Pudendal Nerve Entrapment/Neuropathy/Damage

Posted by mandiPNE @mandee, Oct 5, 2018

Hello from a new member. Am wondering if anyone suffers from the monster Pudendal Nerve Entrapment/Neuropathy/Damage? I do. And I’m very alone in it. It is a very uncommon condition, and because of its personal nature, one that many people may not be comfortable opening up about. There seems to be a more vocal/visible presence of patients in the US, AUS and France. I hope, I need, I want – for it be made more aware of here in Canada. If there is any one who suffers from it, or who thinks they might, please feel free to open up about it. Please join me in advocating for ourselves in this horrible condition.

Interested in more discussions like this? Go to the Chronic Pain group.

@dhc684

The Sprint goes in for 60 days and then the claim is the nerve signal to the brain is reprogrammed so the relief continues after it is removed. However there research is for more common issues like back pain and not for pudendal nerve pain.

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You are correct. 60 day implant of small like fish hook that is inserted near the nerve causing the pain. Not inserted into the spine as others. The theory is that nerves will be re programed with the brain to block the pain. I am scheduled to have the procedure done in September. My pain Dr. claims that his sister who is also a pain DR has completed many of these types of procedures in the Chicago area with great success . I have been trying to connect with someone who has had the procedure done but to no avail.

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I have burning in my female parts. They really never named it. I had a Pudendal nerve injection which stopped the pain for 12 hours. They the doctor froze my Pudendal nerve but that did not work. Now I am taking Lyrica which calms the pain dow n by 10%. Where is your pain?

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@mm1

You are correct. 60 day implant of small like fish hook that is inserted near the nerve causing the pain. Not inserted into the spine as others. The theory is that nerves will be re programed with the brain to block the pain. I am scheduled to have the procedure done in September. My pain Dr. claims that his sister who is also a pain DR has completed many of these types of procedures in the Chicago area with great success . I have been trying to connect with someone who has had the procedure done but to no avail.

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What is the fish hook procedure called. I would like to ask my doctors about it. I am in Atlanta but willing to come to Chicago if the procedure is successful.

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