and exercise). I also had plantar fasciitis in the feet in the past as well as some sciatica symptoms (which is due to some type of nerve compression / irritation somewhere along the nerve).

This helped along with taking nattokinase (200 U) and I worked my way up to 2 tablets of the Serrapeptase 3 times daily (one dose with the Nattokinase) Eventually, I’ll cut back to a maintenance dose and maybe use just 1 of the 80,000 U serrapeptase and 2000 U nattokinase.

While speculative, deposits of fibrin may be the culprit in causing tissue stiffness and improper tissue remodeling as you age. This may accompany (or possibly cause) conditions like plantar fasciitis, phlebitis (and some leg swelling), stiffening of the tissue – all things I am encountering. I noticed a decrease in sitting pain (i.e. less glute stiffness) right away within about four days of starting serrapeptase. On higher doses, I occasionally felt tingling in my feet while walking – but not in a painful way. More like the itching a healing wound might have. I had some areas near the ischial tuberosities that had dense areas that possibly were scar tissue-like (many years of martial arts with kicks, plyometric moves, hard landings probably contributed with this as well as possibly abnormal amounts of fibrin that were deposited on top of that as I aged – that was suggested to me by an injury massage therapist who specializes in aging athletes). Over several weeks, these became smoother and less ropey feeling. Prior massages including aggressive trigger point massage could not remove this / smooth this out. I’ve done all kinds of stretching, exercise and massage. These enzymes have been one of the most effective treatments in healing what I’ve got. Once I started on these enzymes I could feel the difference within a couple weeks. I could see some more recent scars that I have that were raised up appear flatter and remodel.

I generally research what I take and also read all the reviews from people taking these products and also scholarly articles. Based on what I’ve read, (and this is speculative – I can not state any of this as a universal medical certainty) it is quite possible that Serrapeptase can assist tissue remodeling, help remove / minimize scars / adhesions / help break up cysts, etc., including those that may irritate nerves, too. For many people, poorer healing may accompany aging. I believe this enzyme helps healing. I had no gastric irritation from either the 80,000 U version of the 260,000 U version of the enzyme. I was not recompensed in any way for this review. At some point, I'll drop down to a lower maintenance dose with the 80,000 U tablets, I suppose.

Liked by lioness

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@richmond54660 Hi I just read your article . I have been toying with the idea of enzymes. I have low back pain nerve pain and knots in my thigh muscles. I believe the MFR would help and also the enzymes. I do have Nattokinase at home so will start on this I do a lot of research and use vitamins and herbals. I never used enzymes but think it will benefit me . Thanks for your article.

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@richman54660

@skiah22 and @bkruppa and others. There were many suggestions for coping with sitting pain in old threads, above. Mine has gotten much better thanks to stretching, exercise, MFR and I found a therapist that used intense ultrasound while he does active release stretching. Recently, I've started taking some enzymes (serrapeptidase (biomedic labs) and Nattokinase (Doctor's best); both from Amazon) and these helped immensely. I believe these help the tissue remodel (compression from MFR isn't the only way to remodel the fascia – electrical (galvanic) stimulation, ultrasound, stretching, exercise can assist this process, too). However, I had a lot of stiffness and I do believe it is from deposits of fibrin in muscles, on nerves, on bursa, etc. My pain level (and stiffness) is way down after taking the enzymes I mentioned (on an empty stomach). If you are not on blood thinning medication already, it might be worth a try. That seems to be the contraindication. Also, for some reason 10-15% of Especially if you have stiffness, too. I believe that now I am mostly dealing with healing of tendons that attach to the ischeal tuberosities – hence I have some small sitting pain (which has been getting better over time). Here is a review I wrote for an enzyme product on Amazon:
Long story short I was having some myofascial pain (stiffness, sitting pain) in the legs, glutes, lower back. It’s been getting better thanks to various supplements (especailly Vitamin C with citrus bioflavinoids, quercetin / resveratrol, stretching and exercise). I also had plantar fasciitis in the feet in the past as well as some sciatica symptoms (which is due to some type of nerve compression / irritation somewhere along the nerve).

This helped along with taking nattokinase (200 U) and I worked my way up to 2 tablets of the Serrapeptase 3 times daily (one dose with the Nattokinase) Eventually, I’ll cut back to a maintenance dose and maybe use just 1 of the 80,000 U serrapeptase and 2000 U nattokinase.

While speculative, deposits of fibrin may be the culprit in causing tissue stiffness and improper tissue remodeling as you age. This may accompany (or possibly cause) conditions like plantar fasciitis, phlebitis (and some leg swelling), stiffening of the tissue – all things I am encountering. I noticed a decrease in sitting pain (i.e. less glute stiffness) right away within about four days of starting serrapeptase. On higher doses, I occasionally felt tingling in my feet while walking – but not in a painful way. More like the itching a healing wound might have. I had some areas near the ischial tuberosities that had dense areas that possibly were scar tissue-like (many years of martial arts with kicks, plyometric moves, hard landings probably contributed with this as well as possibly abnormal amounts of fibrin that were deposited on top of that as I aged – that was suggested to me by an injury massage therapist who specializes in aging athletes). Over several weeks, these became smoother and less ropey feeling. Prior massages including aggressive trigger point massage could not remove this / smooth this out. I’ve done all kinds of stretching, exercise and massage. These enzymes have been one of the most effective treatments in healing what I’ve got. Once I started on these enzymes I could feel the difference within a couple weeks. I could see some more recent scars that I have that were raised up appear flatter and remodel.

I generally research what I take and also read all the reviews from people taking these products and also scholarly articles. Based on what I’ve read, (and this is speculative – I can not state any of this as a universal medical certainty) it is quite possible that Serrapeptase can assist tissue remodeling, help remove / minimize scars / adhesions / help break up cysts, etc., including those that may irritate nerves, too. For many people, poorer healing may accompany aging. I believe this enzyme helps healing. I had no gastric irritation from either the 80,000 U version of the 260,000 U version of the enzyme. I was not recompensed in any way for this review. At some point, I'll drop down to a lower maintenance dose with the 80,000 U tablets, I suppose.

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Do you have a list of medical/technical articles on the use of enzymes? Thanks.

Liked by lioness

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@bkruppa There is not a lot of scientific studies in the US. These enzymes have been used for many years in Japan and elsewhere. There are some reviews of the enzymes on websites such as WebMD and Healthline. I did come across an article from a medical journal recommending nattokinase as an anti-thorombolytic – but I'm having a hard time finding it. Here is a review about Serrapeptidase, attached.

Shared files

Serratiopeptidase review 1-s2 (Serratiopeptidase-review-1-s2.0-S181808761630160X-main.pdf)

Liked by lioness

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