Psychogenic non-epileptic seizures (PNES)
Last evening while watching Inside Edition, there was a story about a woman who would forget that she was married and didn’t know that the kind man who would visit her in the hospital was her husband. I’m not positive that this is what they said it was but moment after seeing the story I tried doing a search for yesterday’s Inside Edition which is available on YouTube but yesterday’s show was not posted yet but there is an Inside Edition website and the lead story was there but it wasn’t clear if one could watch the whole show, so I did a site search but not writing down the name of the condition the clue I remembered did not present me with an option that made sense. I did recall that in the story they said at one point “ non-epileptic seizure “ so I tried typing that in a search engine and much to my surprise and delight it seems that “ non-epileptic seizure “ is actually a way of describing certain types of events that result in symptoms that are real but it seems to me that this is a great example of how illness’s, maladies, conditions that don’t have an official name can quickly become the generic “ it’s all in your head “ condition.
I’m specifically interested in this state that I find myself in more and more frequently when STRESS effects me and my first specific complaints are horrible headaches, tension in my neck and head and blurred vision which in and of its own right is not just “ blurred vision “
This post like so many of my posts can easily turn into a very long post because as I think about what I’m attempting to say here has so many ways it can go and to me it’s all important to be exacting in the description of details.
So I want to mention the subject of this post:
“ Psychogenic non-epileptic seizure “ because this is the name I found while doing my search. But while attempting to explain the vision problem I realized that “ blurred vision “ seems to be generic way to say that your vision is not clear. That said I notice that one kind of “ blurred “ is like attempting to see through a windshield that fog up and remains that way until it is wiped with anything but a clean towel seems best to me. I’ve also noticed that sometimes it’s foggy on the inside and other times on the outside. Since I actually now about this meaning what causes each type of “ condensation “ I can confidently tell others how to address the condition which would please me if a doctor understood this metaphor and they could apply a similar approach to my saying :” my vision is blurred “ can you see why this metaphor is a good one? “ Most times over the years as soon as I say “ blurred vision “ most doctors but especially most ERs write in your records that you need to see an ( spell check is not helping me here so let me say ‘ an eye doctor ‘ optimologist “ in my humble opinion this is why certain condition take forever to name accurately because the other ways that my vision is impaired is double vision, Smokey vision, cross eyed vision, and other ways I could describe what is not “ normal “.
I know that digressing into this one symptom and explanations that are often not heard nor are they understood ; hampers the main subject which which has other symptoms.
I’m not a doctor I often say but that does not mean what I’ve discovered and or how I break things down and self examine what is going on is not very valuable if the medical personnel take the time and respectfully listen to what I’m experiencing.
It would be great if someone here “ gets “ what I’m saying and can help me strategize a plan going forward. My shrink actually used my vision problem to mock me by saying” look how long you’ve been complaining about your blurred vision and we’ve done all kinds of tests and find nothing; in fact the eye doctor says your vision is remarkable for your age and 20/20 is unheard of SO WHY ARE YOU COMPLAINING? “ “ you can SEE ( ha! ) why we say your blurred vision is all in your head “ How would that make YOU feel?